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Invisible or Mainstream? Disability in Surveys and Censuses in Low- and Middle-Income Countries

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  • Sophie Mitra

    (Fordham University)

  • Wei Chen

    (Fordham University)

  • Justine Hervé

    (Fordham University)

  • Sophia Pirozzi

    (Fordham University)

  • Jaclyn Yap

    (Fordham University)

Abstract

This paper examines to what extent household surveys and censuses in low- and middle-income countries include disability questions and the types of questions under use. We found that only 31% of 734 datasets between 2009 and 2018 from 133 low- and middle-income countries have at least one disability-related question. Of the surveys reviewed, 15% of the datasets have functional difficulty questions that meet international standards, i.e. Washington Group short set or other functional difficulty questions. Meanwhile, the most asked disability question “Do you have a disability?” is problematic as it does not produce meaningful and internationally comparable data. We recommend the adoption of functional difficulty questions for all surveys and censuses to track the progress of the implementation of the 2030 Agenda for Sustainable Development as well as the Convention on the Rights of Persons with Disabilities.

Suggested Citation

  • Sophie Mitra & Wei Chen & Justine Hervé & Sophia Pirozzi & Jaclyn Yap, 2022. "Invisible or Mainstream? Disability in Surveys and Censuses in Low- and Middle-Income Countries," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 163(1), pages 219-249, August.
    • Handle: RePEc:spr:soinre:v:163:y:2022:i:1:d:10.1007_s11205-022-02879-9
    DOI: 10.1007/s11205-022-02879-9
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    References listed on IDEAS

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    1. Jean-François Trani & Ganesh Muneshwar Babulal & Parul Bakhshi, 2015. "Development and Validation of the 34-Item Disability Screening Questionnaire (DSQ-34) for Use in Low and Middle Income Countries Epidemiological and Development Surveys," PLOS ONE, Public Library of Science, vol. 10(12), pages 1-14, December.
    2. Jean-Francois Trani & Parul Bakhshi & Sarah Myers Tlapek & Dominique Lopez & Fiona Gall, 2015. "Disability and Poverty in Morocco and Tunisia: A Multidimensional Approach," Journal of Human Development and Capabilities, Taylor & Francis Journals, vol. 16(4), pages 518-548, November.
    3. Islay Mactaggart & Lena Morgon Banks & Hannah Kuper & G V S Murthy & Jayanthi Sagar & Joseph Oye & Sarah Polack, 2018. "Livelihood opportunities amongst adults with and without disabilities in Cameroon and India: A case control study," PLOS ONE, Public Library of Science, vol. 13(4), pages 1-17, April.
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    Cited by:

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