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Drawing the Line: Disability, Genetic Intervention and Bioethics

Author

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  • Adam Conti

    (Graduate student, Melbourne Law School, University of Melbourne, 185 Pelham St., Carlton, VIC 3053, Australia)

Abstract

Meteoric scientific advances in genetic technologies with the potential for human gene editing intervention pose tremendous legal, medical, social, ethical and moral issues for society as a whole. Persons with disabilities in particular have a significant stake in determining how these technologies are governed at the international, domestic and individual levels in the future. However, the law cannot easily keep up with the rate of scientific progression. This paper aims to posit a methodology of reform, based on a core value of human dignity, as the optimal course of action to ensure that the interests of persons with disabilities, other possibly marginalised groups, and the scientific community, are balanced fairly. The paper critically analyses the current law and varying bioethical perspectives to ultimately conclude that a clear principled approach toward open discussion and consensus is of paramount importance to have any chance of devising an effective regulatory regime over human gene editing technology.

Suggested Citation

  • Adam Conti, 2017. "Drawing the Line: Disability, Genetic Intervention and Bioethics," Laws, MDPI, vol. 6(3), pages 1-23, July.
    • Handle: RePEc:gam:jlawss:v:6:y:2017:i:3:p:9-:d:104946
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    References listed on IDEAS

    as
    1. Debra J. H. Mathews & Sarah Chan & Peter J. Donovan & Thomas Douglas & Christopher Gyngell & John Harris & Alan Regenberg & Robin Lovell-Badge, 2015. "CRISPR: A path through the thicket," Nature, Nature, vol. 527(7577), pages 159-161, November.
    2. Gregor Wolbring, 2015. "Gene editing: Govern ability expectations," Nature, Nature, vol. 527(7579), pages 446-446, November.
    3. Heidi Ledford, 2015. "CRISPR, the disruptor," Nature, Nature, vol. 522(7554), pages 20-24, June.
    4. Black, Julia, 2002. "Critical reflections on regulation," LSE Research Online Documents on Economics 35985, London School of Economics and Political Science, LSE Library.
    5. Tom Shakespeare, 2015. "Gene editing: Heed disability views," Nature, Nature, vol. 527(7579), pages 446-446, November.
    6. Gregor Wolbring & Lucy Diep, 2016. "The Discussions around Precision Genetic Engineering: Role of and Impact on Disabled People," Laws, MDPI, vol. 5(3), pages 1-23, September.
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    Cited by:

    1. Esther Salmerón-Manzano, 2021. "Legaltech and Lawtech: Global Perspectives, Challenges, and Opportunities," Laws, MDPI, vol. 10(2), pages 1-9, April.

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