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Content
December 2017, Volume 10, Issue 6
- 729-738 Patients’ Awareness, Usage and Impact of Hospital Report Cards in the US
by Martin Emmert & Mark Schlesinger - 739-751 Choosing a Doctor: Does Presentation Format Affect the Way Consumers Use Health Care Performance Information?
by Patricia Kenny & Stephen Goodall & Deborah J. Street & Jessica Greene - 753-761 Development and Validation of a Cross-Country Hospital Patient Quality of Care Assessment Tool in Europe
by Amanda Villiers-Tuthill & Karolina Doulougeri & Hannah McGee & Anthony Montgomery & Efharis Panagopoulou & Karen Morgan - 763-772 Patient and Public Preferences for Treatment Attributes in Parkinson’s Disease
by Marieke G. M. Weernink & Janine A. Til & Catharina G. M. Groothuis-Oudshoorn & Maarten J. IJzerman - 773-783 Identifying and Prioritizing the Barriers and Facilitators to the Self-Management of Type 2 Diabetes Mellitus: A Community-Centered Approach
by Allison H. Oakes & Vincent S. Garmo & Lee R. Bone & Daniel R. Longo & Jodi B. Segal & John F. P. Bridges - 785-798 Does Patient Preference Measurement in Decision Aids Improve Decisional Conflict? A Randomized Trial in Men with Prostate Cancer
by Joseph D. Shirk & Catherine M. Crespi & Josemanuel D. Saucedo & Sylvia Lambrechts & Ely Dahan & Robert Kaplan & Christopher Saigal - 799-808 The Health-Related Quality of Life of Chinese Patients on Hemodialysis and Peritoneal Dialysis
by Julie Yun Chen & Eric Yuk Fai Wan & Edmond Pui Hang Choi & Anca Ka Chun Chan & Karina Hiu Yen Chan & Joyce Pui Yan Tsang & Cindy Lo Kuen Lam
October 2017, Volume 10, Issue 5
- 531-536 The Ball is in Your Court: Agenda for Research to Advance the Science of Patient Preferences in the Regulatory Review of Medical Devices in the United States
by Bennett Levitan & A. Brett Hauber & Marina G. Damiano & Ross Jaffe & Stephanie Christopher - 537-539 Revolutionizing Informed Consent: Empowering Patients with Certified Decision Aids
by Thaddeus Mason Pope & Daniel Lessler - 541-544 Inaugural Conference on Incorporating Patient-Reported Outcomes and Patient Preference Information into Clinical Research, Clinical Care, and Risk-Benefit Assessments for Neurodegenerative Diseases
by Jennifer L. Purks & Erin E. Wilhelm & Ira Shoulson & John Creveling & E. Ray Dorsey & Telba Irony & Tara M. LoCastro & Fernando Pagan & Bernard Ravina & Tanya Simuni & MaryAnne Sterling & Pierre Tariot & Karen E. Anderson - 545-552 Deliberative Engagement Methods for Patient-Centered Outcomes Research
by Stephanie R. Morain & Danielle M. Whicher & Nancy E. Kass & Ruth R. Faden - 553-565 Patients’ Preferences for Outcome, Process and Cost Attributes in Cancer Treatment: A Systematic Review of Discrete Choice Experiments
by Daniela R. Bien & Marion Danner & Vera Vennedey & Daniele Civello & Silvia M. Evers & Mickaël Hiligsmann - 567-578 Symptoms and Impacts in Non-Metastatic Castration-Resistant Prostate Cancer: Qualitative Study Findings
by Erin L. Tomaszewski & Pierre Moise & Robert N. Krupnick & Jared Downing & Margaret Meyer & Shevani Naidoo & Stefan Holmstrom - 579-592 Psychometric Validation of the Heart Failure Caregiver Questionnaire (HF-CQ®)
by Anna Strömberg & Nicola Bonner & Laura Grant & Bryan Bennett & Misook L. Chung & Tiny Jaarsma & Marie Louise Luttik & Eldrin F. Lewis & Frederico Calado & Celine Deschaseaux - 593-603 Patient Experience of Symptoms and Side Effects when Treated with Osimertinib for Advanced Non-Small-Cell Lung Cancer: A Qualitative Interview Substudy
by Anna Rydén & Fiona Blackhall & Hye Ryun Kim & Rathi N. Pillai & Lauren Braam & Mona L. Martin & Andrew Walding - 605-614 Health-Related Quality of Life in Chronic HCV-Infected Patients Switching to Pegylated-Interferon-Free Regimens (ANRS CO20 CUPIC Cohort Study and SIRIUS Trial)
by Maria Patrizia Carrieri & Camelia Protopopescu & Zobair Younossi & Antoine Vilotitch & Hélène Fontaine & Ventzislava Petrov-Sanchez & Fabienne Marcellin & Fabrice Carrat & Christophe Hézode & Marc Bourlière - 615-628 Qualitative Assessment of the Symptoms and Impact of Pancreatic Exocrine Insufficiency (PEI) to Inform the Development of a Patient-Reported Outcome (PRO) Instrument
by Colin D. Johnson & Rob Arbuckle & Nicola Bonner & Gary Connett & Enrique Dominguez-Munoz & Philippe Levy & Doris Staab & Nicola Williamson & Markus M. Lerch - 629-642 Development and Pretesting of a Questionnaire to Assess Patient Experiences and Satisfaction with Medications (PESaM Questionnaire)
by Merel L. Kimman & Adrienne H. Rotteveel & Marlies Wijsenbeek & Rémy Mostard & Nelleke C. Tak & Xana van Jaarsveld & Marjolein Storm & Kioa L. Wijnsma & Marielle Gelens & Nicole C. A. J. van de Kar & Jack Wetzels & Carmen D. Dirksen - 643-651 Patient Preferences for Pain Management in Advanced Cancer: Results from a Discrete Choice Experiment
by David M. Meads & John L. O’Dwyer & Claire T. Hulme & Phani Chintakayala & Karen Vinall-Collier & Michael I. Bennett - 653-666 Understanding Treatment Burden for Children Treated for Growth Hormone Deficiency
by Meryl Brod & Lise Højbjerre & Suzanne Lessard Alolga & Jane F. Beck & Lars Wilkinson & Michael Højby Rasmussen - 667-668 Erratum to: Inaugural Conference on Incorporating Patient-Reported Outcomes and Patient Preference Information into Clinical Research, Clinical Care, and Risk-Benefit Assessments for Neurodegenerative Diseases
by Jennifer L. Purks & Erin E. Wilhelm & Ira Shoulson & John Creveling & E. Ray Dorsey & Telba Irony & Tara M. LoCastro & Fernando Pagan & Bernard Ravina & Tanya Simuni & MaryAnne Sterling & Pierre Tariot & Karen E. Anderson
August 2017, Volume 10, Issue 4
- 377-379 Art and Science of Instrument Development for Stated-Preference Methods
by Ellen M. Janssen & John F. P. Bridges - 381-387 Is Financial Literacy a Determinant of Health?
