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The Discussions around Precision Genetic Engineering: Role of and Impact on Disabled People

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  • Gregor Wolbring

    (Department of Community Health Sciences, Stream of Community Rehabilitation and Disability Studies, University of Calgary, 3330 Hospital Drive NW, Calgary, AB T2N 4N1, Canada)

  • Lucy Diep

    (Department of Community Health Sciences, Stream of Community Rehabilitation and Disability Studies, University of Calgary, 3330 Hospital Drive NW, Calgary, AB T2N 4N1, Canada)

Abstract

Genetic researchers are advancing in their abilities to extract precise genetic information from biological and human entities bringing genetic research steps closer to accurately modifying genes of biological entities, including that of humans. In this analytical essay, we focus on the discussions about precision genetic intervention that have taken place since March 2015 as they pertain to disabled people. We focus on two areas; one being the role of disabled people in the recent gene editing discussions and the second being the utility of existing legal instruments. Within our first focus we address the following questions: (a) What is the visibility of disabled people in the gene-editing discussions that have taken place since March 2015? (b) What has been the impact of those discussions on disabled people? (c) Were social problems which disabled people face taken into account in those discussions; (d) How does the reality of engagement with disabled people in these discussions fit with science, technology and innovation governance discourses that ask for more stakeholder, bottom up and anticipatory involvement? Within our second focus we address the following questions: (a) What is the utility of the United Nations Convention on the Right of Persons with Disabilities (UNCRPD) ; and (b) What is the utility of existing legal instruments covering genetic interventions: for preventing negative social consequences of genetic engineering developments for disabled people. We argue that (a) the genetic engineering debates since March 2015 have portrayed disabled people dominantly through a medical lens; (b) that the governance of science, technology and innovation of genetic engineering including anticipatory governance and responsible innovation discourses has not yet engaged with the social impact of gene editing on disabled people; (c) that few scholars that focus on the social situation of disabled people are visible in the governance discussions of gene editing; and (d) that the utility of the UNCRPD and the investigated genetic-related legal instruments and international agreements to protect disabled people from negative consequences coming out of the gene editing discussions is unclear at the least.

Suggested Citation

  • Gregor Wolbring & Lucy Diep, 2016. "The Discussions around Precision Genetic Engineering: Role of and Impact on Disabled People," Laws, MDPI, vol. 5(3), pages 1-23, September.
    • Handle: RePEc:gam:jlawss:v:5:y:2016:i:3:p:37-:d:77853
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    References listed on IDEAS

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    1. Yeo, Rebecca & Moore, Karen, 2003. "Including Disabled People in Poverty Reduction Work: "Nothing About Us, Without Us"," World Development, Elsevier, vol. 31(3), pages 571-590, March.
    2. Gregor Wolbring, 2015. "Gene editing: Govern ability expectations," Nature, Nature, vol. 527(7579), pages 446-446, November.
    3. Gregor Wolbring, 2016. "Employment, Disabled People and Robots: What Is the Narrative in the Academic Literature and Canadian Newspapers?," Societies, MDPI, vol. 6(2), pages 1-16, April.
    4. Edward Lanphier & Fyodor Urnov & Sarah Ehlen Haecker & Michael Werner & Joanna Smolenski, 2015. "Don’t edit the human germ line," Nature, Nature, vol. 519(7544), pages 410-411, March.
    5. Gregor Wolbring & Rachel Mackay & Theresa Rybchinski & Jacqueline Noga, 2013. "Disabled People and the Post-2015 Development Goal Agenda through a Disability Studies Lens," Sustainability, MDPI, vol. 5(10), pages 1-31, September.
    6. Edward S. Dove & Vural Özdemir, 2015. "What Role for Law, Human Rights, and Bioethics in an Age of Big Data, Consortia Science, and Consortia Ethics? The Importance of Trustworthiness," Laws, MDPI, vol. 4(3), pages 1-26, August.
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    Cited by:

    1. Adam Conti, 2017. "Drawing the Line: Disability, Genetic Intervention and Bioethics," Laws, MDPI, vol. 6(3), pages 1-23, July.
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