IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v16y2019i20p3983-d278005.html
   My bibliography  Save this article

Towards a People’s Social Epidemiology: Envisioning a More Inclusive and Equitable Future for Social Epi Research and Practice in the 21st Century

Author

Listed:
  • Ryan Petteway

    (OHSU-PSU School of Public Health, Portland State University, Portland, OR 97201, USA)

  • Mahasin Mujahid

    (School of Public Health, University of California, Berkeley, CA 94720, USA)

  • Amani Allen

    (School of Public Health, University of California, Berkeley, CA 94720, USA)

  • Rachel Morello-Frosch

    (School of Public Health, University of California, Berkeley, CA 94720, USA)

Abstract

Social epidemiology has made critical contributions to understanding population health. However, translation of social epidemiology science into action remains a challenge, raising concerns about the impacts of the field beyond academia. With so much focus on issues related to social position, discrimination, racism, power, and privilege, there has been surprisingly little deliberation about the extent and value of social inclusion and equity within the field itself. Indeed, the challenge of translation/action might be more readily met through re-envisioning the role of the people within the research/practice enterprise—reimagining what “social” could, or even should, mean for the future of the field. A potential path forward rests at the nexus of social epidemiology, community-based participatory research (CBPR), and information and communication technology (ICT). Here, we draw from social epidemiology, CBPR, and ICT literatures to introduce A People’s Social Epi—a multi-tiered framework for guiding social epidemiology in becoming more inclusive, equitable, and actionable for 21st century practice. In presenting this framework, we suggest the value of taking participatory, collaborative approaches anchored in CBPR and ICT principles and technological affordances—especially within the context of place-based and environmental research. We believe that such approaches present opportunities to create a social epidemiology that is of, with, and by the people—not simply about them. In this spirit, we suggest 10 ICT tools to “socialize” social epidemiology and outline 10 ways to move towards A People’s Social Epi in practice.

