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Preferences of the French Population Regarding Access to Genetic Information: A Discrete Choice Experiment
[Préférences de la population française pour l’accès à l’information génétique : une étude de choix discrets]

Author

Listed:
  • Christine Peyron

    (LEDi - Laboratoire d'Economie de Dijon [Dijon] - UB - Université de Bourgogne - UBFC - Université Bourgogne Franche-Comté [COMUE])

  • Aurore Pélissier

    (FERDI - Fondation pour les Etudes et Recherches sur le Développement International)

  • Nicolas Krucien

Abstract

Cette étude analyse les préférences de la population française concernant l'information génétique potentiellement accessible avec la médecine génomique. Il s'agit plus précisément de savoir si la population française (i) est favorable ou non à connaitre tous les résultats possibles quant aux prédispositions génétiques ; (ii) a des préférences quant à la personne ou la modalité qui déciderait de la liste des résultats accessibles ; (iii) est favorable ou non à un accès des chercheurs aux données génétiques des patients. Cette étude mobilise la méthode des choix discrets, avec une enquête en ligne, conduite en France auprès d'un échantillon représentatif de 2 501 personnes. L'exploitation économétrique des données collectées utilise un modèle logit mixte qui permet d'établir la plus ou moins grande variabilité des préférences au sein de la population française. Les résultats montrent une volonté d'autonomie pour choisir les informations communiquées, le souhait d'accéder aux résultats génétiques les plus exhaustifs possibles et la valorisation d'une contribution à la recherche à travers la mise à disposition de ses données génétiques.

Suggested Citation

  • Christine Peyron & Aurore Pélissier & Nicolas Krucien, 2021. "Preferences of the French Population Regarding Access to Genetic Information: A Discrete Choice Experiment [Préférences de la population française pour l’accès à l’information génétique : une étude," Post-Print hal-04586265, HAL.
    • Handle: RePEc:hal:journl:hal-04586265
    DOI: 10.24187/ecostat.2021.524d.2044
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    References listed on IDEAS

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    1. Bliemer, Michiel C.J. & Rose, John M., 2013. "Confidence intervals of willingness-to-pay for random coefficient logit models," Transportation Research Part B: Methodological, Elsevier, vol. 58(C), pages 199-214.
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    More about this item

    Keywords

    genomic medicine; Access to information; stated preferences; Discrete choice experiment DCE; médecine génomique; accès à l’information; préférences; méthode des choix discrets;
    All these keywords.

    JEL classification:

    • C25 - Mathematical and Quantitative Methods - - Single Equation Models; Single Variables - - - Discrete Regression and Qualitative Choice Models; Discrete Regressors; Proportions; Probabilities
    • I1 - Health, Education, and Welfare - - Health
    • O33 - Economic Development, Innovation, Technological Change, and Growth - - Innovation; Research and Development; Technological Change; Intellectual Property Rights - - - Technological Change: Choices and Consequences; Diffusion Processes

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