What do we know about the experience of age related macular degeneration? A systematic review and meta-synthesis of qualitative research
Age Related Macular Degeneration (AMD) is the leading cause of registerable blindness with a high medical and societal cost burden. Much of the research examining experiences of living with AMD has been conducted independently with small sample sizes and has failed to impact on practice. Meta-synthesis of qualitative research can improve the understanding of the experience of living with AMD by drawing together findings of qualitative studies. This article presents a systematic review and meta-synthesis of qualitative studies investigating the experience of AMD (literature searched up to April 2012; published studies identified range from 1996 to 2009). The review highlights themes relating to: functional limitations, adaptation and independence; feelings about the future with vision impairment; interaction with the health service; social engagement; disclosure; and the emotional impacts of living with AMD. Attention to the experience of living with AMD can help us to better understand the needs of patients. This meta-synthesis aimed to bring together the findings of qualitative research studies and highlights important areas for consideration when caring for patients with AMD. Our findings suggest that a holistic approach to service provision and support for AMD is needed which takes into account individuals' needs and experiences when coping with and adjusting to living with AMD. This support should aim to reduce stigma, increase social engagement, and develop the psychological resources of patients with AMD.
If you experience problems downloading a file, check if you have the proper application to view it first. In case of further problems read the IDEAS help page. Note that these files are not on the IDEAS site. Please be patient as the files may be large.
As the access to this document is restricted, you may want to look for a different version under "Related research" (further below) or search for a different version of it.
Volume (Year): 75 (2012)
Issue (Month): 6 ()
|Contact details of provider:|| Web page: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description|
|Order Information:|| Postal: http://www.elsevier.com/wps/find/supportfaq.cws_home/regional|
References listed on IDEAS
Please report citation or reference errors to , or , if you are the registered author of the cited work, log in to your RePEc Author Service profile, click on "citations" and make appropriate adjustments.:
- Penninx, Brenda W. J. H. & Van Tilburg, Theo & Deeg, Dorly J. H. & Kriegsman, Didi M. W. & Boeke, A. Joan P. & Van Eijk, Jacques T. M., 1997. "Direct and buffer effects of social support and personal coping resources in individuals with arthritis," Social Science & Medicine, Elsevier, vol. 44(3), pages 393-402, February.
- Campbell, Rona & Pound, Pandora & Pope, Catherine & Britten, Nicky & Pill, Roisin & Morgan, Myfanwy & Donovan, Jenny, 2003. "Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care," Social Science & Medicine, Elsevier, vol. 56(4), pages 671-684, February.
- Kempen, Gertrudis I. J. M. & van Heuvelen, Marieke J. G. & van Sonderen, Eric & van den Brink, Rob H. S. & Kooijman, Aart C. & Ormel, Johan, 1999. "The relationship of functional limitations to disability and the moderating effects of psychological attributes in community-dwelling older persons," Social Science & Medicine, Elsevier, vol. 48(9), pages 1161-1172, May.
- Lawton, Julia & Peel, Elizabeth & Parry, Odette & Douglas, Margaret, 2008. "Shifting accountability: A longitudinal qualitative study of diabetes causation accounts," Social Science & Medicine, Elsevier, vol. 67(1), pages 47-56, July.
- Murray, Joanna & Banerjee, Sube & Byng, Richard & Tylee, Andre & Bhugra, Dinesh & Macdonald, Alastair, 2006. "Primary care professionals' perceptions of depression in older people: a qualitative study," Social Science & Medicine, Elsevier, vol. 63(5), pages 1363-1373, September.
- J. Bonastre & C. Le Pen & P. Anderson & A. Ganz & P. Berto & G. Berdeaux, 2002. "The epidemiology, economics and quality of life burden of age-related macular degeneration in France, Germany, Italy and the United Kingdom," The European Journal of Health Economics, Springer, vol. 3(2), pages 94-102, June.
When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:75:y:2012:i:6:p:976-985. See general information about how to correct material in RePEc.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: (Zhang, Lei)
If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.
If references are entirely missing, you can add them using this form.
If the full references list an item that is present in RePEc, but the system did not link to it, you can help with this form.
If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your profile, as there may be some citations waiting for confirmation.
Please note that corrections may take a couple of weeks to filter through the various RePEc services.