Suggested Citation

  • Ryan Petteway & Mahasin Mujahid & Amani Allen & Rachel Morello-Frosch, 2019. "Towards a People’s Social Epidemiology: Envisioning a More Inclusive and Equitable Future for Social Epi Research and Practice in the 21st Century," IJERPH, MDPI, vol. 16(20), pages 1-21, October.
  • Handle: RePEc:gam:jijerp:v:16:y:2019:i:20:p:3983-:d:278005
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/16/20/3983/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/16/20/3983/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Krieger, Nancy, 1994. "Epidemiology and the web of causation: Has anyone seen the spider?," Social Science & Medicine, Elsevier, vol. 39(7), pages 887-903, October.
    2. Schwab, M. & Syme, S.L., 1997. "On paradigms, community participation, and the future of public health," American Journal of Public Health, American Public Health Association, vol. 87(12), pages 2049-2051.
    3. Atwood, K. & Colditz, G.A. & Kawachi, I., 1997. "From public health science to prevention policy: placing science in its social and political contexts," American Journal of Public Health, American Public Health Association, vol. 87(10), pages 1603-1606.
    4. Israel, B.A. & Coombe, C.M. & Cheezum, R.R. & Schulz, A.J. & McGranaghan, R.J. & Lichtenstein, R. & Reyes, A.G. & Clement, J. & Burris, A., 2010. "Community-based participatory research: A capacity-building approach for policy advocacy aimed at eliminating health disparities," American Journal of Public Health, American Public Health Association, vol. 100(11), pages 2094-2102.
    5. Marco Liverani & Benjamin Hawkins & Justin O Parkhurst, 2013. "Political and Institutional Influences on the Use of Evidence in Public Health Policy. A Systematic Review," PLOS ONE, Public Library of Science, vol. 8(10), pages 1-9, October.
    6. Cashman, S.B. & Adeky, S. & Allen III, A.J. & Corburn, J. & Israel, B.A. & Montaño, J. & Rafelito, A. & Rhodes, S.D. & Swanston, S. & Wallerstein, N. & Eng, E., 2008. "The power and the promise: Working with communities to analyze data, interpret findings, and get to outcomes," American Journal of Public Health, American Public Health Association, vol. 98(8), pages 1407-1417.
    7. Gonzalez, P.A. & Minkler, M. & Garcia, A.P. & Gordon, M. & Garzón, C. & Palaniappan, M. & Prakash, S. & Beveridge, B., 2011. "Community-based participatory research and policy advocacy to reduce diesel exposure in West Oakland, California," American Journal of Public Health, American Public Health Association, vol. 101(SUPPL. 1), pages 166-175.
    8. Arcaya, Mariana C. & Tucker-Seeley, Reginald D. & Kim, Rockli & Schnake-Mahl, Alina & So, Marvin & Subramanian, S.V., 2016. "Research on neighborhood effects on health in the United States: A systematic review of study characteristics," Social Science & Medicine, Elsevier, vol. 168(C), pages 16-29.
    9. Bambra, Clare & Smith, Katherine E. & Pearce, Jamie, 2019. "Scaling up: The politics of health and place," Social Science & Medicine, Elsevier, vol. 232(C), pages 36-42.
    10. Minkler, M., 2010. "Linking science and policy through community-based participatory research to study and address health disparities," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 81-87.
    11. Katherine E. Smith, 2014. "The politics of ideas: The complex interplay of health inequalities research and policy," Science and Public Policy, Oxford University Press, vol. 41(5), pages 561-574.
    12. Deborah Lupton, 2014. "Beyond Techno-Utopia: Critical Approaches to Digital Health Technologies," Societies, MDPI, vol. 4(4), pages 1-6, December.
    13. Kawachi, Ichiro & Subramanian, S.V., 2018. "Social epidemiology for the 21st century," Social Science & Medicine, Elsevier, vol. 196(C), pages 240-245.
    14. Wallerstein, N. & Duran, B., 2010. "Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 40-46.
    15. Wallerstein, N.B. & Yen, I.H. & Syme, S.L., 2011. "Integration of social epidemiology and community-engaged interventions to improve health equity," American Journal of Public Health, American Public Health Association, vol. 101(5), pages 822-830.
    16. Krieger, N., 1999. "Questioning epidemiology: Objectivity, advocacy, and socially responsible science," American Journal of Public Health, American Public Health Association, vol. 89(8), pages 1151-1153.
    17. Petteway, Ryan J. & Mujahid, Mahasin & Allen, Amani & Morello-Frosch, Rachel, 2019. "The body language of place: A new method for mapping intergenerational “geographies of embodiment” in place-health research," Social Science & Medicine, Elsevier, vol. 223(C), pages 51-63.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Ward, Melanie & Schulz, Amy J. & Israel, Barbara A. & Rice, Kristina & Martenies, Sheena E. & Markarian, Evan, 2018. "A conceptual framework for evaluating health equity promotion within community-based participatory research partnerships," Evaluation and Program Planning, Elsevier, vol. 70(C), pages 25-34.
