IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v73y2011i1p111-120.html
   My bibliography  Save this article

Risk and reproductive decisions: British Pakistani couples' responses to genetic counselling

Author

Listed:
  • Shaw, Alison

Abstract

How far does ethnicity/culture/religion mediate couples' responses to genetic risk? This paper examines the responses of 51 British Pakistani couples referred to a genetics clinic in southern England to counselling about recurrence risks for genetic problems in children. It is based on fieldwork conducted between 2000 and 2004 that combined participant observation of genetics consultations with interviews in respondents' homes. Interviews were conducted with 62 adults in connection with these 51 cases, of which 32 were followed through two or more clinical consultations and 12 through more than one pregnancy. Risk responses were categorized as: taking the risk; postponing; exploring risk management or dismissing the risk as irrelevant to current circumstances. Responses were cross-referenced for associations with the severity of the condition, number of affected and unaffected children, availability of a prenatal test, age, gender, and migration history. I found that most couples were initially risk-takers who already had an unaffected child or children. Couples caring for living children with severe conditions were more likely to postpone. However, the risk responses of 15 couples changed over time, most towards and some away from risk management, reflecting changes in couples' appreciation of the severity of the condition and their subsequent reproductive experiences. The study highlights the diversity and dynamism of responses within one ethnic group and challenges stereotypes about cultural and religious responses to genetic risk.

Suggested Citation

  • Shaw, Alison, 2011. "Risk and reproductive decisions: British Pakistani couples' responses to genetic counselling," Social Science & Medicine, Elsevier, vol. 73(1), pages 111-120, July.
  • Handle: RePEc:eee:socmed:v:73:y:2011:i:1:p:111-120
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953611002486
    Download Restriction: Full text for ScienceDirect subscribers only

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. ., 1999. "The assessment of country risk," Chapters,in: Handbook of Banking Regulation and Supervision in the United Kingdom, chapter 22 Edward Elgar Publishing.
    2. anonymous, 1999. "Models for valuing default-risky securities," Financial Update, Federal Reserve Bank of Atlanta, issue Jan, pages 1-3.
    3. Ted To, 1999. "Risk and evolution," Economic Theory, Springer;Society for the Advancement of Economic Theory (SAET), vol. 13(2), pages 329-343.
    4. repec:aph:ajpbhl:1999:89:11:1658-1666_1 is not listed on IDEAS
    5. Press, Nancy & Browner, C. H., 1997. "Why women say yes to prenatal diagnosis," Social Science & Medicine, Elsevier, vol. 45(7), pages 979-989, October.
    6. Greil, Arthur & McQuillan, Julia & Benjamins, Maureen & Johnson, David R. & Johnson, Katherine M. & Heinz, Chelsea R., 2010. "Specifying the effects of religion on medical helpseeking: The case of infertility," Social Science & Medicine, Elsevier, vol. 71(4), pages 734-742, August.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. doctorants Ined, 2015. "Actes de la Journée Doctorale de l’Ined - 2015," Working Papers 219, Institut National d'Études Démographiques (INED).
    2. Frumkin, Ayala & Raz, Aviad E. & Plesser-Duvdevani, Morasha & Lieberman, Sari, 2011. ""The Most Important Test You’ll Ever Take"?: Attitudes toward confidential carrier matching and open individual testing among modern-religious Jews in Israel," Social Science & Medicine, Elsevier, vol. 73(12), pages 1741-1747.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:73:y:2011:i:1:p:111-120. See general information about how to correct material in RePEc.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: (Dana Niculescu). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service hosted by the Research Division of the Federal Reserve Bank of St. Louis . RePEc uses bibliographic data supplied by the respective publishers.