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Assessing genetic testing: Who are the "lay experts"?

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  • Goven, Joanna

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  • Goven, Joanna, 2008. "Assessing genetic testing: Who are the "lay experts"?," Health Policy, Elsevier, vol. 85(1), pages 1-18, January.
    • Handle: RePEc:eee:hepoli:v:85:y:2008:i:1:p:1-18
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    References listed on IDEAS

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    1. Boote, Jonathan & Telford, Rosemary & Cooper, Cindy, 2002. "Consumer involvement in health research: a review and research agenda," Health Policy, Elsevier, vol. 61(2), pages 213-236, August.
    2. Leys, Mark, 2003. "Health care policy: qualitative evidence and health technology assessment," Health Policy, Elsevier, vol. 65(3), pages 217-226, September.
    3. Pivik, Jayne & Rode, Elisabeth & Ward, Christopher, 2004. "A consumer involvement model for health technology assessment in Canada," Health Policy, Elsevier, vol. 69(2), pages 253-268, August.
    4. Dew, Kevin & Keefe, Vera & Small, Keitha, 2005. "'Choosing' to work when sick: workplace presenteeism," Social Science & Medicine, Elsevier, vol. 60(10), pages 2273-2282, May.
    5. Tritter, Jonathan Quetzal & McCallum, Alison, 2006. "The snakes and ladders of user involvement: Moving beyond Arnstein," Health Policy, Elsevier, vol. 76(2), pages 156-168, April.
    6. Caron-Flinterman, J. Francisca & Broerse, Jacqueline E.W. & Bunders, Joske F.G., 2005. "The experiential knowledge of patients: a new resource for biomedical research?," Social Science & Medicine, Elsevier, vol. 60(11), pages 2575-2584, June.
    7. Banta, David, 2003. "The development of health technology assessment," Health Policy, Elsevier, vol. 63(2), pages 121-132, February.
    8. Gollust, S.E. & Apse, K. & Fuller, B.P. & Miller, P.S. & Biesecker, B.B., 2005. "Community involvement in developing policies for genetic testing: Assessing the interests and experiences of individuals affected by genetic conditions," American Journal of Public Health, American Public Health Association, vol. 95(1), pages 35-41.
    9. Lehoux, Pascale & Poland, Blake & Daudelin, Genevieve, 2006. "Focus group research and "the patient's view"," Social Science & Medicine, Elsevier, vol. 63(8), pages 2091-2104, October.
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    Cited by:

    1. Elberse, Janneke Elisabeth & Pittens, Carina Anna Cornelia Maria & de Cock Buning, Tjard & Broerse, Jacqueline Elisabeth Willy, 2012. "Patient involvement in a scientific advisory process: Setting the research agenda for medical products," Health Policy, Elsevier, vol. 107(2), pages 231-242.
    2. Bombard, Yvonne & Abelson, Julia & Simeonov, Dorina & Gauvin, Francois-Pierre, 2011. "Eliciting ethical and social values in health technology assessment: A participatory approach," Social Science & Medicine, Elsevier, vol. 73(1), pages 135-144, July.
    3. Gauvin, Francois-Pierre & Abelson, Julia & Giacomini, Mita & Eyles, John & Lavis, John N., 2010. ""It all depends": Conceptualizing public involvement in the context of health technology assessment agencies," Social Science & Medicine, Elsevier, vol. 70(10), pages 1518-1526, May.
    4. Rhian A. Salmon & Rebecca K. Priestley & Joanna Goven, 2017. "The reflexive scientist: an approach to transforming public engagement," Journal of Environmental Studies and Sciences, Springer;Association of Environmental Studies and Sciences, vol. 7(1), pages 53-68, March.

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