IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v230y2019icp256-263.html
   My bibliography  Save this article

Lobbying by association: The case of autism and the controversy over packing therapy in France

Author

Listed:
  • Chamak, Brigitte

Abstract

The controversy over packing therapy used in psychiatry was studied here to illustrate how leading associations can influence public health policies. The main French associations of parents with autistic children succeeded in obtaining the prohibition of packing, announced by the French Secretary of State to the Ministry of Health in April 2016. Parents and professionals who had observed the positive effects of packing when nothing else worked for their part wondered what could be done for self-harming patients. The political authorities followed the opinion of the main associations of parents with autistic children at the expense of that of professionals. In this paper, the actions and discourse of the associations against packing are explored, as are the arguments of the psychiatrists who defend packing therapy. The different phases in the controversy from the first opposition in 2005 and the role of opinion leaders in associations are analyzed. The strategies to discredit psychiatry and to promote behavioral methods are also studied to understand the shift in the balance of power from professionals to association leaders. The mobilization of the associations prompted some psychiatrists to conduct evidence-based research and to formalize their practice. The controversy over packing, involving political decision-making processes, ethical issues and clinical questions, enables us to illustrate a case of lobbying by associations.

Suggested Citation

  • Chamak, Brigitte, 2019. "Lobbying by association: The case of autism and the controversy over packing therapy in France," Social Science & Medicine, Elsevier, vol. 230(C), pages 256-263.
    • Handle: RePEc:eee:socmed:v:230:y:2019:i:c:p:256-263
    DOI: 10.1016/j.socscimed.2019.04.027
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953619302278
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2019.04.027?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Gansel, Yannis & Lézé, Samuel, 2015. "Physical constraint as psychological holding: Mental-health treatment for difficult and violent adolescents in France," Social Science & Medicine, Elsevier, vol. 143(C), pages 329-335.
    2. Raz, Aviad & Jongsma, Karin R. & Rimon-Zarfaty, Nitzan & Späth, Elisabeth & Bar-Nadav, Bosmat & Vaintropov, Ella & Schicktanz, Silke, 2018. "Representing autism: Challenges of collective representation in German and Israeli associations for and of autistic people," Social Science & Medicine, Elsevier, vol. 200(C), pages 65-72.
    3. Hall, Richard L. & Deardorff, Alan V., 2006. "Lobbying as Legislative Subsidy," American Political Science Review, Cambridge University Press, vol. 100(1), pages 69-84, February.
    4. Mueller,Dennis C. (ed.), 1997. "Perspectives on Public Choice," Cambridge Books, Cambridge University Press, number 9780521553773.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Diego Varela, 2009. "Just a Lobbyist?," European Union Politics, , vol. 10(1), pages 7-34, March.
    2. Tobias Böhmelt, 2013. "A closer look at the information provision rationale: Civil society participation in states’ delegations at the UNFCCC," The Review of International Organizations, Springer, vol. 8(1), pages 55-80, March.
    3. Persson, Torsten & Tabellini, Guido, 2002. "Political economics and public finance," Handbook of Public Economics, in: A. J. Auerbach & M. Feldstein (ed.), Handbook of Public Economics, edition 1, volume 3, chapter 24, pages 1549-1659, Elsevier.
    4. Thomas A. Garrett & Russell S. Sobel, 2004. "State Lottery Revenue: The Importance of Game Characteristics," Public Finance Review, , vol. 32(3), pages 313-330, May.
    5. Aleksandras KRYLOVAS & Natalja KOSAREVA & Edmundas Kazimieras ZAVADSKAS, 2016. "Statistical Analysis of KEMIRA Type Weights Balancing Methods," Journal for Economic Forecasting, Institute for Economic Forecasting, vol. 0(3), pages 19-39, September.
    6. Ghulam Shabbir & Mumtaz Anwar & Shahid Adil, 2016. "Corruption, Political Stability and Economic Growth," The Pakistan Development Review, Pakistan Institute of Development Economics, vol. 55(4), pages 689-702.
    7. Bruno S. Frey & Stephan Meier, "undated". "Pro-Social Behavior, Reciprocity or Both?," IEW - Working Papers 107, Institute for Empirical Research in Economics - University of Zurich.
    8. Schnellenbach, Jan & Schubert, Christian, 2015. "Behavioral political economy: A survey," European Journal of Political Economy, Elsevier, vol. 40(PB), pages 395-417.
    9. Stephen Coate & Michael Conlin, 2002. "Voter Turnout: Theory and Evidence from Texas Liquor Referenda," NBER Working Papers 8720, National Bureau of Economic Research, Inc.
    10. Martimort, David & Semenov, Aggey, 2008. "The informational effects of competition and collusion in legislative politics," Journal of Public Economics, Elsevier, vol. 92(7), pages 1541-1563, July.
    11. Kokovin Sergey & Zhelobodko Evgeniy, 2004. "Leviathanian Fiscal Competition in Heterogeneous Country," EERC Working Paper Series 01-219e, EERC Research Network, Russia and CIS.
    12. Prato, Carlo & Wolton, Stephane, 2018. "Rational ignorance, populism, and reform," European Journal of Political Economy, Elsevier, vol. 55(C), pages 119-135.
    13. Jean-Noël Chauvey, 2005. "L'intérêt du Balanced Scorecard dans l'évolution des modes de contrôle des Départements français," Post-Print halshs-00581145, HAL.
    14. Alois Stutzer & Lorenz Goette & Michael Zehnder, 2011. "Active Decisions and Prosocial Behaviour: a Field Experiment on Blood Donation," Economic Journal, Royal Economic Society, vol. 121(556), pages 476-493, November.
    15. Dennis Mueller, 1998. "Constitutional Constraints on Governments in a Global Economy," Constitutional Political Economy, Springer, vol. 9(3), pages 171-186, September.
    16. repec:esx:essedp:751 is not listed on IDEAS
    17. Benoît Le Maux, 2009. "Governmental behavior in representative democracy: a synthesis of the theoretical literature," Public Choice, Springer, vol. 141(3), pages 447-465, December.
    18. Francesca Colli & Johan Adriaensen, 2020. "Lobbying the state or the market? A framework to study civil society organizations’ strategic behavior," Regulation & Governance, John Wiley & Sons, vol. 14(3), pages 501-513, July.
    19. Stephen Drinkwater & Colin Jennings, 2007. "Who are the expressive voters?," Public Choice, Springer, vol. 132(1), pages 179-189, July.
    20. Anwar, Mumtaz, 2005. "The Political Economy of International Financial Institutions? Lending to Pakistan," HWWA Discussion Papers 338, Hamburg Institute of International Economics (HWWA).
    21. Carsten Hefeker, 2006. "Project Aid or Budget Aid? The Interests of Governments and Financial Institutions," Review of Development Economics, Wiley Blackwell, vol. 10(2), pages 241-252, May.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:230:y:2019:i:c:p:256-263. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.