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The voluntary sector and health policy: The role of national level health consumer and patients' organisations in the UK

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  • Baggott, Rob
  • Jones, Kathryn

Abstract

This article explores the policy role of health consumer and patients' organisations (HCPOs), an important subset of the UK voluntary health sector. Based on research findings from two surveys, the article examines the activities, resources and contacts of HCPOs. It also assesses their impact on health policy and reform. There is some evidence that HCPOs can influence policy and reform. However, much depends on the alliances they build with other policy actors (including other HCPOs), their resources and leadership. HCPOs seem to have more impact on the detail of policy than on the direction of travel. In addition, there are potentially adverse consequences for HCPOs that do engage with the policy process, which may partly explain why some are wary of such involvement. For example, it is possible that HCPOs can be manipulated by government and other powerful policy actors such as health professionals and the drugs industry.

Suggested Citation

  • Baggott, Rob & Jones, Kathryn, 2014. "The voluntary sector and health policy: The role of national level health consumer and patients' organisations in the UK," Social Science & Medicine, Elsevier, vol. 123(C), pages 202-209.
    • Handle: RePEc:eee:socmed:v:123:y:2014:i:c:p:202-209
    DOI: 10.1016/j.socscimed.2014.07.016
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    References listed on IDEAS

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    6. Hemminki, Elina & Toiviainen, Hanna K. & Vuorenkoski, Lauri, 2010. "Co-operation between patient organisations and the drug industry in Finland," Social Science & Medicine, Elsevier, vol. 70(8), pages 1171-1175, April.
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    Cited by:

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    2. Epstein, Steven, 2016. "The politics of health mobilization in the United States: The promise and pitfalls of “disease constituencies”," Social Science & Medicine, Elsevier, vol. 165(C), pages 246-254.
    3. Croft, Charlotte & Currie, Graeme, 2020. "Realizing policy aspirations of voluntary sector involvement in integrated care provision: Insights from the English National Health Service," Health Policy, Elsevier, vol. 124(5), pages 549-555.
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    5. Panos Kanavos & Olivier Wouters & Jean Mossman & Mary G. Baker & Ingrid Kössler, 2017. "Patient Power as a Driver for Change: Reality or Rhetoric?," Global Policy, London School of Economics and Political Science, vol. 8(s2), pages 133-138, March.

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