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Policy Awareness, Financial Hardship, and Work Impact

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  • Laurie A. Drapela
  • Dana Lee Baker

Abstract

Individuals with disabilities often report difficulty interacting with health care professionals. Addressing this challenge requires greater understanding of factors that exacerbate the odds of negative interactions between health care providers and patients with disabilities. Drawing on the qualitative research describing the features of such incidents, we use logistic regression to explore two dimensions of this dynamic: negative experiences with health care providers (e.g., doctors, specialists) and negative experiences with health insurance carriers (e.g., for profit or non-profit health insurance organizations). Using a non-probability sample of American families who have a child with autism spectrum disorder (ASD), we find that negative experiences with health care providers are associated with the family’s income level, as well as changes in parental labor force participation. The odds of a negative interaction with the insurance carrier are intensified when the family experiences financial difficulties and when they have a negative experience with the health care provider. Finally, families who are aware of laws and policies regarding ASD also report increased odds of negative experiences with their insurance carrier but not their health care provider. Policy implications of our findings are discussed.

Suggested Citation

  • Laurie A. Drapela & Dana Lee Baker, 2014. "Policy Awareness, Financial Hardship, and Work Impact," SAGE Open, , vol. 4(3), pages 21582440145, September.
    • Handle: RePEc:sae:sagope:v:4:y:2014:i:3:p:2158244014553212
    DOI: 10.1177/2158244014553212
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    References listed on IDEAS

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    1. Russell J. Dalton, 2008. "Citizenship Norms and the Expansion of Political Participation," Political Studies, Political Studies Association, vol. 56(1), pages 76-98, March.
    2. Baker, J.P., 2008. "Mercury, vaccines, and autism: One controversy, three histories," American Journal of Public Health, American Public Health Association, vol. 98(2), pages 244-253.
    3. Leiter, Valerie, 2004. "Dilemmas in sharing care: maternal provision of professionally driven therapy for children with disabilities," Social Science & Medicine, Elsevier, vol. 58(4), pages 837-849, February.
    4. Valentine, Kylie, 2010. "A consideration of medicalisation: Choice, engagement and other responsibilities of parents of children with autism spectrum disorder," Social Science & Medicine, Elsevier, vol. 71(5), pages 950-957, September.
    5. Deanna Sharpe & Dana Baker, 2007. "Financial Issues Associated with Having a Child with Autism," Journal of Family and Economic Issues, Springer, vol. 28(2), pages 247-264, June.
    6. Gray, David E., 1993. "Negotiating autism: Relations between parents and treatment staff," Social Science & Medicine, Elsevier, vol. 36(8), pages 1037-1046, April.
    7. Russell J. Dalton, 2008. "Citizenship Norms and the Expansion of Political Participation," Political Studies, Political Studies Association, vol. 56, pages 76-98, March.
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