IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v246y2020ics0277953619307026.html
   My bibliography  Save this article

A new tool for creating personal and social EQ-5D-5L value sets, including valuing ‘dead’

Author

Listed:
  • Sullivan, Trudy
  • Hansen, Paul
  • Ombler, Franz
  • Derrett, Sarah
  • Devlin, Nancy

Abstract

The EuroQol Group's health descriptive systems, the EQ-5D-3L and its successor introduced in 2009, the EQ-5D-5L, are widely used worldwide for valuing health-related quality of life for cost-utility analysis and patient-reported health outcome measures. A new online tool for creating personal and social EQ-5D-5L value sets was recently developed and trialled in New Zealand (NZ). The tool, which includes extensive checks of the quality of participants' data, implements the PAPRIKA method – a novel type of adaptive discrete choice experiment in the present context – and a binary search algorithm to identify any health states worse than dead. After development and testing, the tool was distributed in an online survey in February and March 2018 to a representative sample of NZ adults (N = 5112), whose personal value sets were created. The tool's extensive data quality checks resulted in a ‘high-quality’ sub-sample of 2468 participants whose personal value sets were, in effect, averaged to create a social value set for NZ. These results overall as well as feedback from participants indicates that the new valuation tool is feasible and acceptable to participants, enabling valuation data to be relatively easily and cheaply collected. The tool could also be used in other countries, tested against other methods for creating EQ-5D-5L value sets, applied in personalised medicine and adapted to create value sets for other health descriptive systems.

Suggested Citation

  • Sullivan, Trudy & Hansen, Paul & Ombler, Franz & Derrett, Sarah & Devlin, Nancy, 2020. "A new tool for creating personal and social EQ-5D-5L value sets, including valuing ‘dead’," Social Science & Medicine, Elsevier, vol. 246(C).
  • Handle: RePEc:eee:socmed:v:246:y:2020:i:c:s0277953619307026
    DOI: 10.1016/j.socscimed.2019.112707
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953619307026
    Download Restriction: Full text for ScienceDirect subscribers only

