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Providing Informal Care in Terminal Illness

Author

Listed:
  • Jane Hall
  • Patricia Kenny
  • Ishrat Hossain
  • Deborah J. Street
  • Stephanie A. Knox

Abstract

Background : The trend for terminally ill patients to receive much of their end-of-life care at home necessitates the design of services to facilitate this. Care at home also requires that informal care be provided by family members and friends. This study investigated informal carers’ preferences for support services to aid the development of end-of-life health care services. Methods : This cross-sectional study used 2 discrete choice experiments to ascertain the preferences of carers supporting patients with different levels of care need, determined by the assistance needed with personal care and labeled High Care (HC) and Low Care (LC). The sample included 168 informal carers of people receiving palliative care at home from 2 palliative care services in Sydney, Australia. Data were collected in face-to-face interviews; carers chose between 2 hypothetical plans of support services and their current services. Data were analyzed with generalized multinomial logit models that were used to calculate the impact of each attribute on the probability of a carer choosing a service plan. Results : Preferred support included nursing services; the probability of choosing a plan increased significantly if it included nurse home visits and phone advice ( P

Suggested Citation

  • Jane Hall & Patricia Kenny & Ishrat Hossain & Deborah J. Street & Stephanie A. Knox, 2014. "Providing Informal Care in Terminal Illness," Medical Decision Making, , vol. 34(6), pages 731-745, August.
    • Handle: RePEc:sae:medema:v:34:y:2014:i:6:p:731-745
    DOI: 10.1177/0272989X13500719
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    References listed on IDEAS

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    Cited by:

    1. Maruyama, Shiko, 2015. "The effect of coresidence on parental health in Japan," Journal of the Japanese and International Economies, Elsevier, vol. 35(C), pages 1-22.
    2. Souraya Sidani & Dana R. Epstein & Mary Fox & Joyal Miranda, 2018. "Psychometric Properties of the Treatment Perception and Preferences Measure," Clinical Nursing Research, , vol. 27(6), pages 743-761, July.
    3. Barbara A Jack & Mary R O'Brien & Joyce Scrutton & Catherine R Baldry & Karen E Groves, 2015. "Supporting family carers providing end‐of‐life home care: a qualitative study on the impact of a hospice at home service," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(1-2), pages 131-140, January.

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