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Transparency in Decision Modelling: What, Why, Who and How?

Author

Listed:
  • Christopher James Sampson

    () (Office of Health Economics)

  • Renée Arnold

    (Arnold Consultancy & Technology, LLC)

  • Stirling Bryan

    (University of British Columbia)

  • Philip Clarke

    (University of Oxford)

  • Sean Ekins

    (Collaborations Pharmaceuticals Inc.)

  • Anthony Hatswell

    (Delta Hat)

  • Neil Hawkins

    (University of Glasgow)

  • Sue Langham

    (Maverex Limited)

  • Deborah Marshall

    (University of Calgary)

  • Mohsen Sadatsafavi

    (University of British Columbia)

  • Will Sullivan

    (BresMed Health Solutions)

  • Edward C. F. Wilson

    (University of East Anglia)

  • Tim Wrightson

    (Adis International Limited)

Abstract

Transparency in decision modelling is an evolving concept. Recently, discussion has moved from reporting standards to open-source implementation of decision analytic models. However, in the debate about the supposed advantages and disadvantages of greater transparency, there is a lack of definition. The purpose of this article is not to present a case for or against transparency, but rather to provide a more nuanced understanding of what transparency means in the context of decision modelling and how it could be addressed. To this end, we review and summarise the discourse to date, drawing on our collective experience. We outline a taxonomy of the different manifestations of transparency, including reporting standards, reference models, collaboration, model registration, peer review and open-source modelling. Further, we map out the role and incentives for the various stakeholders, including industry, research organisations, publishers and decision makers. We outline the anticipated advantages and disadvantages of greater transparency with respect to each manifestation, as well as the perceived barriers and facilitators to greater transparency. These are considered with respect to the different stakeholders and with reference to issues including intellectual property, legality, standards, quality assurance, code integrity, health technology assessment processes, incentives, funding, software, access and deployment options, data protection and stakeholder engagement. For each manifestation of transparency, we discuss the ‘what’, ‘why’, ‘who’ and ‘how’. Specifically, their meaning, why the community might (or might not) wish to embrace them, whose engagement as stakeholders is required and how relevant objectives might be realised. We identify current initiatives aimed to improve transparency to exemplify efforts in current practice and for the future.

Suggested Citation

  • Christopher James Sampson & Renée Arnold & Stirling Bryan & Philip Clarke & Sean Ekins & Anthony Hatswell & Neil Hawkins & Sue Langham & Deborah Marshall & Mohsen Sadatsafavi & Will Sullivan & Edward , 2019. "Transparency in Decision Modelling: What, Why, Who and How?," PharmacoEconomics, Springer, vol. 37(11), pages 1355-1369, November.
  • Handle: RePEc:spr:pharme:v:37:y:2019:i:11:d:10.1007_s40273-019-00819-z
    DOI: 10.1007/s40273-019-00819-z
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    References listed on IDEAS

    as
    1. Sabina Sanghera & Emma Frew & Tracy Roberts, 2015. "Adapting the CHEERS Statement for Reporting Cost-Benefit Analysis," PharmacoEconomics, Springer, vol. 33(5), pages 533-534, May.
    2. Garret Christensen & Edward Miguel, 2018. "Transparency, Reproducibility, and the Credibility of Economics Research," Journal of Economic Literature, American Economic Association, vol. 56(3), pages 920-980, September.
    3. Cole, A. & Towse, A., 2018. "Legal Barriers to the Better Use of Health Data to Deliver Pharmaceutical Innovation," Consulting Reports 002096, Office of Health Economics.
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    Blog mentions

    As found by EconAcademics.org, the blog aggregator for Economics research:
    1. Chris Sampson’s journal round-up for 9th March 2020
      by Chris Sampson in The Academic Health Economists' Blog on 2020-03-09 12:00:00

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    Cited by:

    1. Harvard, Stephanie & Werker, Gregory R. & Silva, Diego S., 2020. "Social, ethical, and other value judgments in health economics modelling," Social Science & Medicine, Elsevier, vol. 253(C).
    2. Josh J. Carlson & Surrey M. Walton & Anirban Basu & Richard H. Chapman & Jonathan D. Campbell & R. Brett McQueen & Steven D. Pearson & Daniel R. Touchette & David Veenstra & Melanie D. Whittington & D, 2019. "Achieving Appropriate Model Transparency: Challenges and Potential Solutions for Making Value-Based Decisions in the United States," PharmacoEconomics, Springer, vol. 37(11), pages 1321-1327, November.

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