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Factors Contributing to the Default in Neuro-Rehabilitation Programmes for Children with Chronic Neuro-Disabilities in the Largest Tertiary Care Hospital for Children in Sri Lanka

Author

Listed:
  • Hashan Pathiraja

    (Faculty of Medicine, University of Kelaniya)

  • Nuwanthi Piyumika Kulathunga

    (Lady Ridgeway Hospital for Children, Colombo,)

  • Rasika Gunapala

    (Supreme Court, Colombo)

Abstract

Background: Neurorehabilitation is essential for optimising functional independence in children with chronic neurodisabilities. However, clinic default remains a significant barrier to achieving long-term health outcomes, particularly in resource-limited settings like Sri Lanka. Objective: This study aimed to identify the socio-demographic, clinical, and systemic factors contributing to default in neuro-rehabilitation programs at the Lady Ridgeway Hospital for Children (LRH), Colombo. Methodology: A descriptive cross-sectional study was conducted among 71 children with chronic neuro-disabilities who had defaulted from therapy services for over one year. Data were collected through interviewer-administered questionnaires covering socio-economic status, clinical condition, and perceived barriers to attendance. Results: Most children who defaulted had Cerebral Palsy (67.6%), out of which, 68% were mobility dependent. 56.6% of the children who defaulted were from rural areas of the country. The average distance to the clinic was 106 Km. Key reasons for default were multifactorial: 66.2% cited financial problems, 64.8% reported receiving inadequate information on the importance of therapy, and 60.6% turned to alternative or indigenous treatments. Systemic barriers included long waiting times (53.5%) and transport difficulties (47.9%). Interestingly, 84.5% of caregivers had never received a follow-up call after defaulting. 73% of participants highlighted the importance of awareness programmes regarding the disease condition for them. While 61% identified telehealth as an alternative, 59% highlighted the importance of local support groups. Conclusion: Default is driven by a lack of caregiver awareness and substantial socio-economic burdens. Improving retention requires decentralised care, enhanced caregiver counselling, and the integration of digital health solutions.

Suggested Citation

  • Hashan Pathiraja & Nuwanthi Piyumika Kulathunga & Rasika Gunapala, 2026. "Factors Contributing to the Default in Neuro-Rehabilitation Programmes for Children with Chronic Neuro-Disabilities in the Largest Tertiary Care Hospital for Children in Sri Lanka," International Journal of Research and Innovation in Social Science, International Journal of Research and Innovation in Social Science (IJRISS), vol. 10(2), pages 8411-8422, February.
    • Handle: RePEc:bcp:journl:v:10:y:2026:i:2:p:8411-8422
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    References listed on IDEAS

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