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Patient Decision Aid (PDA) for Patients with Rheumatoid Arthritis Reduces Decisional Conflict and Improves Readiness for Treatment Decision Making

Author

Listed:
  • José Luis Pablos

    (Hospital 12 de Octubre)

  • Juan Angel Jover

    (Hospital Clínico San Carlos)

  • José Andrés Roman-Ivorra

    (Hospital Universitari i Politècnic La Fe)

  • José Inciarte-Mundo

    (Lilly)

  • Tatiana Dilla

    (Lilly)

  • José Antonio Sacristan

    (Lilly)

  • Marta Comellas

    (Outcomes’10)

  • Luís Lizán

    (Outcomes’10
    Jaume I University)

Abstract

Objectives The aim of this study was to develop and assess the effectiveness of a patient decision aid (PDA) to support treatment decision making in Spanish patients with moderate-to-severe rheumatoid arthritis (RA) who fail to achieve the therapeutic goal with the current disease-modifying antirheumatic treatment strategy. Methods The PDA was developed in accordance with the International Patient Decision Aids Standards recommendations. A steering group led the project. Three literature reviews and two focus groups were performed to develop the PDA prototype. To check its comprehensibility, acceptability, and feasibility, alpha-testing was performed using the Decision Support Acceptability Scale (DSAS). Beta-testing was conducted to assess preliminary evidence of PDA efficacy using the Decisional Conflict Scale (DCS) before and after PDA use. Readiness was evaluated using the Preparation for Decision Making Scale (PDMS). Results The PDA included (1) a brief description of RA, (2) treatment information, and (3) a values clarification section. Alpha-testing revealed that most patients considered that the information was presented in a good or excellent way and it could help clarify their values and facilitate treatment decision making. Most rheumatologists agreed that the PDA was easy to understand, to use, and allowed them to reach a shared decision. Beta-testing showed that PDA significantly reduced overall patients’ decisional conflict [33.2 (DE: 21.4) vs 24.6 (23.5); p

Suggested Citation

  • José Luis Pablos & Juan Angel Jover & José Andrés Roman-Ivorra & José Inciarte-Mundo & Tatiana Dilla & José Antonio Sacristan & Marta Comellas & Luís Lizán, 2020. "Patient Decision Aid (PDA) for Patients with Rheumatoid Arthritis Reduces Decisional Conflict and Improves Readiness for Treatment Decision Making," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 13(1), pages 57-69, February.
    • Handle: RePEc:spr:patien:v:13:y:2020:i:1:d:10.1007_s40271-019-00381-y
    DOI: 10.1007/s40271-019-00381-y
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    Cited by:

    1. Melanie J. Cozad & Lisa C. Lindley & Kaitlyn Crosby & Noor Alshareef & Ann Blair Kennedy & Gulzar Merchant & Pam Evans & Ronnie D. Horner, 2023. "Patient Goals for Living with Rheumatoid Arthritis: A Qualitative Study," Clinical Nursing Research, , vol. 32(1), pages 40-48, January.

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