IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v13y2016i5p489-d69802.html
   My bibliography  Save this article

Identifying Ethical Issues in Mental Health Research with Minors Adolescents: Results of a Delphi Study

Author

Listed:
  • Elisabeta Ioana Hiriscau

    (Department of Clinical Ethics, Psychiatric Hospital of the University Basel, University Hospital Basel, University of Basel, Wilhelm Klein-Str. 27, Basel CH-4012, Switzerland
    Department of Nursing, University of Medicine and Pharmacy “Iuliu Hatieganu” Cluj-Napoca, Str. Louis Pasteur nr 4, et 1, Cluj-Napoca 400349, Romania)

  • Nicola Stingelin-Giles

    (Department of Clinical Ethics, Psychiatric Hospital of the University Basel, University Hospital Basel, University of Basel, Wilhelm Klein-Str. 27, Basel CH-4012, Switzerland)

  • Danuta Wasserman

    (National Center for Suicide Research and Prevention of Mental lll-Health (NASP)/WHO Collaborating Center for Research, Methods Development and Training in Suicide Prevention, Karolinska Institute, Stockholm SE-171 77, Sweden)

  • Stella Reiter-Theil

    (Department of Clinical Ethics, Psychiatric Hospital of the University Basel, University Hospital Basel, University of Basel, Wilhelm Klein-Str. 27, Basel CH-4012, Switzerland)

Abstract

Research with minors, especially for preventive purposes, e.g., suicide prevention, investigating risk or self-destructive behaviors such as deviance, drug abuse, or suicidal behavior, is ethically sensitive. We present a Delphi study exploring the ethical implications of the needs formulated by researchers in an international pre-conference who would benefit from ethics support and guidance in conducting Mental Health Research with minors. The resulting List of Ethical Issues (LEI) was submitted to a 2-rounds Delphi process via the Internet, including 34 multidisciplinary experts. In the first round, the experts reviewed the LEI and completed a questionnaire. Results from this round were analyzed and grouped in nine categories comprising 40 items. In the second round, the experts had to agree/disagree with the needs expressed in the LEI leading to a final list of 25 ethical issues considered relevant for Mental Health Research with minors such as: confidentiality of the sensitive data, competence for consenting alone and risk of harm and stigma related to the methodology used in research. It was shown that studies like SEYLE (Saving and Empowering Young Lives in Europe) trigger among researchers wishes to obtain specific recommendations helping to comply with standards for good practice in conducting research with minors.

