IDEAS home Printed from https://ideas.repec.org/a/spr/ariqol/v19y2024i3d10.1007_s11482-024-10296-y.html
   My bibliography  Save this article

The Impact of the Pandemic on Health and Quality of Life of Informal Caregivers of Older People: Results from a Cross-National European Survey in an Age-Related Perspective

Author

Listed:
  • Marco Socci

    (IRCCS INRCA-National Institute of Health and Science on Ageing)

  • Mirko Di Rosa

    (IRCCS INRCA-National Institute of Health and Science on Ageing)

  • Sabrina Quattrini

    (IRCCS INRCA-National Institute of Health and Science on Ageing)

  • Giovanni Lamura

    (IRCCS INRCA-National Institute of Health and Science on Ageing)

  • Elizabeth Hanson

    (Linnaeus University
    Nationellt kompetenscentrum anhöriga”-Nka)

  • Lennart Magnusson

    (Linnaeus University
    Nationellt kompetenscentrum anhöriga”-Nka)

  • Stecy Yghemonos

    (Eurocarers)

  • Giulia Cavrini

    (Free University of Bozen-Bolzano)

  • Andrea Teti

    (University of Vechta)

  • Sara Santini

    (IRCCS INRCA-National Institute of Health and Science on Ageing)

Abstract

During the COVID-19 outbreak, the care services interruption/delay resulted in increased amount of care for informal caregivers of older people with long-term care needs. This study aimed at understanding how the Pandemic affected physical health, mental well-being and quality of life of older people’ informal caregivers of different ages and to what extent starting caregiving affected such life realms among new caregivers. An online survey was carried out in Winter 2020–2021 targeted to informal caregivers living in 16 European countries. A sub-sample of 848 adult (aged 18–64) was compared to another of 542 older (over 65) informal caregivers. People who started caring during the Pandemic were also identified and the impact of the Pandemic on the three life realms of this group were analysed separately by gender and age. The differences between the two groups of adult and older caregivers were estimated using logistic regression, adjusted for potential confounders. Analyses were repeated after propensity score matching. During the second Pandemic wave hitting Europe in Winter 2020-21, regardless of age, being female entailed a worsening in physical health, mental well-being and quality of life, in line with previous research Also new caregivers were mostly females and their physical health and quality of life were worsened by caregiving. Gender-specific work-life balance policies and measures are needed to support female working caregivers. More attention should be paid to older female caregivers through scheduled physical and mental health screenings and home visits. Future studies on the topic in a gender and intergenerational perspective are encouraged.

Suggested Citation

  • Marco Socci & Mirko Di Rosa & Sabrina Quattrini & Giovanni Lamura & Elizabeth Hanson & Lennart Magnusson & Stecy Yghemonos & Giulia Cavrini & Andrea Teti & Sara Santini, 2024. "The Impact of the Pandemic on Health and Quality of Life of Informal Caregivers of Older People: Results from a Cross-National European Survey in an Age-Related Perspective," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 19(3), pages 1385-1410, June.
  • Handle: RePEc:spr:ariqol:v:19:y:2024:i:3:d:10.1007_s11482-024-10296-y
    DOI: 10.1007/s11482-024-10296-y
    as

    Download full text from publisher

    File URL: http://link.springer.com/10.1007/s11482-024-10296-y
    File Function: Abstract
    Download Restriction: Access to the full text of the articles in this series is restricted.

