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Caring for Family Caregivers of Geriatric Patients: Results of a Participatory Health Research Project on Actual State and Needs of Hospital-Based Care Professionals

Author

Listed:
  • Theresia Krieger

    (Department of Social Medicine, Faculty of Health Medicine and Life Sciences, Maastricht University, PO Box 616, 6200 MD Maastricht, The Netherlands)

  • Regina Specht

    (Helios Klinikum, An der Gontardslust 7, 57319 Bad Berleburg, Germany)

  • Babette Errens

    (Rhein-Maas Klinikum, Mauerfeldchen 25, 52146 Würselen, Germany)

  • Ulrike Hagen

    (Rhein-Maas Klinikum, Mauerfeldchen 25, 52146 Würselen, Germany)

  • Elisabeth Dorant

    (Department of Social Medicine, Faculty of Health Medicine and Life Sciences, Maastricht University, PO Box 616, 6200 MD Maastricht, The Netherlands)

Abstract

Because of societal changes, family caregivers are becoming vital in long-term care provision for geriatric patients after discharge from hospital. Hospital-based geriatric care teams need tools to prepare and support family caregivers for their future caregiving role in the home environment. To explore the actual state and needs for implementing a suitable family caregiver support concept in a large geriatric hospital in Germany, a Participatory Health Research methodology was chosen. An academic investigator, assisted by a critical friend, facilitated all research steps. Geriatric care professionals joined as co-researchers and performed qualitative data collection using semi-structured interviews and focus group discussions. The entire co-research team took part in the thematic analyses. The existing family caregiver support was perceived as uncoordinated and incomplete, and a lack of knowledge about support programmes in the community was apparent. The needs regarding a comprehensive family caregiver support concept that acts on both individual caregiver as well as on system level, but also connects the two levels, were formulated. High grades of participation of hospital-based co-researchers could be achieved. A critical reflection on the research strategy revealed that the participatory methodology, although time-consuming, was perceived as a useful strategy within the hierarchically organized hospital.

Suggested Citation

  • Theresia Krieger & Regina Specht & Babette Errens & Ulrike Hagen & Elisabeth Dorant, 2020. "Caring for Family Caregivers of Geriatric Patients: Results of a Participatory Health Research Project on Actual State and Needs of Hospital-Based Care Professionals," IJERPH, MDPI, vol. 17(16), pages 1-17, August.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:16:p:5901-:d:398971
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    References listed on IDEAS

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    1. Schulz, Amy J. & Israel, Barbara A. & Lantz, Paula, 2003. "Instrument for evaluating dimensions of group dynamics within community-based participatory research partnerships," Evaluation and Program Planning, Elsevier, vol. 26(3), pages 249-262, August.
    2. Martin Pinquart & Silvia Sörensen, 2007. "Correlates of Physical Health of Informal Caregivers: A Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 62(2), pages 126-137.
    3. Elisabeth Dorant & Theresia Krieger, 2017. "Contextual Exploration of a New Family Caregiver Support Concept for Geriatric Settings Using a Participatory Health Research Strategy," IJERPH, MDPI, vol. 14(12), pages 1-16, November.
    4. Cornwall, Andrea & Jewkes, Rachel, 1995. "What is participatory research?," Social Science & Medicine, Elsevier, vol. 41(12), pages 1667-1676, December.
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