    File URL: https://libkey.io/10.1016/j.socscimed.2019.112707?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Yan Feng & Nancy J. Devlin & Koonal K. Shah & Brendan Mulhern & Ben van Hout, 2018. "New methods for modelling EQ‐5D‐5L value sets: An application to English data," Health Economics, John Wiley & Sons, Ltd., vol. 27(1), pages 23-38, January.
    2. Nancy Devlin & Ken Buckingham & Koonal Shah & Aki Tsuchiya & Carl Tilling & Grahame Wilkinson & Ben van Hout, 2013. "A Comparison Of Alternative Variants Of The Lead And Lag Time Tto," Health Economics, John Wiley & Sons, Ltd., vol. 22(5), pages 517-532, May.
    3. Nancy J. Devlin & Koonal K. Shah & Brendan J. Mulhern & Krystallia Pantiri & Ben van Hout, 2019. "A new method for valuing health: directly eliciting personal utility functions," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(2), pages 257-270, March.
    4. Nancy J. Devlin & Paul Hansen & Paul Kind & Alan Williams, 2003. "Logical inconsistencies in survey respondents' health state valuations ‐ a methodological challenge for estimating social tariffs," Health Economics, John Wiley & Sons, Ltd., vol. 12(7), pages 529-544, July.
    5. Brazier, John & Roberts, Jennifer & Deverill, Mark, 2002. "The estimation of a preference-based measure of health from the SF-36," Journal of Health Economics, Elsevier, vol. 21(2), pages 271-292, March.
    6. Angela Robinson & Anne Spencer, 2006. "Exploring challenges to TTO utilities: valuing states worse than dead," Health Economics, John Wiley & Sons, Ltd., vol. 15(4), pages 393-402, April.
    7. Anna Hobbins & Luke Barry & Dan Kelleher & Koonal Shah & Nancy Devlin & Juan Manuel Ramos Goni & Ciaran O’Neill, 2018. "Utility Values for Health States in Ireland: A Value Set for the EQ-5D-5L," PharmacoEconomics, Springer, vol. 36(11), pages 1345-1353, November.
    8. Richard Norman & Paula Cronin & Rosalie Viney, 2013. "A Pilot Discrete Choice Experiment to Explore Preferences for EQ-5D-5L Health States," Applied Health Economics and Health Policy, Springer, vol. 11(3), pages 287-298, June.
    9. Hsiang-Wen Lin & Chia-Ing Li & Fang- Ju Lin & Jen-Yu Chang & Churn-Shiouh Gau & Nan Luo & A Simon Pickard & Juan M Ramos Goñi & Chao-Hsiun Tang & Chien-Ning Hsu, 2018. "Valuation of the EQ-5D-5L in Taiwan," PLOS ONE, Public Library of Science, vol. 13(12), pages 1-16, December.
    10. Rosalie Viney & Richard Norman & John Brazier & Paula Cronin & Madeleine T. King & Julie Ratcliffe & Deborah Street, 2014. "An Australian Discrete Choice Experiment To Value Eq‐5d Health States," Health Economics, John Wiley & Sons, Ltd., vol. 23(6), pages 729-742, June.
    11. Asrul Akmal Shafie & Annushiah Vasan Thakumar & Ching Jou Lim & Nan Luo & Kim Rand-Hendriksen & Faridah Aryani Md Yusof, 2019. "EQ-5D-5L Valuation for the Malaysian Population," PharmacoEconomics, Springer, vol. 37(5), pages 715-725, May.
    12. Nancy J. Devlin & Koonal K. Shah & Yan Feng & Brendan Mulhern & Ben van Hout, 2018. "Valuing health‐related quality of life: An EQ‐5D‐5L value set for England," Health Economics, John Wiley & Sons, Ltd., vol. 27(1), pages 7-22, January.
    13. Eliza L. Y. Wong & Juan Manuel Ramos-Goñi & Annie W. L. Cheung & Amy Y. K. Wong & Oliver Rivero-Arias, 2018. "Assessing the Use of a Feedback Module to Model EQ-5D-5L Health States Values in Hong Kong," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 11(2), pages 235-247, April.
    14. Fredrick Dermawan Purba & Joke A. M. Hunfeld & Aulia Iskandarsyah & Titi Sahidah Fitriana & Sawitri Supardi Sadarjoen & Juan Manuel Ramos-Goñi & Jan Passchier & Jan J. V. Busschbach, 2017. "The Indonesian EQ-5D-5L Value Set," PharmacoEconomics, Springer, vol. 35(11), pages 1153-1165, November.
    15. Thaler, Richard, 1980. "Toward a positive theory of consumer choice," Journal of Economic Behavior & Organization, Elsevier, vol. 1(1), pages 39-60, March.
    16. Kristina Ludwig & J.-Matthias Graf von der Schulenburg & Wolfgang Greiner, 2018. "German Value Set for the EQ-5D-5L," PharmacoEconomics, Springer, vol. 36(6), pages 663-674, June.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Babashahi, Saeideh & Hansen, Paul & Sullivan, Trudy, 2021. "Creating a priority list of non-communicable diseases to support health research funding decision-making," Health Policy, Elsevier, vol. 125(2), pages 221-228.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Brendan Mulhern & Richard Norman & Deborah J. Street & Rosalie Viney, 2019. "One Method, Many Methodological Choices: A Structured Review of Discrete-Choice Experiments for Health State Valuation," PharmacoEconomics, Springer, vol. 37(1), pages 29-43, January.
    2. Nancy J. Devlin & Koonal K. Shah & Yan Feng & Brendan Mulhern & Ben van Hout, 2018. "Valuing health‐related quality of life: An EQ‐5D‐5L value set for England," Health Economics, John Wiley & Sons, Ltd., vol. 27(1), pages 7-22, January.
    3. Devlin, N. & Shah, K.K & Buckingham, K., 2017. "What is the Normative Basis for Selecting the Measure of 'Average' Preferences for Use in Social Choices?," Research Papers 001798, Office of Health Economics.