by Melanie Meyer - 389-405 Measuring Compassion in Healthcare: A Comprehensive and Critical Review
by Shane Sinclair & Lara B. Russell & Thomas F. Hack & Jane Kondejewski & Richard Sawatzky - 407-427 Self-Care of People with Chronic Obstructive Pulmonary Disease: A Meta-Synthesis
by Marco Clari & Maria Matarese & Dhurata Ivziku & Maria Grazia Marinis - 429-438 “They Are Talking About Me, but Not with Me”: A Focus Group Study to Explore the Patient Perspective on Interprofessional Team Meetings in Primary Care
by Jerôme Jean Jacques Dongen & Maarten Wit & Hester Wilhelmina Henrica Smeets & Esther Stoffers & Marloes Amantia Bokhoven & Ramon Daniëls - 439-446 Development of a Report Card for Identifying Local Sublingual Immunotherapy Events in Clinical Trials
by Josephine Norquist & Emuella Flood & Tiffany Tanzosh & Haojie Li & Beata Iskold & Thelma Rose Ganser & Helen Marson-Smith - 447-454 EQ-5D-5L and SF-6D Utility Measures in Symptomatic benign Thyroid Nodules: Acceptability and Psychometric Evaluation
by Carlos K. H. Wong & Brian H. H. Lang & Hill M. S. Yu & Cindy L. K. Lam - 455-462 Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study
by Emma Dures & Sarah Hewlett & Jane Lord & Clive Bowen & Neil McHugh & William Tillett - 463-474 Preparing Parents to Make An Informed Choice About Antibiotic Use for Common Acute Respiratory Infections in Children: A Randomised Trial of Brief Decision Aids in a Hypothetical Scenario
by Peter D. Coxeter & Chris B. Del Mar & Tammy C. Hoffmann - 475-487 Discrete Choice Experiment Attribute Selection Using a Multinational Interview Study: Treatment Features Important to Patients with Type 2 Diabetes Mellitus
by Anna Rydén & Stephanie Chen & Emuella Flood & Beverly Romero & Susan Grandy - 489-501 Speaking Up: How Patient and Physician Voices Shaped a Trial to Improve Goals-of-Care Discussions
by Rachel Solomon & Cardinale Smith & Jay Kallio & Amy Fenollosa & Barbara Benerofe & Laurence Jones & Kerin Adelson & Jason P. Gonsky & Carolyn Messner & Nina A. Bickell - 503-503 Comment on: “Moving from Patient Advocacy to Partnership: A Long and Bumpy Road”
by Alain Braillon - 505-505 Author’s Reply to Braillon: “Moving from Patient Advocacy to Partnership: A Long and Bumpy Road”
by Durhane Wong-Rieger - 507-510 Health Preference Research: An Overview
by Benjamin M. Craig & Emily Lancsar & Axel C. Mühlbacher & Derek S. Brown & Jan Ostermann - 511-514 Preferences for Health Interventions: Improving Uptake, Adherence, and Efficiency
by Jan Ostermann & Derek S. Brown & Esther W. Bekker-Grob & Axel C. Mühlbacher & Shelby D. Reed - 515-517 Health Valuation: Demonstrating the Value of Health and Lifespan
by Elly A. Stolk & Benjamin M. Craig & Brendan Mulhern & Derek S. Brown - 519-521 Assessment of Individual Patient Preferences to Inform Clinical Practice
by Jennifer Anne Whitty & Liana Fraenkel & Christopher S. Saigal & Catharina G. M. Groothuis-Oudshoorn & Dean A. Regier & Deborah A. Marshall - 523-526 Giving Patients a Meaningful Voice in United States Regulatory Decision Making: The Role for Health Preference Research
by F. Reed Johnson & Kathleen Beusterien & Semra Özdemir & Leslie Wilson - 527-530 Giving Patients a Meaningful Voice in European Health Technology Assessments: The Role of Health Preference Research
by Axel C. Mühlbacher & F. Reed Johnson
June 2017, Volume 10, Issue 3
- 263-266 Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project
by Esther W. Bekker-Grob & Conny Berlin & Bennett Levitan & Karim Raza & Kalliopi Christoforidi & Irina Cleemput & Jana Pelouchova & Harald Enzmann & Nigel Cook & Mats G. Hansson - 267-270 Seeing is Engaging: Vlogs as a Tool for Patient Engagement
by Joy L. Lee & Mary Frey & Peter Frey & Ilene L. Hollin & Albert W. Wu - 271-276 Moving from Patient Advocacy to Partnership: A Long and Bumpy Road
by Durhane Wong-Rieger - 277-282 Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges
by Ahmed Rashid & Victoria Thomas & Toni Shaw & Gillian Leng - 283-293 Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review
by Vanessa C. Delisle & Stephanie T. Gumuchian & Danielle B. Rice & Alexander W. Levis & Lorie A. Kloda & Annett Körner & Brett D. Thombs - 295-309 A Systematic Review of Financial Toxicity Among Cancer Survivors: We Can’t Pay the Co-Pay
by Louisa G. Gordon & Katharina M. D. Merollini & Anthony Lowe & Raymond J. Chan - 311-319 Communicating Uncertainty in Benefits and Harms: A Review of Patient Decision Support Interventions
by Nick Bansback & Madelaine Bell & Luke Spooner & Alysa Pompeo & Paul K. J. Han & Mark Harrison - 321-334 Development and Content Validity of the Statin Experience Assessment Questionnaire (SEAQ)©
by Terry A. Jacobson & Steven V. Edelman & Nina Galipeau & Alan L. Shields & Usha G. Mallya & Andrew Koren & Michael H. Davidson - 335-344 What’s Important to the Patient? Informational Needs of Patients Making Decisions About Hepatitis C Treatment
by Donna M. Evon & Carol E. Golin & Teodora Stoica & Rachel E. Jones & Sarah J. Willis & Joseph Galanko & Michael W. Fried - 345-352 The Voice of the Patient Methodology: A Novel Mixed-Methods Approach to Identifying Treatment Goals for Men with Prostate Cancer
by Christopher S. Saigal & Sylvia I. Lambrechts & V. Seenu Srinivasan & Ely Dahan - 353-365 Development of a Patient-Reported Palliative Care-Specific Health Classification System: The POS-E
by Mendwas Dzingina & Irene J. Higginson & Paul McCrone & Fliss E. M. Murtagh - 367-376 Examination of the Applicability of the Disabilities of the Arm, Shoulder and Hand (DASH) Questionnaire to Patients with Hand Injuries and Diseases Using Rasch Analysis
by Kathrin Braitmayer & Caroline Dereskewitz & Cornelia Oberhauser & Klaus-Dieter Rudolf & Michaela Coenen
April 2017, Volume 10, Issue 2
- 133-139 Big Data: Will It Improve Patient-Centered Care?