    File URL: https://libkey.io/10.1007/s11482-024-10296-y?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Aviad Tur-Sinai & Andrea Teti & Alexander Rommel & Valentina Hlebec & Giovanni Lamura, 2020. "How Many Older Informal Caregivers Are There in Europe? Comparison of Estimates of Their Prevalence from Three European Surveys," IJERPH, MDPI, vol. 17(24), pages 1-17, December.
    2. Cara Bailey & Ping Guo & John MacArtney & Anne Finucane & Susan Swan & Richard Meade & Ellie Wagstaff, 2022. "The Experiences of Informal Carers during the COVID-19 Pandemic: A Qualitative Systematic Review," IJERPH, MDPI, vol. 19(20), pages 1-18, October.
    3. Aviad Tur-Sinai & Netta Bentur & Giovanni Lamura, 2022. "Perceived deterioration in health status among older adults in Europe and Israel following the first wave of the COVID-19 pandemic," European Journal of Ageing, Springer, vol. 19(4), pages 1243-1250, December.
    4. Dan Lupu & Ramona Tiganasu, 2022. "COVID-19 and the efficiency of health systems in Europe," Health Economics Review, Springer, vol. 12(1), pages 1-15, December.
    5. Juliana Onwumere, 2021. "Informal carers in severe mental health conditions: Issues raised by the United Kingdom SARS-CoV-2 (COVID-19) Pandemic," International Journal of Social Psychiatry, , vol. 67(2), pages 107-109, March.
    6. Aviad Tur-Sinai & Netta Bentur & Paolo Fabbietti & Giovanni Lamura, 2021. "Impact of the Outbreak of the COVID-19 Pandemic on Formal and Informal Care of Community-Dwelling Older Adults: Cross-National Clustering of Empirical Evidence from 23 Countries," Sustainability, MDPI, vol. 13(13), pages 1-13, June.
    7. Ricardo Rodrigues & Cassandra Simmons & Andrea E. Schmidt & Nadia Steiber, 2021. "Care in times of COVID-19: the impact of the pandemic on informal caregiving in Austria," European Journal of Ageing, Springer, vol. 18(2), pages 195-205, June.
    8. László Árpád Kostyál & Zsuzsa Széman & Virág Erzsébet Almási & Paolo Fabbietti & Sabrina Quattrini & Marco Socci & Giovanni Lamura & Cristina Gagliardi, 2021. "Impact of the COVID-19 Pandemic on Family Carers of Older People Living with Dementia in Italy and Hungary," Sustainability, MDPI, vol. 13(13), pages 1-19, June.
    9. Augusto Cerqua & Roberta Di Stefano, 2022. "When did coronavirus arrive in Europe?," Statistical Methods & Applications, Springer;Società Italiana di Statistica, vol. 31(1), pages 181-195, March.
    10. Richard J. Petts & Daniel L. Carlson & Joanna R. Pepin, 2021. "A gendered pandemic: Childcare, homeschooling, and parents' employment during COVID‐19," Gender, Work and Organization, Wiley Blackwell, vol. 28(S2), pages 515-534, July.
    11. Sara Santini & Marco Socci & Paolo Fabbietti & Giovanni Lamura & Andrea Teti, 2022. "Factors Worsening and Mitigating the Consequences of the COVID-19 Outbreak on the Overall Health of Informal Caregivers of Older People with Long-Term Care Needs Living in Germany and in Italy," IJERPH, MDPI, vol. 19(3), pages 1-21, February.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Sara Santini & Marco Socci & Paolo Fabbietti & Giovanni Lamura & Andrea Teti, 2022. "Factors Worsening and Mitigating the Consequences of the COVID-19 Outbreak on the Overall Health of Informal Caregivers of Older People with Long-Term Care Needs Living in Germany and in Italy," IJERPH, MDPI, vol. 19(3), pages 1-21, February.
    2. Kieren J. Egan & William Hodgson & Gennaro Imperatore & Mark D. Dunlop & Roma Maguire & Alison Kirk, 2022. "Supporting Physical Activity for Informal Caregivers during and beyond COVID-19: Exploring the Feasibility, Usability and Acceptability of a Digital Health Smartphone Application, ‘CareFit’," IJERPH, MDPI, vol. 19(19), pages 1-18, September.
    3. Di Novi, Cinzia & Martini, Gianmaria & Sturaro, Caterina, 2023. "The impact of informal and formal care disruption on older adults’ psychological distress during the COVID-19 pandemic in UK," Economics & Human Biology, Elsevier, vol. 49(C).
    4. Costi, Chiara & Hollingsworth, Bruce & O'Sullivan, Vincent & Zucchelli, Eugenio, 2023. "Does caring for others affect our mental health? Evidence from the COVID-19 pandemic," Social Science & Medicine, Elsevier, vol. 321(C).