    4. Versteegh, MM & Attema, AE & Oppe, M & Devlin, NJ & Stolk, EA, 2012. "Time to tweak the TTO. But how?," MPRA Paper 37989, University Library of Munich, Germany.
    5. Eliza L. Y. Wong & Juan Manuel Ramos-Goñi & Annie W. L. Cheung & Amy Y. K. Wong & Oliver Rivero-Arias, 2018. "Assessing the Use of a Feedback Module to Model EQ-5D-5L Health States Values in Hong Kong," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 11(2), pages 235-247, April.
    6. Kelleher, Dan & Barry, Luke & Hobbins, Anna & O'Neill, Stephen & Doherty, Edel & O'Neill, Ciaran, 2020. "Examining the transnational health preferences of a group of Eastern European migrants relative to a European host population using the EQ-5D-5L," Social Science & Medicine, Elsevier, vol. 246(C).
    7. Hobbins, Anna P. & Barry, Luke & Kelleher, Dan & Shah, Koonal & Devlin, Nancy & Ramos Goni, Juan Manuel & O’Neill, Ciaran, 2020. "Do people with private health insurance attach a higher value to health than those without insurance? Results from an EQ-5D-5 L valuation study in Ireland," Health Policy, Elsevier, vol. 124(6), pages 639-646.
    8. John Brazier & Roberta Ara & Donna Rowen & Helene Chevrou-Severac, 2017. "A Review of Generic Preference-Based Measures for Use in Cost-Effectiveness Models," PharmacoEconomics, Springer, vol. 35(1), pages 21-31, December.
    9. Wijnen, Ben F.M. & Mosweu, Iris & Majoie, Marian H.J.M. & Ridsdale, Leone & de Kinderen, Reina J.A. & Evers, Silvia M.A.A. & McCrone, Paul, 2018. "A comparison of the responsiveness of EQ-5D-5L and the QOLIE-31P and mapping of QOLIE-31P to EQ-5D-5L in epilepsy," LSE Research Online Documents on Economics 106170, London School of Economics and Political Science, LSE Library.
    10. Bansback, Nick & Hole, Arne Risa & Mulhern, Brendan & Tsuchiya, Aki, 2014. "Testing a discrete choice experiment including duration to value health states for large descriptive systems: Addressing design and sampling issues," Social Science & Medicine, Elsevier, vol. 114(C), pages 38-48.
    11. Anna Selivanova & Erik Buskens & Paul F. M. Krabbe, 2018. "Head-to-Head Comparison of EQ‐5D‐3L and EQ‐5D‐5L Health Values," PharmacoEconomics, Springer, vol. 36(6), pages 715-725, June.
    12. Ole Marten & Brendan Mulhern & Nick Bansback & Aki Tsuchiya, 2020. "Implausible States: Prevalence of EQ-5D-5L States in the General Population and Its Effect on Health State Valuation," Medical Decision Making, , vol. 40(6), pages 735-745, August.
    13. Koonal K. Shah & Juan Manuel Ramos-Goñi & Simone Kreimeier & Nancy J. Devlin, 2020. "An exploration of methods for obtaining 0 = dead anchors for latent scale EQ-5D-Y values," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 21(7), pages 1091-1103, September.
    14. Brendan Mulhern & Richard Norman & Paula Lorgelly & Emily Lancsar & Julie Ratcliffe & John Brazier & Rosalie Viney, 2017. "Is Dimension Order Important when Valuing Health States Using Discrete Choice Experiments Including Duration?," PharmacoEconomics, Springer, vol. 35(4), pages 439-451, April.
    15. Koonal K. Shah & Juan Manuel Ramos-Goñi & Simone Kreimeier & Nancy J. Devlin, 0. "An exploration of methods for obtaining 0 = dead anchors for latent scale EQ-5D-Y values," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 0, pages 1-13.
    16. Amanda Cole & Koonal Shah & Brendan Mulhern & Yan Feng & Nancy Devlin, 2018. "Valuing EQ-5D-5L health states ‘in context’ using a discrete choice experiment," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(4), pages 595-605, May.
    17. Yan Feng & Nancy J. Devlin & Koonal K. Shah & Brendan Mulhern & Ben van Hout, 2018. "New methods for modelling EQ‐5D‐5L value sets: An application to English data," Health Economics, John Wiley & Sons, Ltd., vol. 27(1), pages 23-38, January.
    18. Ben F. M. Wijnen & Iris Mosweu & Marian H. J. M. Majoie & Leone Ridsdale & Reina J. A. Kinderen & Silvia M. A. A. Evers & Paul McCrone, 2018. "A comparison of the responsiveness of EQ-5D-5L and the QOLIE-31P and mapping of QOLIE-31P to EQ-5D-5L in epilepsy," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(6), pages 861-870, July.
    19. Richard Norman & Rebecca Mercieca‐Bebber & Donna Rowen & John E. Brazier & David Cella & A. Simon Pickard & Deborah J. Street & Rosalie Viney & Dennis Revicki & Madeleine T. King & On behalf of the Eu, 2019. "U.K. utility weights for the EORTC QLU‐C10D," Health Economics, John Wiley & Sons, Ltd., vol. 28(12), pages 1385-1401, December.
    20. Nan Luo & Minghui Li & Elly Stolk & Nancy Devlin, 2013. "The effects of lead time and visual aids in TTO valuation: a study of the EQ-VT framework," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 14(1), pages 15-24, July.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:246:y:2020:i:c:s0277953619307026. See general information about how to correct material in RePEc.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: . General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service hosted by the Research Division of the Federal Reserve Bank of St. Louis . RePEc uses bibliographic data supplied by the respective publishers.