by Denzil G. Fiebig - 141-152 Successful Stepwise Development of Patient Research Partnership: 14 Years’ Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT)
by Maarten Wit & John R. Kirwan & Peter Tugwell & Dorcas Beaton & Maarten Boers & Peter Brooks & Sarah Collins & Philip G. Conaghan & Maria-Antonietta D’Agostino & Cathie Hofstetter & Rod Hughes & Amye Leong & Ann Lyddiatt & Lyn March & James May & Pamela Montie & Pamela Richards & Lee S. Simon & Jasvinder A. Singh & Vibeke Strand & Marieke Voshaar & Clifton O. Bingham & Laure Gossec - 153-162 The Patient Experience with Soft Tissue Sarcoma: A Systematic Review of the Literature
by Randall Winnette & Lisa M. Hess & Steven J. Nicol & Datchen Fritz Tai & Catherine Copley-Merriman - 163-185 Factors Affecting Patients’ Perception On, and Adherence To, Anticoagulant Therapy: Anticipating the Role of Direct Oral Anticoagulants
by Ekta Y. Pandya & Beata Bajorek - 187-202 A Review of HIV-Specific Patient-Reported Outcome Measures
by Kim Engler & David Lessard & Bertrand Lebouché - 203-213 Impact of Measuring Patient-Reported Outcomes in Dermatology Drug Development
by Catherine Copley-Merriman & Susan Zelt & Marci Clark & Ari Gnanasakthy - 215-224 The Rest of the Story: A Qualitative Study of Complementing Standardized Assessment Data with Informal Interviews with Older Patients and Families
by Claire Lafortune & Jacobi Elliott & Mary Y. Egan & Paul Stolee - 225-235 Symptoms and Functional Limitations in the First Year Following a Myocardial Infarction: A Qualitative Study
by Chad Gwaltney & Matthew Reaney & Meaghan Krohe & Mona M. Martin & Heather Falvey & Patrick Mollon - 237-250 The Therapy Attitudes and Process Questionnaire: A Brief Measure of Factors Related to Psychotherapy Appointment Attendance
by Bonnie A. Clough & Sonia M. Nazareth & Leanne M. Casey - 251-262 A Latent Class Analysis to Identify Variation in Caregivers’ Preferences for their Child’s Attention-Deficit/Hyperactivity Disorder Treatment: Do Stated Preferences Match Current Treatment?
by Xinyi Ng & John F. P. Bridges & Melissa M. Ross & Emily Frosch & Gloria Reeves & Charles E. Cunningham & Susan dosReis
February 2017, Volume 10, Issue 1
- 1-15 A Systematic Review and Meta-Synthesis of Patients’ Experiences and Perceptions of Seeking and Using Benzodiazepines and Z-Drugs: Towards Safer Prescribing
by Coral Sirdifield & Susan Y. Chipchase & Sara Owen & Aloysius Niroshan Siriwardena - 17-37 Patient Preferences for Oral Anticoagulation Therapy in Atrial Fibrillation: A Systematic Literature Review
by Thomas Wilke & Sabine Bauer & Sabrina Mueller & Thomas Kohlmann & Rupert Bauersachs - 39-49 Patient-Centered Outcome Measures to Assess Functioning in Randomized Controlled Trials of Low-Vision Rehabilitation: A Review
by Joshua R. Ehrlich & George L. Spaeth & Noelle E. Carlozzi & Paul P. Lee - 51-63 Content Validity for the VVSymQ® Instrument: A New Patient-Reported Outcome Measure for the Assessment of Varicose Veins Symptoms
by Jean Paty & Celeste A. Elash & Diane M. Turner-Bowker - 65-79 What Outcomes are Important for Gout Patients? In-Depth Qualitative Research into the Gout Patient Experience to Determine Optimal Endpoints for Evaluating Therapeutic Interventions
by Sophi Tatlock & Katja Rüdell & Charlotte Panter & Rob Arbuckle & Leslie R. Harrold & William J. Taylor & Tara Symonds - 81-92 Item Reduction, Scoring, and First Validation of the ACCEPTance by the Patients of their Treatment (ACCEPT©) Questionnaire
by Benoit Arnould & Hélène Gilet & Donald L. Patrick & Catherine Acquadro - 93-103 Engaging Patient Advocates and Other Stakeholders to Design Measures of Patient-Centered Communication in Cancer Care
by Katherine Treiman & Lauren McCormack & Murrey Olmsted & Nancy Roach & Bryce B. Reeve & Christa E. Martens & Rebecca R. Moultrie & Hanna Sanoff - 105-115 EQ-5D Health Utility Scores: Data from a Comprehensive Canadian Cancer Centre
by Hiten Naik & Doris Howell & Susie Su & Xin Qiu & M. Catherine Brown & Ashlee Vennettilli & Margaret Irwin & Vivien Pat & Hannah Solomon & Tian Wang & Henrique Hon & Lawson Eng & Mary Mahler & Henry Thai & Valerie Ho & Wei Xu & Soo Jin Seung & Nicole Mittmann & Geoffrey Liu - 117-131 Readability and Comprehension of the Geriatric Depression Scale and PROMIS® Physical Function Items in Older African Americans and Latinos
by Sylvia H. Paz & Loretta Jones & José L. Calderón & Ron D. Hays
December 2016, Volume 9, Issue 6
- 495-498 Using PROMs in Healthcare: Who Should Be in the Driving Seat—Policy Makers, Health Professionals, Methodologists or Patients?