    2. Dana H. Z. Williamson & Sheryl Good & Daphne Wilson & Na’Taki Osborne Jelks & Dayna A. Johnson & Kelli A. Komro & Michelle C. Kegler, 2023. "Using the Collaborative Problem-Solving Model: Findings from an Evaluation of U.S. EPA’s Environmental Justice Academy," Sustainability, MDPI, vol. 15(20), pages 1-24, October.
    3. Alvarez, Camila H. & Evans, Clare Rosenfeld, 2021. "Intersectional environmental justice and population health inequalities: A novel approach," Social Science & Medicine, Elsevier, vol. 269(C).
    4. Lisa M. Vaughn & MaryAnn Lohmueller, 2014. "Calling All Stakeholders," Evaluation Review, , vol. 38(4), pages 336-355, August.
    5. Julia Díez & Pedro Gullón & María Sandín Vázquez & Belén Álvarez & María Del Prado Martín & María Urtasun & Maite Gamarra & Joel Gittelsohn & Manuel Franco, 2018. "A Community-Driven Approach to Generate Urban Policy Recommendations for Obesity Prevention," IJERPH, MDPI, vol. 15(4), pages 1-15, March.
    6. Pinto, R.M. & Rahman, R. & Williams, A., 2014. "Policy advocacy and leadership training for formerly incarcerated women: An empowerment evaluation of ReConnect, a program of the Women in Prison Project, Correctional Association of New York," Evaluation and Program Planning, Elsevier, vol. 47(C), pages 71-81.
    7. Jennifer Boyd & Clare Bambra & Robin C. Purshouse & John Holmes, 2021. "Beyond Behaviour: How Health Inequality Theory Can Enhance Our Understanding of the ‘Alcohol-Harm Paradox’," IJERPH, MDPI, vol. 18(11), pages 1-12, June.
    8. Kathryn Oliver & Warren Pearce, 2017. "Three lessons from evidence-based medicine and policy: increase transparency, balance inputs and understand power," Palgrave Communications, Palgrave Macmillan, vol. 3(1), pages 1-7, December.
    9. Dana H. Z. Williamson, 2022. "Using the Community Engagement Framework to Understand and Assess EJ-Related Research Efforts," Sustainability, MDPI, vol. 14(5), pages 1-26, February.
    10. Prasanthi Puvanachandra & Anthony Mugeere & Charles Ssemugabo & Olive Kobusingye & Margaret Peden, 2024. "Voices from the Ground: Community Perspectives on Preventing Unintentional Child Injuries in Low-Income Settings," IJERPH, MDPI, vol. 21(3), pages 1-15, February.
    11. Jennifer S. Carrera & Kent Key & Sarah Bailey & Joseph A. Hamm & Courtney A. Cuthbertson & E. Yvonne Lewis & Susan J. Woolford & E. Hill DeLoney & Ella Greene-Moton & Kaneesha Wallace & DeWaun E. Robi, 2019. "Community Science as a Pathway for Resilience in Response to a Public Health Crisis in Flint, Michigan," Social Sciences, MDPI, vol. 8(3), pages 1-25, March.
    12. Lisa M. Vaughn & Farrah Jacquez & Daniel Marschner & Daniel McLinden, 2016. "See what we say: using concept mapping to visualize Latino immigrant’s strategies for health interventions," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 61(7), pages 837-845, September.
    13. Ryan J. Petteway & Lourdes A. González, 2022. "Engaging Public Health Critical Race Praxis in Local Social Determinants of Health Research: The Youth Health Equity and Action Research Training Program in Portland, OR—yHEART PDX," IJERPH, MDPI, vol. 19(13), pages 1-16, July.
    14. Lotte Prevo & Stef Kremers & Maria Jansen, 2020. "Small Successes Make Big Wins: A Retrospective Case Study towards Community Engagement of Low-SES Families," IJERPH, MDPI, vol. 17(2), pages 1-13, January.
    15. Daniel Nettle, 2010. "Why Are There Social Gradients in Preventative Health Behavior? A Perspective from Behavioral Ecology," PLOS ONE, Public Library of Science, vol. 5(10), pages 1-6, October.
    16. Sékou Samadoulougou & Laurence Letarte & Alexandre Lebel, 2022. "Association between Neighbourhood Deprivation Trajectories and Self-Perceived Health: Analysis of a Linked Survey and Health Administrative Data," IJERPH, MDPI, vol. 20(1), pages 1-14, December.
    17. Held, Suzanne & Hallett, John & Schure, Mark & Knows His Gun McCormick, Alma & Allen, Sarah & Milne-Price, Shauna & Trottier, Coleen & Bull Shows, Brianna & Other Medicine, Lucille & Inouye, Jillian, 2019. "Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program," Social Science & Medicine, Elsevier, vol. 242(C).
    18. Mayer, Yael & Ilan, Rotem & Slone, Michelle & Lurie, Ido, 2020. "Relations between traumatic life events and mental health of Eritrean asylum-seeking mothers and their children's mental health," Children and Youth Services Review, Elsevier, vol. 116(C).
    19. Arusha, Anowara Rayhan & Biswas, Raaj Kishore, 2020. "Prevalence of stress, anxiety and depression due to examination in Bangladeshi youths: A pilot study," Children and Youth Services Review, Elsevier, vol. 116(C).
    20. Katrina G. Claw & Casey R. Dorr & Erica L. Woodahl, 2024. "Implementing community-engaged pharmacogenomics in Indigenous communities," Nature Communications, Nature, vol. 15(1), pages 1-5, December.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:16:y:2019:i:20:p:3983-:d:278005. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.