    5. Simona Hvalič-Touzery & Marina Trkman & Vesna Dolničar, 2022. "Caregiving Situation as a Predictor of Subjective Caregiver Burden: Informal Caregivers of Older Adults during the COVID-19 Pandemic," IJERPH, MDPI, vol. 19(21), pages 1-21, November.
    6. Marco Socci & Andrea Principi & Mirko Di Rosa & Sabrina Quattrini & Davide Lucantoni, 2023. "Motivations, Relationships, Health and Quality of Life of Older Volunteers in Times of COVID-19 Pandemic," Sustainability, MDPI, vol. 15(13), pages 1-19, July.
    7. Tiberiu Constantin Ionescu & Bogdana Ioana Fetecau & Stefan Zaharia & Elma-Maria Mînecan & Catalina Tudose, 2023. "Sleepless Pandemic: A Cross-Sectional Analysis of Insomnia Symptoms among Professionally Active Romanians during the COVID-19 Pandemic," Sustainability, MDPI, vol. 15(2), pages 1-16, January.
    8. Şeremet, Gülizar Gülcan & Konca, Murat, 2024. "Technical efficiency and its determinants in healthcare systems of underdeveloped countries," Evaluation and Program Planning, Elsevier, vol. 107(C).
    9. Thorsten Kneip & Axel Börsch-Supan & Karen Andersen-Ranberg, 2022. "Social, health and economic impact of the COVID-19 pandemic from a European perspective," European Journal of Ageing, Springer, vol. 19(4), pages 789-792, December.
    10. Nurgun Kul Parlak & Ayse Nur Ciftci, 2022. "Pandeminin Kayit Disi Istihdami Dislama Etkisi: Turkiye’de Formel-Enformel Emek Piyasalarindaki Ayrisma," Journal of Social Policy Conferences, Istanbul University, Faculty of Economics, vol. 0(82), pages 93-135, June.
    11. Kozhaya, Mireille, 2022. "The double burden: The impact of school closures on labor force participation of mothers," Ruhr Economic Papers 956, RWI - Leibniz-Institut für Wirtschaftsforschung, Ruhr-University Bochum, TU Dortmund University, University of Duisburg-Essen.
    12. Claudia Senik & Andrew E. Clark & Conchita D’Ambrosio & Anthony Lepinteur & Carsten Schröder, 2024. "Teleworking and life satisfaction during COVID-19: the importance of family structure," Journal of Population Economics, Springer;European Society for Population Economics, vol. 37(1), pages 1-24, March.
    13. G. Alleva & G. Arbia & P. D. Falorsi & V. Nardelli & A. Zuliani, 2023. "Optimal two-stage spatial sampling design for estimating critical parameters of SARS-CoV-2 epidemic: Efficiency versus feasibility," Statistical Methods & Applications, Springer;Società Italiana di Statistica, vol. 32(3), pages 983-999, September.
    14. Pourmahmoud, Jafar & Bagheri, Narges, 2023. "Uncertain Malmquist productivity index: An application to evaluate healthcare systems during COVID-19 pandemic," Socio-Economic Planning Sciences, Elsevier, vol. 87(PA).
    15. Mahmoud M. H. Alayis & Nermine Atteya, 2023. "Executive Decisions in Emergencies and Innovation in Supply Chain: A Suggested Model," International Journal of Business and Management, Canadian Center of Science and Education, vol. 18(5), pages 220-220, October.
    16. Stefan Jestl & Maryna Tverdostup, 2024. "The Path Through: Early COVID-19 Job Loss and Labour Market Trajectories in Austria," wiiw Working Papers 246, The Vienna Institute for International Economic Studies, wiiw.
    17. Kwon, Sarah Jiyoon, 2023. "Grandparents and Parental Labor Supply during COVID-19 Pandemic," OSF Preprints jxyvn, Center for Open Science.
    18. Hongsoo Kim, 2023. "Older People’s Health and Long-Term Care During COVID-19," World Bank Publications - Reports 40702, The World Bank Group.
    19. Giulia Landi & Kenneth I. Pakenham & Silvana Grandi & Eliana Tossani, 2022. "Young Adult Carers during the Pandemic: The Effects of Parental Illness and Other Ill Family Members on COVID-19-Related and General Mental Health Outcomes," IJERPH, MDPI, vol. 19(6), pages 1-18, March.
    20. Cristina Gagliardi & Giovanni Lamura, 2021. "Special Issue on “Advances in Socio-Economic Research on Ageing”," IJERPH, MDPI, vol. 18(12), pages 1-6, June.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:spr:ariqol:v:19:y:2024:i:3:d:10.1007_s11482-024-10296-y. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.springer.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.