by Kirstie L. Haywood & Roger Wilson & Sophie Staniszewska & Sam Salek - 499-510 What Do Users of Generic Medicines Think of Them? A Systematic Review of Consumers’ and Patients’ Perceptions of, and Experiences with, Generic Medicines
by Suzanne S. Dunne - 511-523 Factors in Patient Empowerment: A Survey of an Online Patient Research Network
by Emil Chiauzzi & Pronabesh DasMahapatra & Elisenda Cochin & Mikele Bunce & Raya Khoury & Purav Dave - 525-536 Patients’ Preferences for Genomic Diagnostic Testing in Chronic Lymphocytic Leukaemia: A Discrete Choice Experiment
by James Buchanan & Sarah Wordsworth & Anna Schuh - 537-546 A Cross-Sectional Study of the Impact of Spasticity on Daily Activities in Multiple Sclerosis
by Francois Bethoux & Ruth Ann Marrie - 547-557 Patients’ Early Post-Operative Experiences with Lung Transplantation: A Longitudinal Qualitative Study
by Annina Seiler & Richard Klaghofer & Natalie Drabe & Chantal Martin-Soelch & Vera Hinderling-Baertschi & Lutz Goetzmann & Annette Boehler & Stefan Buechi & Josef Jenewein - 559-569 Treatment Burden and Chronic Illness: Who is at Most Risk?
by Adem Sav & Jennifer A. Whitty & Sara S. McMillan & Elizabeth Kendall & Fiona Kelly & Michelle A. King & Amanda J. Wheeler - 571-582 Translating Evidence to Facilitate Shared Decision Making: Development and Usability of a Consult Decision Aid Prototype
by Dawn Stacey & France Légaré & Anne Lyddiatt & Anik M. C. Giguere & Manosila Yoganathan & Anton Saarimaki & Jordi Pardo Pardo & Tamara Rader & Peter Tugwell - 583-590 A Case Study Investigation into the Use of Multi-compartment Compliance Aids in Older People Resident in Very Sheltered Housing
by Katie MacLure & Joan MacLeod & Katrina Forbes-McKay & Vibhu Paudyal & Scott Cunningham & Alison Strath & Rory Lynch & Derek Stewart
October 2016, Volume 9, Issue 5
- 373-377 The Patient Voice: At the Intersection of a US Regulatory Revolution
by Peter J. Pitts - 379-381 Instrument Development in Choice Experiments. Commentary on: “Applying a Framework for Instrument Development of a Choice Experiment to Measure Treatment Preferences in Type 2 Diabetes”
by Eve Wittenberg - 383-393 Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis
by Jacobi Elliott & Heather McNeil & Jessica Ashbourne & Kelsey Huson & Veronique Boscart & Paul Stolee - 409-418 Development of a Symptom-Based Patient-Reported Outcome Instrument for Functional Dyspepsia: A Preliminary Conceptual Model and an Evaluation of the Adequacy of Existing Instruments
by Fiona Taylor & David S. Reasner & Robyn T. Carson & Linda S. Deal & Catherine Foley & Ramon Iovin & J. Jason Lundy & Farrah Pompilus & Alan L. Shields & Debra G. Silberg - 433-443 Cognitive Testing of an Electronic Version of the Faces Pain Scale-Revised with Pediatric and Adolescent Sickle Cell Patients
by Neehar Gupta & April N. Naegeli & Diane M. Turner-Bowker & Emuella M. Flood & Lori Ellen Heath & Shelley M. Mays & Carlton Dampier - 457-464 Support for Living a Meaningful Life with Osteoarthritis: A Patient-to-Patient Research Study
by Jean Louise Miller & Sylvia Ruth Teare & Nancy Marlett & Svetlana Shklarov & Deborah Anne Marshall - 465-479 A Framework for Instrument Development of a Choice Experiment: An Application to Type 2 Diabetes
by Ellen M. Janssen & Jodi B. Segal & John F. P. Bridges - 481-492 How Well Can Analytic Hierarchy Process be Used to Elicit Individual Preferences? Insights from a Survey in Patients Suffering from Age-Related Macular Degeneration
by Marion Danner & Vera Vennedey & Mickaël Hiligsmann & Sascha Fauser & Christian Gross & Stephanie Stock
August 2016, Volume 9, Issue 4
- 281-292 A Systematic Review of Patients’ Perspectives on the Subcutaneous Route of Medication Administration
by Colin H. Ridyard & Dalia M. M. Dawoud & Lorna V. Tuersley & Dyfrig A. Hughes - 293-301 A Comparison of Methods for Capturing Patient Preferences for Delivery of Mental Health Services to Low-Income Hispanics Engaged in Primary Care
by Patricia M. Herman & Maia Ingram & Charles E. Cunningham & Heather Rimas & Lucy Murrieta & Kenneth Schachter & Jill Guernsey Zapien & Scott C. Carvajal - 303-309 Understanding the Experience of Age-Related Vestibular Loss in Older Individuals: A Qualitative Study
by Aisha Harun & Carol Li & John F. P. Bridges & Yuri Agrawal - 311-322 A Head-to-Head Comparison of the EQ-5D-5L and AQoL-8D Multi-Attribute Utility Instruments in Patients Who Have Previously Undergone Bariatric Surgery
by Julie A. Campbell & Andrew J. Palmer & Alison Venn & Melanie Sharman & Petr Otahal & Amanda Neil - 323-333 Patient, Caregiver, and Nurse Preferences for Treatments for Bone Metastases from Solid Tumors
by Yi Qian & Jorge Arellano & A. Brett Hauber & Ateesha F. Mohamed & Juan Marcos Gonzalez & Guy Hechmati & Francesca Gatta & Stacey Harrelson & Cynthia Campbell-Baird - 335-348 Psychometric Evaluation of a New Patient-Reported Outcome (PRO) Symptom Diary for Varicose Veins: VVSymQ® Instrument
