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Supporting the Community to Embrace Individuals with Dementia and to Be More Inclusive: Findings of a Conceptual Framework Development Study

Author

Listed:
  • Valentina Bressan

    (Department of Medicine, University of Udine, Viale Ungheria 20, 33100 Udine, Italy)

  • Allette Snijder

    (Healthy Ageing Network Northern Netherlands, Peizerweg 140H, 9727 AP Groningen, The Netherlands)

  • Henriette Hansen

    (South Denmark European Office, Av. Palmerston 18, 1000 Bruxelles, Belgium)

  • Kim Koldby

    (Department for Further Education, University College Lillebaelt, Niels Bohrs Allé 1, 5230 Odense, Denmark)

  • Knud Damgaard Andersen

    (Odense Kommune, Department for the Elderly and Persons with Disabilities (ÆHF), Flakhaven 2, 5000 Odense, Denmark)

  • Natalia Allegretti

    (Connected Health Alliance CIC, 13A Ballyhoy Avenue, D05 K068 Dublin, Ireland)

  • Federica Porcu

    (Connected Health Alliance CIC, 13A Ballyhoy Avenue, D05 K068 Dublin, Ireland)

  • Sara Marsillas

    (Matia Gerontological Institute, Pinu Bidea, 35, 20018 Donostia-San Sebastián, Spain)

  • Alvaro García

    (Matia Gerontological Institute, Pinu Bidea, 35, 20018 Donostia-San Sebastián, Spain)

  • Alvisa Palese

    (Department of Medicine, University of Udine, Viale Ungheria 20, 33100 Udine, Italy)

Abstract

The number of community-dwelling people with dementia (PwD) is rising, and the role of their relatives is crucial in addressing and mitigating the implications of dementia on health care systems and on society. We developed a new conceptual framework to promote the collaboration of the community in supporting relatives who are caring for a PwD as well as a range of stakeholders in embracing dementia. A qualitatively driven, multi-method study divided into three phases was performed from 2019 to 2021. A qualitative descriptive study, a mixed-method systematic review and three consensus workshops were conducted, and their results were triangulated. The final version of the Community Collaboration Concept Framework is composed of three main domains based upon seven components: (1) embracing dementia; (2) creating empowerment and a sense of community; (3) collaborating through cocreation and design thinking. The new framework is based on the literature, the synthesis of empirical data and the consensus of a panel of international experts, supporting the global goal of improving community inclusiveness and collaboration. Further studies are needed to confirm its validity, how it should be implemented in practice in various settings and to propose improvements when designing projects based upon it.

Suggested Citation

  • Valentina Bressan & Allette Snijder & Henriette Hansen & Kim Koldby & Knud Damgaard Andersen & Natalia Allegretti & Federica Porcu & Sara Marsillas & Alvaro García & Alvisa Palese, 2022. "Supporting the Community to Embrace Individuals with Dementia and to Be More Inclusive: Findings of a Conceptual Framework Development Study," IJERPH, MDPI, vol. 19(16), pages 1-14, August.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:16:p:10335-:d:892533
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    References listed on IDEAS

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    1. Bressan, Valentina & Hansen, Henriette & Koldby, Kim & Andersen, Knud Damgaard & Snijder, Allette & Tageo, Valentina & Allegretti, Natalia & Porcu, Federica & Marsillas, Sara & García, Alvaro & Palese, 2021. "Needs, issues, and expectations on dementia care at home across Europe to inform policy development: Findings from a transnational research study," Health Policy, Elsevier, vol. 125(8), pages 1013-1022.
    2. Bram de Boer & Belkis Bozdemir & Jack Jansen & Monique Hermans & Jan P. H. Hamers & Hilde Verbeek, 2020. "The Homestead: Developing a Conceptual Framework through Co-Creation for Innovating Long-Term Dementia Care Environments," IJERPH, MDPI, vol. 18(1), pages 1-17, December.
    3. Luisi, Daniela & Hämel, Kerstin, 2021. "Community participation and empowerment in primary health care in Emilia-Romagna: A document analysis study," Health Policy, Elsevier, vol. 125(2), pages 177-184.
    4. W. H. Voorberg & V. J. J. M. Bekkers & L. G. Tummers, 2015. "A Systematic Review of Co-Creation and Co-Production: Embarking on the social innovation journey," Public Management Review, Taylor & Francis Journals, vol. 17(9), pages 1333-1357, October.
    5. Kay Shannon & Kasia Bail & Stephen Neville, 2019. "Dementia‐friendly community initiatives: An integrative review," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(11-12), pages 2035-2045, June.
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    1. Berit Ziebuhr & Michele Zanasi & Yolanda Bueno Aguado & Raquel Losada Durán & Tom Dening & Isabelle Tournier & Kristina Niedderer & Ana Diaz & Diana Druschke & Rosa Almeida & Vjera Holthoff-Detto, 2023. "Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment," IJERPH, MDPI, vol. 20(12), pages 1-12, June.

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