Suggested Citation

  • Elisabeta Ioana Hiriscau & Nicola Stingelin-Giles & Danuta Wasserman & Stella Reiter-Theil, 2016. "Identifying Ethical Issues in Mental Health Research with Minors Adolescents: Results of a Delphi Study," IJERPH, MDPI, vol. 13(5), pages 1-20, May.
    • Handle: RePEc:gam:jijerp:v:13:y:2016:i:5:p:489-:d:69802
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/13/5/489/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/13/5/489/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Fink, A. & Kosecoff, J. & Chassin, M. & Brook, R.H., 1984. "Consensus methods: Characteristics and guidelines for use," American Journal of Public Health, American Public Health Association, vol. 74(9), pages 979-983.
    2. Makkonen, Mari & Pätäri, Satu & Jantunen, Ari & Viljainen, Satu, 2012. "Competition in the European electricity markets – outcomes of a Delphi study," Energy Policy, Elsevier, vol. 44(C), pages 431-440.
    3. Alderson, Priscilla, 2007. "Competent children? Minors' consent to health care treatment and research," Social Science & Medicine, Elsevier, vol. 65(11), pages 2272-2283, December.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Karl Andriessen & Karolina Krysinska & Debra Rickwood & Jane Pirkis, 2022. "The Reactions of Adolescents, Parents and Clinicians to Participating in Qualitative Research Interviews Regarding Adolescents Bereaved by Suicide and Other Traumatic Death," IJERPH, MDPI, vol. 19(1), pages 1-13, January.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Hsueh, Sung-Lin, 2015. "Assessing the effectiveness of community-promoted environmental protection policy by using a Delphi-fuzzy method: A case study on solar power and plain afforestation in Taiwan," Renewable and Sustainable Energy Reviews, Elsevier, vol. 49(C), pages 1286-1295.
    2. Shannon Li & Anne Honey & Francesca Coniglio & Peter Schaecken, 2022. "Mental Health Peer Worker Perspectives on Resources Developed from Lived Experience Research Findings: A Delphi Study," IJERPH, MDPI, vol. 19(7), pages 1-15, March.
    3. Dana Hübelová & Martina Kuncová & Hana Vojáčková & Jitka Coufalová & Alice Kozumplíková & Francois Stefanus Lategan & Beatrice-Elena Chromková Manea, 2021. "Inequalities in Health: Methodological Approaches to Spatial Differentiation," IJERPH, MDPI, vol. 18(23), pages 1-21, November.
    4. Ravonne A. Green, 2014. "The Delphi Technique in Educational Research," SAGE Open, , vol. 4(2), pages 21582440145, April.
    5. Bhana, Deevia, 2009. ""AIDS is rape!" gender and sexuality in children's responses to HIV and AIDS," Social Science & Medicine, Elsevier, vol. 69(4), pages 596-603, August.
    6. Inge Schalkers & Cathleen S Parsons & Joske FG Bunders & Christine Dedding, 2016. "Health professionals' perspectives on children's and young people's participation in health care: a qualitative multihospital study," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(7-8), pages 1035-1044, April.
    7. Helen Ross & C. Emdad Haque & Fikret Berkes, 2024. "Transmission of knowledge and social learning for disaster risk reduction and building resilience: A Delphi study," Sustainable Development, John Wiley & Sons, Ltd., vol. 32(2), pages 1525-1537, April.
    8. Sharon Barak & Tzlil Rabinovitz & Achinoam Ben Akiva-Maliniak & Rony Schenker & Lian Meiry & Riki Tesler, 2022. "An Individually Tailored Program to Increase Healthy Lifestyle Behaviors among the Elderly," IJERPH, MDPI, vol. 19(17), pages 1-12, September.
    9. Janet Boddy, 2014. "Research across cultures, within countries: Hidden ethics tensions in research with children and families?," Progress in Development Studies, , vol. 14(1), pages 91-103, January.
    10. Justus N Agumba, 2015. "Validating and Identifying Health and Safety Performance Improvement Indicators: Experience of Using Delphi Technique," Journal of Economics and Behavioral Studies, AMH International, vol. 7(3), pages 14-22.
    11. Sambou, Césarine & Decroix, Charlotte & Martin-Fernandez, Judith & Cambon, Linda & Alla, François, 2025. "Uses of the viable validity concept: A systematic scoping review," Evaluation and Program Planning, Elsevier, vol. 108(C).
    12. Shani, Segev & Siebzehner, Miriam Ines & Luxenburg, Osnat & Shemer, Joshua, 2000. "Setting priorities for the adoption of health technologies on a national level -- the Israeli experience," Health Policy, Elsevier, vol. 54(3), pages 169-185, December.
    13. West, Allison & Duggan, Anne K. & Gruss, Kelsey & Minkovitz, Cynthia S., 2018. "Creating a measurement framework for service coordination in maternal and early childhood home visiting: An evidence-informed, expert process," Children and Youth Services Review, Elsevier, vol. 89(C), pages 289-297.
    14. Sarvari, Hadi & Baghbaderani, Alireza Babaie & Chan, Daniel W.M. & Beer, Michael, 2024. "Determining the significant contributing factors to the occurrence of human errors in the urban construction projects: A Delphi-SWARA study approach," Technological Forecasting and Social Change, Elsevier, vol. 205(C).
    15. Sundmacher, Leonie & Fischbach, Diana & Schuettig, Wiebke & Naumann, Christoph & Augustin, Uta & Faisst, Cristina, 2015. "Which hospitalisations are ambulatory care-sensitive, to what degree, and how could the rates be reduced? Results of a group consensus study in Germany," Health Policy, Elsevier, vol. 119(11), pages 1415-1423.
    16. Anna Stålberg & Anette Sandberg & Thomas Larsson & Imelda Coyne & Maja Söderbäck, 2018. "Curious, thoughtful and affirmative—Young children's meanings of participation in healthcare situations when using an interactive communication tool," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(1-2), pages 235-246, January.
    17. Bradbury-Jones, Caroline & Isham, Louise & Taylor, Julie, 2018. "The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review," Social Science & Medicine, Elsevier, vol. 215(C), pages 80-91.
    18. Gabel, Matthew J. & Shipan, Charles R., 2004. "A social choice approach to expert consensus panels," Journal of Health Economics, Elsevier, vol. 23(3), pages 543-564, May.
    19. Mitra Hannani & Marc Bascompta & Mojtaba Gerami Sabzevar & Hesam Dehghani & Ali Asghar Khajevandi, 2023. "Causal Analysis of Safety Risk Perception of Iranian Coal Mining Workers Using Fuzzy Delphi and DEMATEL," Sustainability, MDPI, vol. 15(19), pages 1-19, September.
    20. Ren, Jingzheng & Gao, Suzhao & Tan, Shiyu & Dong, Lichun & Scipioni, Antonio & Mazzi, Anna, 2015. "Role prioritization of hydrogen production technologies for promoting hydrogen economy in the current state of China," Renewable and Sustainable Energy Reviews, Elsevier, vol. 41(C), pages 1217-1229.

    More about this item

    Keywords

    ;
    ;
    ;
    ;
    ;
    ;
    ;
    ;

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:13:y:2016:i:5:p:489-:d:69802. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.