by David D. I. Wright & Jean Paty & Diane M. Turner-Bowker & Andrew Bradbury - 349-358 Perceived Barriers and Potential Strategies to Improve Self-Management Among Adults with Type 2 Diabetes: A Community-Engaged Research Approach
by Tanjala S. Purnell & Thomas J. Lynch & Lee Bone & Jodi B. Segal & Crystal Evans & Daniel R. Longo & John F. P. Bridges - 359-371 Satisfaction, Adherence and Health-Related Quality of Life with Transdermal Buprenorphine Compared with Oral Opioid Medications in the Usual Care of Osteoarthritis Pain
by Philip G. Conaghan & Michael Serpell & Paula McSkimming & Rod Junor & Sara Dickerson
June 2016, Volume 9, Issue 3
- 191-192 Not Surprising: Patients Not Engaged and Not Using Public Healthcare Quality Information
by Durhane Wong-Rieger - 193-200 Meeting the Challenges of Intervention Research in Health Science: An Argument for a Multimethod Research Approach
by Helle Ploug Hansen & Tine Tjørnhøj-Thomsen - 223-230 Completing a Questionnaire at Home Prior to Needs Assessment in General Practice: A Qualitative Study of Cancer Patients’ Experience
by Susanne Thayssen & Dorte Gilså Hansen & Jens Søndergaard & Mette Terp Høybye & Palle Mark Christensen & Helle Ploug Hansen - 231-240 A Qualitative Study of Vulnerable Patient Views of Type 2 Diabetes Consumer Reports
by Daniel R. Longo & Benjamin F. Crabtree & Maria B. Pellerano & Jenna Howard & Barry Saver & Edward L. Hannan & Justin Lee & Michael T. Lundberg & Roy Sabo - 241-249 Variation in Treatment Priorities for Chronic Hepatitis C: A Latent Class Analysis
by Liana Fraenkel & Joseph Lim & Guadalupe Garcia-Tsao & Valerie Reyna & Alexander Monto & John F. P. Bridges - 251-259 Validation of the Chinese Version of the Quality of Recovery-15 Score and Its Comparison with the Post-Operative Quality Recovery Scale
by Xue-Shan Bu & Jing Zhang & Yun-Xia Zuo - 261-269 Feasibility of Using Qualitative Interviews to Explore Patients’ Treatment Goals: Experience from Dermatology
by Christine Blome & Kathrin Usslar & Matthias Augustin - 271-279 Patient Involvement in the Design of a Patient-Centered Clinical Trial to Promote Adherence to Supplemental Oxygen Therapy in COPD
by Kristen E. Holm & Richard Casaburi & Scott Cerreta & Hélène A. Gussin & Julian Husbands & Janos Porszasz & Valentin Prieto-Centurion & Robert A. Sandhaus & Jamie L. Sullivan & Linda J. Walsh & Jerry A. Krishnan
February 2016, Volume 9, Issue 1
- 1-4 Developing Guidance on Ethics for Patient Groups Collecting and Reporting Patient Information for Health Technology Assessments
by Ann Single & Anna Scott & Janet Wale - 1-4 Developing Guidance on Ethics for Patient Groups Collecting and Reporting Patient Information for Health Technology Assessments
by Ann N. V. Single & Anna M. Scott & Janet Wale - 5-13 How Well Do the Generic Multi-attribute Utility Instruments Incorporate Patient and Public Views Into Their Descriptive Systems?
by Katherine Stevens - 15-25 The Benefits and Risks of Being a Standardized Patient: A Narrative Review of the Literature
by Joseph Plaksin & Joseph Nicholson & Sarita Kundrod & Sondra Zabar & Adina Kalet & Lisa Altshuler - 27-34 Validation of a Patient Satisfaction Scale in Patients Undergoing Bowel Preparation Prior to Colonoscopy
by Hind Hatoum & Swu-Jane Lin & Raymond Joseph & David Dahdal - 27-34 Validation of a Patient Satisfaction Scale in Patients Undergoing Bowel Preparation Prior to Colonoscopy
by Hind T. Hatoum & Swu-Jane Lin & Raymond E. Joseph & David N. Dahdal - 35-46 Assessment of Transdermal Buprenorphine Patches for the Treatment of Chronic Pain in a UK Observational Study
by Mick Serpell & Shiva Tripathi & Sabine Scherzinger & Sònia Rojas-Farreras & Alexander Oksche & Margaret Wilson - 35-46 Assessment of Transdermal Buprenorphine Patches for the Treatment of Chronic Pain in a UK Observational Study
by Mick Serpell & Shiva Tripathi & Sabine Scherzinger & Sònia Rojas-Farreras & Alexander Oksche & Margaret Wilson - 47-57 Focus Groups in Elderly Ophthalmologic Patients: Setting the Stage for Quantitative Preference Elicitation
by Marion Danner & Vera Vennedey & Mickaël Hiligsmann & Sascha Fauser & Stephanie Stock - 59-67 Preferences and Stated Adherence for Antibiotic Treatment of Cystic Fibrosis Pseudomonas Infections
by Ateesha Mohamed & F. Johnson & Maria-Magdalena Balp & Frederico Calado - 69-77 Depressive Symptoms, Cardiac Anxiety, and Fear of Body Sensations in Patients with Non-Cardiac Chest Pain, and Their Relation to Healthcare-Seeking Behavior: A Cross-Sectional Study
by Ghassan Mourad & Anna Strömberg & Peter Johansson & Tiny Jaarsma - 79-89 Novel Statistical Approach to Determine Inflammatory Bowel Disease: Patients’ Perspectives on Shared Decision Making
by Corey Siegel & Jennifer Lofland & Ahmad Naim & Jan Gollins & Danielle Walls & Laura Rudder & Chuck Reynolds
December 2015, Volume 8, Issue 6
- 471-476 Is Shared Decision Making a Utopian Dream or an Achievable Goal?
by Louisa Blair & France Légaré - 477-482 Ethics Review of Survey Research: A Mandatory Requirement for Publication?
