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The voluntary sector and health policy: The role of national level health consumer and patients' organisations in the UK

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  • Baggott, Rob
  • Jones, Kathryn

Abstract

This article explores the policy role of health consumer and patients' organisations (HCPOs), an important subset of the UK voluntary health sector. Based on research findings from two surveys, the article examines the activities, resources and contacts of HCPOs. It also assesses their impact on health policy and reform. There is some evidence that HCPOs can influence policy and reform. However, much depends on the alliances they build with other policy actors (including other HCPOs), their resources and leadership. HCPOs seem to have more impact on the detail of policy than on the direction of travel. In addition, there are potentially adverse consequences for HCPOs that do engage with the policy process, which may partly explain why some are wary of such involvement. For example, it is possible that HCPOs can be manipulated by government and other powerful policy actors such as health professionals and the drugs industry.

Suggested Citation

  • Baggott, Rob & Jones, Kathryn, 2014. "The voluntary sector and health policy: The role of national level health consumer and patients' organisations in the UK," Social Science & Medicine, Elsevier, vol. 123(C), pages 202-209.
  • Handle: RePEc:eee:socmed:v:123:y:2014:i:c:p:202-209
    DOI: 10.1016/j.socscimed.2014.07.016
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    References listed on IDEAS

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    1. Crossley, Nick, 2006. "The field of psychiatric contention in the UK, 1960-2000," Social Science & Medicine, Elsevier, vol. 62(3), pages 552-563, February.
    2. Hemminki, Elina & Toiviainen, Hanna K. & Vuorenkoski, Lauri, 2010. "Co-operation between patient organisations and the drug industry in Finland," Social Science & Medicine, Elsevier, vol. 70(8), pages 1171-1175, April.
    3. Rabeharisoa, Vololona, 2006. "From representation to mediation: The shaping of collective mobilization on muscular dystrophy in France," Social Science & Medicine, Elsevier, vol. 62(3), pages 564-576, February.
    4. Kendall, Jeremy, 2000. "The mainstreaming of the third sector into public policy in England in the late 1990s: whys and wherefores," LSE Research Online Documents on Economics 29028, London School of Economics and Political Science, LSE Library.
    5. repec:cup:apsrev:v:93:y:1999:i:01:p:1-13_21 is not listed on IDEAS
    6. Salter, Brian, 2003. "Patients and doctors: reformulating the UK health policy community?," Social Science & Medicine, Elsevier, vol. 57(5), pages 927-936, September.
    7. Baggott, Rob & Jones, Kathryn L., 2011. "Prevention better than cure? Health consumer and patients' organisations and public health," Social Science & Medicine, Elsevier, vol. 73(4), pages 530-534, August.
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    Cited by:

    1. Epstein, Steven, 2016. "The politics of health mobilization in the United States: The promise and pitfalls of “disease constituencies”," Social Science & Medicine, Elsevier, vol. 165(C), pages 246-254.
    2. repec:bla:glopol:v:8:y:2017:i::p:133-138 is not listed on IDEAS

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