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Views on deceased organ donation in the Netherlands: A q-methodology study

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  • Daphne Truijens
  • Job van Exel

Abstract

In many countries, such as the US, Germany, France, and the Netherlands, governments are dealing with a great shortage of organ donors. Even though people generally show positive attitudes towards organ donation, they often do not actually register as organ donors themselves. This study’s objective was to explore prevailing viewpoints among the Dutch population on deceased organ donation and the relation between aspects of the viewpoints potentially influencing the decision to register as an organ donor. Although substantive research about attitudes on organ donation has been conducted, this is the first study investigating people’s viewpoints focusing on the relation between beliefs, tastes, preferences, motives, goals and other constituents underlying people’s viewpoints on organ donation, such as the role of the media and public policies. This Q-methodology study revealed four viewpoints: “not donating your organs is a waste”, “it does not go with my religion”, “my family should decide”; and “it’s a good deed, but I’m doubtful”. These viewpoints convey information on potential reasons for the gap between people’s favourable attitudes towards organ donation and the low number of actual registrations, and opportunities for policy makers to address certain target groups more adequately.

Suggested Citation

  • Daphne Truijens & Job van Exel, 2019. "Views on deceased organ donation in the Netherlands: A q-methodology study," PLOS ONE, Public Library of Science, vol. 14(5), pages 1-15, May.
  • Handle: RePEc:plo:pone00:0216479
    DOI: 10.1371/journal.pone.0216479
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    References listed on IDEAS

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    1. Ajzen, Icek, 1991. "The theory of planned behavior," Organizational Behavior and Human Decision Processes, Elsevier, vol. 50(2), pages 179-211, December.
    2. van Exel, Job & Baker, Rachel & Mason, Helen & Donaldson, Cam & Brouwer, Werner, 2015. "Public views on principles for health care priority setting: Findings of a European cross-country study using Q methodology," Social Science & Medicine, Elsevier, vol. 126(C), pages 128-137.
    3. van Exel, N.J.A. & de Graaf, G. & Brouwer, W.B.F., 2006. ""Everyone dies, so you might as well have fun!" Attitudes of Dutch youths about their health lifestyle," Social Science & Medicine, Elsevier, vol. 63(10), pages 2628-2639, November.
    4. Risdon, Andrea & Eccleston, Chris & Crombez, Geert & McCracken, Lance, 2003. "How can we learn to live with pain? A Q-methodological analysis of the diverse understandings of acceptance of chronic pain," Social Science & Medicine, Elsevier, vol. 56(2), pages 375-386, January.
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    Cited by:

    1. Scheefhals, Zoë T.M. & de Vries, Eline F. & Struijs, Jeroen N. & Numans, Mattijs E. & van Exel, Job, 2024. "Stakeholder perspectives on payment reform in maternity care in the Netherlands: A Q-methodology study," Social Science & Medicine, Elsevier, vol. 340(C).
    2. Willem Deijl & Werner Brouwer & Job van Exel, 2023. "What Constitutes Well-being? Five Views Among Adult People from the Netherlands on what is Important for a Good Life," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 18(6), pages 3141-3167, December.
    3. Hua-I Hsu & Chih-Chi Liu & Chun-Yu Kuo & Job van Exel & Hsueh-Chih Chen & Stephanie Fu Yang, 2025. "Perspectives on Well-being of Older Adults and Young People in Taiwan- A Q-Methodology Study," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 20(2), pages 483-521, April.
    4. Rotteveel, A.H. & Reckers-Droog, V.T. & Lambooij, M.S. & de Wit, G.A. & van Exel, N.J.A., 2021. "Societal views in the Netherlands on active disinvestment of publicly funded healthcare interventions," Social Science & Medicine, Elsevier, vol. 272(C).

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