by Danielle Whicher & Albert Wu - 483-497 Systematic Review of Patients’ and Parents’ Preferences for ADHD Treatment Options and Processes of Care
by Nicole Schatz & Gregory Fabiano & Charles Cunningham & Susan dosReis & Daniel Waschbusch & Stephanie Jerome & Kellina Lupas & Karen Morris - 499-505 Balance Sheets Versus Decision Dashboards to Support Patient Treatment Choices: A Comparative Analysis
by James Dolan & Peter Veazie - 507-520 Assessing the Impact of Caring for a Person with Schizophrenia: Development of the Schizophrenia Caregiver Questionnaire
by Adam Gater & Diana Rofail & Chris Marshall & Chloe Tolley & Linda Abetz-Webb & Steven Zarit & Carmen Berardo - 521-529 The Predictive Value of Discrete Choice Experiments in Public Health: An Exploratory Application
by Benjamin Salampessy & Jorien Veldwijk & A. Jantine Schuit & Karolien den Brekel-Dijkstra & Rabin Neslo & G. Ardine de Wit & Mattijs Lambooij - 531-539 Information and Decision-Making Needs Among People with Anxiety Disorders: Results of an Online Survey
by Sarah Liebherz & Martin Härter & Jörg Dirmaier & Lisa Tlach - 541-550 Patient and Physician Perspectives on MSdialog, an Electronic PRO Diary in Multiple Sclerosis
by Peter Greiner & Anna Sawka & Emma Imison - 551-558 The Impact of Chronic Urticaria from the Patient’s Perspective: A Survey in Five European Countries
by Maria-Magdalena Balp & Jeffrey Vietri & Haijun Tian & Gina Isherwood - 559-568 Validity of a New Patient Engagement Measure: The Altarum Consumer Engagement (ACE) Measure™
by Christopher Duke & Wendy Lynch & Brad Smith & Julie Winstanley - 569-569 Erratum to: Validity of a New Patient Engagement Measure: The Altarum Consumer Engagement (ACE) Measure™
by Christopher Duke & Wendy Lynch & Brad Smith & Julie Winstanley - 571-571 Erratum to: Capturing Patient-Reported Outcome (PRO) Data Electronically: The Past, Present, and Promise of ePRO Measurement in Clinical Trials
by Stephen Coons & Sonya Eremenco & J. Lundy & Paul O’Donohoe & Hannah O’Gorman & William Malizia
October 2015, Volume 8, Issue 5
- 373-384 Sample Size Requirements for Discrete-Choice Experiments in Healthcare: a Practical Guide
by Esther Bekker-Grob & Bas Donkers & Marcel Jonker & Elly Stolk - 385-395 Understanding Patient Preferences in Medication Nonadherence: A Review of Stated Preference Data
by Tracey-Lea Laba & Beverley Essue & Merel Kimman & Stephen Jan - 397-409 Computer-Based Clinical Decision Support Systems and Patient-Reported Outcomes: A Systematic Review
by David Blum & Sunil Raj & Rolf Oberholzer & Ingrid Riphagen & Florian Strasser & Stein Kaasa - 411-422 Consumers and Carers Versus Pharmacy Staff: Do Their Priorities for Australian Pharmacy Services Align?
by Sara McMillan & Fiona Kelly & Adem Sav & Elizabeth Kendall & Michelle King & Jennifer Whitty & Amanda Wheeler - 423-431 Using Best–Worst Scaling to Measure Caregiver Preferences for Managing their Child’s ADHD: A Pilot Study
by Susan dosReis & Xinyi Ng & Emily Frosch & Gloria Reeves & Charles Cunningham & John Bridges - 433-443 Qualitative Research on Fatigue Associated with Depression: Content Validity of the Fatigue Associated with Depression Questionnaire (FAsD-V2)
by Louis Matza & Lindsey Murray & Glenn Phillips & Thomas Konechnik & Ellen Dennehy & Elizabeth Bush & Dennis Revicki - 445-454 Patient-Reported Symptoms over 48 Weeks in a Randomized, Open-Label, Phase 3b Non-inferiority Trial of Adults with HIV Switching to Coformulated Elvitegravir, Cobicistat, Emtricitabine, and Tenofovir DF Versus Continuation of Ritonavir-Boosted Protease Inhibitor with Emtricitabine and Tenofovir DF
by Joseph Gathe & Jose Arribas & Jan Lunzen & Will Garner & Rebecca Speck & Randall Bender & Sanatan Shreay & Thai Nguyen - 455-467 Measuring the Preferences of Homeless Women for Cervical Cancer Screening Interventions: Development of a Best–Worst Scaling Survey
by Eve Wittenberg & Monica Bharel & Adrianna Saada & Emely Santiago & John Bridges & Linda Weinreb
August 2015, Volume 8, Issue 4
- 293-299 Patient-Centered Care and Patient-Reported Measures: Let’s Look Before We Leap
by Daniel Miller & Carolyn Steele Gray & Kerry Kuluski & Cheryl Cott - 301-309 Capturing Patient-Reported Outcome (PRO) Data Electronically: The Past, Present, and Promise of ePRO Measurement in Clinical Trials
by Stephen Coons & Sonya Eremenco & J. Lundy & Paul O’Donohoe & Hannah O’Gorman & William Malizia - 311-316 Self Management and Telehealth: Lessons Learnt from the Evaluation of a Dorset Telehealth Program
by Carol Bond & Louise Worswick - 317-327 Assessment of a Stool Symptom Screener and Understanding the Opioid-Induced Constipation Symptom Experience
by Karin Coyne & Brooke Currie & William Holmes & Joseph Crawley - 329-337 Positive Outcomes of Varicose Vein Surgery: The Patient Perspective
by Wei-Han Cheng & Haridarshan Patel & Wan-Ju Lee & Fang-Ju Lin & A. Pickard - 339-348 Burden of Illness of Diabetic Peripheral Neuropathic Pain: A Qualitative Study
by Meryl Brod & Betsy Pohlman & Steven Blum & Abhilasha Ramasamy & Robyn Carson - 349-358 Developing and Initiating Validation of a Model Opioid Patient-Prescriber Agreement as a Tool for Patient-Centered Pain Treatment
by Mary Ghods & Ian Schmid & Carol Pamer & Brian Lappin & Dale Slavin - 359-371 Patient-Reported Symptoms Over 48 Weeks in a Randomized, Open-Label, Phase IIIb Non-Inferiority Trial of Adults with HIV Switching to Co-Formulated Elvitegravir, Cobicistat, Emtricitabine, and Tenofovir DF versus Continuation of Non-Nucleoside Reverse Transcriptase Inhibitor with Emtricitabine and Tenofovir DF
