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Functioning of People with Lipoedema According to All Domains of the International Classification of Functioning, Disability and Health: A Scoping Review

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  • Lise Maren Kloosterman

    (Research Group Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands
    FAITH Research, 9714 CA Groningen, The Netherlands
    Center of Expertise for Lymphovascular Medicine, Nij Smellinghe Hospital, Compagnonsplein 1, 9202 NN Drachten, The Netherlands
    Experimental Anatomy Research Department, Vrije Universiteit Brussel, 1090 Brussels, Belgium)

  • Ad Hendrickx

    (Research Group Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands
    FAITH Research, 9714 CA Groningen, The Netherlands
    Center of Expertise for Lymphovascular Medicine, Nij Smellinghe Hospital, Compagnonsplein 1, 9202 NN Drachten, The Netherlands
    University of Groningen, University Medical Center Groningen, Department of Health Psychology, 9700 RB Groningen, The Netherlands)

  • Aldo Scafoglieri

    (Experimental Anatomy Research Department, Vrije Universiteit Brussel, 1090 Brussels, Belgium)

  • Harriët Jager-Wittenaar

    (Research Group Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands
    FAITH Research, 9714 CA Groningen, The Netherlands
    Experimental Anatomy Research Department, Vrije Universiteit Brussel, 1090 Brussels, Belgium
    University of Groningen, University Medical Center Groningen, Department of Oral and Maxillofacial Surgery, 9700 RB Groningen, The Netherlands)

  • Rienk Dekker

    (University of Groningen, University Medical Center Groningen, Department of Rehabilitation Medicine, 9700 RB Groningen, The Netherlands)

Abstract

Lipoedema is a painful non-pitting diffuse “fatty” swelling, usually confined to the legs, that occurs mainly in women. This scoping review aimed to provide an overview of the available research on the functioning of people with lipoedema, according to the International Classification of Functioning, Disability and Health (ICF) framework. Relevant publications and gray literature were retrieved until October 2022. The results sections of each publication were organized using a thematic framework approach. All included studies reported at least one outcome fitting within the domains of body functions and body structures, with most studies focusing on the categories of “sensation of pain”, “immunological system functions”, and “weight maintenance functions”. The ICF domains of activities and participation and environmental factors were mentioned in a small number of the included studies (17 and 13%, respectively), while the domain of personal factors was studied in half of the included studies. In conclusion, the emphasis of lipoedema research is on its description from a disorder-oriented point of view in the form of body functions and body structures, with a lack of information about the other domains of functioning.

Suggested Citation

  • Lise Maren Kloosterman & Ad Hendrickx & Aldo Scafoglieri & Harriët Jager-Wittenaar & Rienk Dekker, 2023. "Functioning of People with Lipoedema According to All Domains of the International Classification of Functioning, Disability and Health: A Scoping Review," IJERPH, MDPI, vol. 20(3), pages 1-16, January.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:3:p:1989-:d:1043360
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    References listed on IDEAS

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    1. Monika Czerwińska & Jacek Teodorczyk & Rita Hansdorfer-Korzon, 2022. "A Scoping Review of Available Tools in Measurement of the Effectiveness of Conservative Treatment in Lipoedema," IJERPH, MDPI, vol. 19(12), pages 1-12, June.
    2. Puhl, R.M. & Heuer, C.A., 2010. "Obesity stigma: Important considerations for public health," American Journal of Public Health, American Public Health Association, vol. 100(6), pages 1019-1028.
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