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Patient and general public preferences for health states: A call to reconsider current guidelines

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  • Versteegh, M.M.
  • Brouwer, W.B.F.

Abstract

In economic evaluations of health care interventions, benefits are often expressed in terms of Quality-Adjusted Life-Years (QALYs). The QALY comprises length and quality of life into one measure which allows cross-disease comparability. The quality adjustment of the QALY is based on preferences for health states. An important normative choice is the question whose preferences for states of health we wish to capture. The answer to this question is directly related to the normative question regarding the appropriate maximand in health care decisions. Currently, preferences are commonly derived from the general public, rather than from actual patients. This choice, which can have large consequences on final outcomes of economic evaluations, has always been a topic of debate. This paper clarifies and furthers the discussion regarding the appropriate source of preferences for health state valuations, acknowledges the plurality of different perspectives, and argues that health economic guidelines could require analysis of benefit in terms of QALYs based on both patient and general public preferences.

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  • Versteegh, M.M. & Brouwer, W.B.F., 2016. "Patient and general public preferences for health states: A call to reconsider current guidelines," Social Science & Medicine, Elsevier, vol. 165(C), pages 66-74.
    • Handle: RePEc:eee:socmed:v:165:y:2016:i:c:p:66-74
    DOI: 10.1016/j.socscimed.2016.07.043
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    1. Thesis Thursday: David Mott
      by Chris Sampson in The Academic Health Economists' Blog on 2019-04-18 06:00:33

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    8. Ogorevc, Marko & Murovec, Nika & Fernandez, Natacha Bolanos & Rupel, Valentina Prevolnik, 2019. "Questioning the differences between general public vs. patient based preferences towards EQ-5D-5L defined hypothetical health states," Health Policy, Elsevier, vol. 123(2), pages 166-172.
    9. John Brazier & Donna Rowen & Milad Karimi & Tessa Peasgood & Aki Tsuchiya & Julie Ratcliffe, 2018. "Experience-based utility and own health state valuation for a health state classification system: why and how to do it," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(6), pages 881-891, July.
    10. Barry Dewitt & Baruch Fischhoff & Alexander L. Davis & Stephen B. Broomell & Mark S. Roberts & Janel Hanmer, 2019. "Exclusion Criteria as Measurements I: Identifying Invalid Responses," Medical Decision Making, , vol. 39(6), pages 693-703, August.
    11. Petra Baji & Anikó Bíró, 2018. "Adaptation or recovery after health shocks? Evidence using subjective and objective health measures," Health Economics, John Wiley & Sons, Ltd., vol. 27(5), pages 850-864, May.
    12. Engel, Lidia & Bryan, Stirling & Noonan, Vanessa K. & Whitehurst, David G.T., 2018. "Using path analysis to investigate the relationships between standardized instruments that measure health-related quality of life, capability wellbeing and subjective wellbeing: An application in the ," Social Science & Medicine, Elsevier, vol. 213(C), pages 154-164.
    13. Koonal Shah;Mike Herdman;Yvonne Summers;Nancy Devlin;Patricia Cubi-Molla, 2018. "Quality of Life in Long-term Cancer Survivors: Implications for Future Health Technology Assessments in Oncology," Consulting Report 002023, Office of Health Economics.
    14. Fanni Rencz & Peep F. M. Stalmeier & Márta Péntek & Valentin Brodszky & Gábor Ruzsa & Lóránt Gönczi & Károly Palatka & László Herszényi & Eszter Schäfer & János Banai & Mariann Rutka & László Gulácsi , 2019. "Patient and general population values for luminal and perianal fistulising Crohn’s disease health states," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(1), pages 91-100, June.
    15. Nils Gutacker & Thomas Patton & Koonal Shah & David Parkin, 2020. "Using EQ-5D Data to Measure Hospital Performance: Are General Population Values Distorting Patients’ Choices?," Medical Decision Making, , vol. 40(4), pages 511-521, May.
    16. Barry Dewitt & George W. Torrance, 2020. "Incorporating Mortality in Health Utility Measures," Medical Decision Making, , vol. 40(7), pages 862-872, October.
    17. Moustapha Touré & Christian R. C. Kouakou & Thomas G. Poder, 2021. "Dimensions Used in Instruments for QALY Calculation: A Systematic Review," IJERPH, MDPI, vol. 18(9), pages 1-22, April.
    18. de Hond, Anne & Bakx, Pieter & Versteegh, Matthijs, 2019. "Can time heal all wounds? An empirical assessment of adaptation to functional limitations in an older population," Social Science & Medicine, Elsevier, vol. 222(C), pages 180-187.
    19. Mina Bahrampour & Joshua Byrnes & Richard Norman & Paul A. Scuffham & Martin Downes, 2020. "Discrete choice experiments to generate utility values for multi-attribute utility instruments: a systematic review of methods," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 21(7), pages 983-992, September.

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