by Anthony Mills & Will Garner & Anton Pozniak & Juan Berenguer & Rebecca Speck & Randall Bender & Thai Nguyen
June 2015, Volume 8, Issue 3
- 239-245 Walking in the Shoes of Patients, Not Just in Their Genes: A Patient-Centered Approach to Genomic Medicine
by Neeraj Arora & Bradford Hesse & Steven Clauser - 247-255 Improving the Validity of Stated-Preference Data in Health Research: The Potential of the Time-to-Think Approach
by Semra Ozdemir - 257-267 Patient-Reported Outcomes After a Switch to a Single-Tablet Regimen of Rilpivirine, Emtricitabine, and Tenofovir DF in HIV-1-Positive, Virologically Suppressed Individuals: Additional Findings From a Randomized, Open-Label, 48-Week Trial
by Jason Brunetta & Santiago Moreno Guillén & Andrea Antinori & Patrick Yeni & Barbara Wade & Margaret Johnson & Peter Shalit & Ramin Ebrahimi & Bethsheba Johnson & Ivan Walker & Shampa De-Oertel - 269-281 Unmet Needs Associated with Attention-Deficit/Hyperactivity Disorder in Eight European Countries as Reported by Caregivers and Adolescents: Results from Qualitative Research
by Vanja Sikirica & Emuella Flood & C. Dietrich & Javier Quintero & Val Harpin & Paul Hodgkins & Klaus Skrodzki & Kathleen Beusterien & M. Erder - 283-291 Patient Perspectives and Experience with Dalfampridine Treatment in Multiple Sclerosis-Related Walking Impairment: The Step Together Program
by Heidi Crayton & Matthew Sidovar & Stanley Wulf & Amy Guo
April 2015, Volume 8, Issue 2
- 119-126 The Development of Capability Measures in Health Economics: Opportunities, Challenges and Progress
by Joanna Coast & Philip Kinghorn & Paul Mitchell - 127-143 Involvement of Patients with Lung and Gynecological Cancer and Their Relatives in Psychosocial Cancer Rehabilitation: A Narrative Review
by Bente Hoeck & Loni Ledderer & Helle Hansen - 145-153 Intravenous versus Subcutaneous Drug Administration. Which Do Patients Prefer? A Systematic Review
by Kelly Stoner & Helena Harder & Lesley Fallowfield & Valerie Jenkins - 155-163 Constant-Sum Paired Comparisons for Eliciting Stated Preferences: A Tutorial
by Chris Skedgel & Dean Regier - 165-170 Test–Retest Reliability of an Interactive Voice Response (IVR) Version of the EORTC QLQ-C30
by J. Lundy & Stephen Coons & Neil Aaronson - 171-177 Use of a Web-Based Survey to Facilitate Shared Decision Making for Patients Eligible for Cancer Screening
by Charles Brackett & Stephen Kearing - 179-185 Effect of Internet on Chinese Patients Undergoing Elective Laparoscopic Cholecystectomy
by Xiequn Xu & Tao Hong & Binglu Li & Wei Liu - 187-197 The Association between Patient-Centered Attributes of Care and Patient Satisfaction
by Hyojung Tak & Gregory Ruhnke & Ya-Chen Shih - 199-206 Technology-Based Patient Consultations: Research Findings from Haematology Patients in Regional, Rural and Remote Queensland
by Pam McGrath - 207-216 Patient-reported Outcomes for Multicentric Castleman’s Disease in a Randomized, Placebo-controlled Study of Siltuximab
by Frits Rhee & Margaret Rothman & Kai Ho & Sarah Fleming & Raymond Wong & Alexander Fosså & Angela Dispenzieri & James Cavet & Nikhil Munshi & Jessica Vermeulen & Corey Casper - 217-227 Preference Elicitation Tool for Abnormal Uterine Bleeding Treatment: A Randomized Controlled Trial
by Lisa Hess & Abigail Litwiller & John Byron & John Stutsman & Kelly Kasper & Lee Learman - 229-238 Investigating Patient Perspectives on Medical Returns and Buying Medicines Online in Two Communities in Melbourne, Australia: Results from a Qualitative Study
by Bianca Brijnath & Josefine Antoniades & Jon Adams
December 2014, Volume 7, Issue 4
- 343-364 Measuring the Symptoms of Pediatric Constipation and Irritable Bowel Syndrome with Constipation: Expert Commentary and Literature Review
by Robert Arbuckle & Robyn Carson & Linda Abetz-Webb & Jeffrey Hyams & Carlo Lorenzo & Barbara Lewis & Elizabeth Gargon & Caroline Kurtz & Steven Shiff & Jeffrey Johnston - 365-386 A Systematic Review of Stated Preference Studies Reporting Public Preferences for Healthcare Priority Setting
by Jennifer Whitty & Emily Lancsar & Kylie Rixon & Xanthe Golenko & Julie Ratcliffe - 387-395 A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities
by Jo Brett & Sophie Staniszewska & Carole Mockford & Sandra Herron-Marx & John Hughes & Colin Tysall & Rashida Suleman - 397-401 Improving Communication in the Primary Care Setting: Perspectives of Patients with Speech Disabilities
by Megan Morris & Kathryn Yorkston & Marla Clayman - 403-411 The Incontinence Impact Questionnaire-7 (IIQ-7) Can Be Applicable to Chinese Males and Females with Lower Urinary Tract Symptoms
by Edmond Choi & Cindy Lam & Weng-Yee Chin - 413-426 Evaluation of Patient Preference and Willingness to Pay for Attributes of Maintenance Medication for Chronic Obstructive Pulmonary Disease (COPD)
by Ariane Kawata & Leah Kleinman & Gale Harding & Sulabha Ramachandran - 427-436 Characteristics and Experiences of Patients with Localized Prostate Cancer Who Left an Active Surveillance Program
by Zackary Berger & Jonathan Yeh & H. Carter & Craig Pollack - 437-450 Barriers to Initiating Insulin in Type 2 Diabetes Patients: Development of a New Patient Education Tool to Address Myths, Misconceptions and Clinical Realities
by Meryl Brod & Suzanne Alolga & Luigi Meneghini
September 2014, Volume 7, Issue 3
- 231-233 Time to Embrace a New Patient-Centered Care Rallying Cry: “Why Not?”
