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The Changing Tides of Caregiving During the COVID-19 Pandemic: How Decreasing and Increasing Care Provision Relates to Caregiver Well-Being
[Defining distinct caregiver subpopulations by intensity of end-of-life care provided]

Author

Listed:
  • Amanda Leggett
  • Hyun Jung Koo
  • Bona Park
  • HwaJung Choi

Abstract

ObjectivesPandemic-specific changes to the caregiving context (e.g., attempts to reduce exposure, physical distancing requirements) may lead to changes in care provision. This study uses the 2020 National Health and Aging Trends Study Family Members and Friends coronavirus disease 2019 (COVID-19) questionnaire to explore changes in the amount of care provision during COVID-19 and associations with stress process outcomes of caregiving.MethodsThe sample includes 1,020 caregivers who provided care for an older adult during COVID-19. Caregivers indicated whether their hours of care decreased, stayed stable, or increased during the pandemic. We describe reasons for change in care and compare changes in care by demographic and care-related characteristics using chi-squares and analyses of variance, and relate changes in care with stress process outcomes (e.g., overload, COVID-related anxiety) using multivariable linear regression.ResultsCaregivers were 60.7 years old on average, 69.3% were female, and 18.6% were non-White. While most caregivers reported no change, 30.5% reported an increase and 11.5% reported a decrease in the amount of pandemic care provided. Relative to maintaining stable care provision, an increase was associated broadly with worse mental health and care-related stress, whereas a decrease was associated with greater emotional difficulty related to care and lower levels of positive affectivity.DiscussionThose who changed their care provision during the pandemic predominantly did so to protect their care recipient from COVID-19 exposure. Increasing one’s care provision was strongly associated with worse mental health and well-being. Supports for caregivers who take on additional care tasks during the pandemic could have great public health benefit.

Suggested Citation

  • Amanda Leggett & Hyun Jung Koo & Bona Park & HwaJung Choi, 2022. "The Changing Tides of Caregiving During the COVID-19 Pandemic: How Decreasing and Increasing Care Provision Relates to Caregiver Well-Being [Defining distinct caregiver subpopulations by intensity of end-of-life care provided]," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 77(Supplemen), pages 86-97.
    • Handle: RePEc:oup:geronb:v:77:y:2022:i:supplement_1:p:s86-s97.
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    References listed on IDEAS

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    1. Hirst, Michael, 2005. "Carer distress: A prospective, population-based study," Social Science & Medicine, Elsevier, vol. 61(3), pages 697-708, August.
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    1. Marco Socci & Mirko Di Rosa & Sabrina Quattrini & Giovanni Lamura & Elizabeth Hanson & Lennart Magnusson & Stecy Yghemonos & Giulia Cavrini & Andrea Teti & Sara Santini, 2024. "The Impact of the Pandemic on Health and Quality of Life of Informal Caregivers of Older People: Results from a Cross-National European Survey in an Age-Related Perspective," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 19(3), pages 1385-1410, June.

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