by Susan Frampton & Sara Guastello - 235-241 Measuring Patient Experience: Concepts and Methods
by Faraz Ahmed & Jenni Burt & Martin Roland - 243-260 Making Decisions About Implantable Cardioverter-Defibrillators from Implantation to End of Life: An Integrative Review of Patients’ Perspectives
by Krystina Lewis & Dawn Stacey & Dan Matlock - 261-270 Involving Patients in a Multidisciplinary European Consensus Process and in the Development of a ‘Patient Summary of the Consensus Document for Colon and Rectal Cancer Care’
by Petra Boelens & Claire Taylor & Geoffrey Henning & Perla Marang-van de Mheen & Eloy Espin & Theo Wiggers & Jola Gore-Booth & Barbara Moss & Vincenzo Valentini & Cornelis Velde - 271-282 Assessing Stated Preferences for Colorectal Cancer Screening: A Critical Systematic Review of Discrete Choice Experiments
by S. Wortley & G. Wong & A. Kieu & K. Howard - 283-300 The Patient Perspective of Diabetes Care: A Systematic Review of Stated Preference Research
by Lill-Brith Arx & Trine Kjær - 301-312 Examining Patients’ Perceptions of Care to Identify Opportunities for Quality Improvement in Psychiatric Inpatient Hospitals
by Glorimar Ortiz - 313-318 New Insight into the Role of Patients During Medical Appointments: A Synthesis of Three Qualitative Studies
by Ludmila Marcinowicz & Teresa Pawlikowska & Jerzy Konstantynowicz & Slawomir Chlabicz - 319-327 Development and Validation of the AFSymp™: An Atrial Fibrillation-Specific Measure of Patient-Reported Symptoms
by Jennie Medin & Rob Arbuckle & Linda Abetz & Katarina Halling & Karoly Kulich & Nils Edvardsson & Karin Coyne - 329-337 Does Diabetes Have an Impact on Health-State Utility? A Study of Asians in Singapore
by P. Wang & E. Tai & J. Thumboo & Hubertus Vrijhoef & Nan Luo
June 2014, Volume 7, Issue 2
- 123-127 The Potential of Crowdsourcing to Improve Patient-Centered Care
by Michael Weiner - 129-140 Group Decision Making with the Analytic Hierarchy Process in Benefit-Risk Assessment: A Tutorial
by J. Hummel & John Bridges & Maarten IJzerman - 141-150 Sourcing Quality-of-Life Weights Obtained from Previous Studies: Theory and Reality in Korea
by SeungJin Bae & Eun Bae & Sang Lim - 151-170 Risk as an Attribute in Discrete Choice Experiments: A Systematic Review of the Literature
by Mark Harrison & Dan Rigby & Caroline Vass & Terry Flynn & Jordan Louviere & Katherine Payne - 171-176 Linguistic Validation into 20 Languages and Content Validity of the Rheumatoid Arthritis-Specific Work Productivity and Activity Impairment Questionnaire
by Jérémy Lambert & Brian Hansen & Benoit Arnould & Géraldine Grataloup & Isabelle Guillemin & Lise Højbjerre & Martin Strandberg-Larsen & Margaret Reilly - 177-185 Patient Perceptions of Generic Medicines: A Mixed-Methods Study
by Suzanne Dunne & Bill Shannon & Colum Dunne & Walter Cullen - 187-195 Using Photovoice to Explore Patient Perceptions of Patient-Centered Care in the Veterans Affairs Health Care System
by Salva Balbale & Megan Morris & Sherri LaVela - 197-205 Association Between Glycated Hemoglobin and Health Utility for Type 1 Diabetes
by R. McQueen & Samuel Ellis & David Maahs & Heather Anderson & Kavita Nair & Anne Libby & Jonathan Campbell - 207-217 An Environmental Scan of Advance Care Planning Decision Aids for Patients Undergoing Major Surgery: A Study Protocol
by Rebecca Aslakson & Anne Schuster & Judith Miller & Matthew Weiss & Angelo Volandes & John Bridges - 219-229 Outcome of Supportive Talks in a Hospital Setting: Insights from Cancer Patients and Their Relatives
by Loni Ledderer & Karen Cour & Helle Hansen
March 2014, Volume 7, Issue 1
- 1-3 Aligning Research and Practice: Implications of Patient-Centered Care for Placebo Effects
by Andrew Geers & Jason Rose & Jill Brown - 5-21 Segmenting Patients and Physicians Using Preferences from Discrete Choice Experiments
by Ken Deal - 23-35 An Introduction to Item Response Theory for Patient-Reported Outcome Measurement
by Tam Nguyen & Hae-Ra Han & Miyong Kim & Kitty Chan - 37-45 Hostile Sexist Male Patients and Female Doctors: A Challenging Encounter
by Christina Klöckner Cronauer & Marianne Schmid Mast - 47-54 Patient Perspectives of Dabigatran: Analysis of Online Discussion Forums
by Mary Vaughan Sarrazin & Peter Cram & Alexandur Mazur & Melissa Ward & Heather Reisinger - 55-61 Walking Speed and Health‐Related Quality of Life in Multiple Sclerosis
by Christine Kohn & William Baker & Matthew Sidovar & Craig Coleman - 63-71 Insulin Administration and the Impacts of Forgetting a Dose
by Meryl Brod & Betsy Pohlman & Jens Kongsø - 73-84 Quality of Life in Organ Transplant Recipients Participating in an Online Transplant Community
by Paul Wicks & Katherine Sulham & Ari Gnanasakthy - 85-96 Validity and Reliability of the Assessment of Quality of Life (AQoL)-8D Multi-Attribute Utility Instrument
by Jeff Richardson & Angelo Iezzi & Munir Khan & Aimee Maxwell