IDEAS home Printed from https://ideas.repec.org/a/eee/hepoli/v122y2018i6p590-598.html
   My bibliography  Save this article

The view of experts on initiatives to be undertaken to promote equity in the access to orphan drugs and specialised care for rare diseases in Spain: A Delphi consensus

Author

Listed:
  • Torrent-Farnell, J.
  • Comellas, M.
  • Poveda, J.L.
  • Abaitua, I.
  • Gutiérrez-Solana, L.G.
  • Pérez-López, J.
  • Cruz, J.
  • Urcelay, J.
  • Lizán, L.

Abstract

To reach a consensus amongst experts on the most feasible actions to be undertaken to facilitate patient access to specialised care and orphan drugs (OD) in the public health sector in Spain.

Suggested Citation

  • Torrent-Farnell, J. & Comellas, M. & Poveda, J.L. & Abaitua, I. & Gutiérrez-Solana, L.G. & Pérez-López, J. & Cruz, J. & Urcelay, J. & Lizán, L., 2018. "The view of experts on initiatives to be undertaken to promote equity in the access to orphan drugs and specialised care for rare diseases in Spain: A Delphi consensus," Health Policy, Elsevier, vol. 122(6), pages 590-598.
    • Handle: RePEc:eee:hepoli:v:122:y:2018:i:6:p:590-598
    DOI: 10.1016/j.healthpol.2018.03.002
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S016885101830054X
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.healthpol.2018.03.002?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Picavet, Eline & Cassiman, David & Simoens, Steven, 2012. "Evaluating and improving orphan drug regulations in Europe: A Delphi policy study," Health Policy, Elsevier, vol. 108(1), pages 1-9.
    2. Todd Gammie & Christine Y Lu & Zaheer Ud-Din Babar, 2015. "Access to Orphan Drugs: A Comprehensive Review of Legislations, Regulations and Policies in 35 Countries," PLOS ONE, Public Library of Science, vol. 10(10), pages 1-24, October.
    3. Rowe, Gene & Wright, George, 1999. "The Delphi technique as a forecasting tool: issues and analysis," International Journal of Forecasting, Elsevier, vol. 15(4), pages 353-375, October.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Prianto Budi Saptono & Gustofan Mahmud & Intan Pratiwi & Dwi Purwanto & Ismail Khozen & Muhamad Akbar Aditama & Siti Khodijah & Maria Eurelia Wayan & Rina Yuliastuty Asmara & Ferry Jie, 2023. "Development of Climate-Related Disclosure Indicators for Application in Indonesia: A Delphi Method Study," Sustainability, MDPI, vol. 15(14), pages 1-25, July.
    2. Lin, Tun & De Guzman, Franklin, 2007. "Tourism for pro-poor and sustainable growth: economic analysis of tourism projects," MPRA Paper 24994, University Library of Munich, Germany.
    3. Di Zio, Simone & Bolzan, Mario & Marozzi, Marco, 2021. "Classification of Delphi outputs through robust ranking and fuzzy clustering for Delphi-based scenarios," Technological Forecasting and Social Change, Elsevier, vol. 173(C).
    4. Litsiou, Konstantia & Polychronakis, Yiannis & Karami, Azhdar & Nikolopoulos, Konstantinos, 2022. "Relative performance of judgmental methods for forecasting the success of megaprojects," International Journal of Forecasting, Elsevier, vol. 38(3), pages 1185-1196.
    5. Nicholas Bagley & Benjamin Berger & Amitabh Chandra & Craig Garthwaite & Ariel D. Stern, 2018. "The Orphan Drug Act at 35: Observations and an Outlook for the Twenty-First Century," NBER Chapters, in: Innovation Policy and the Economy, Volume 19, pages 97-137, National Bureau of Economic Research, Inc.
    6. Alyami, Saleh. H. & Rezgui, Yacine & Kwan, Alan, 2013. "Developing sustainable building assessment scheme for Saudi Arabia: Delphi consultation approach," Renewable and Sustainable Energy Reviews, Elsevier, vol. 27(C), pages 43-54.
    7. Jason C Hsu & Huai-Chueh Wu & Wen-Chia Feng & Chih-Ho Chou & Edward Chia-Cheng Lai & Christine Y Lu, 2018. "Disease and economic burden for rare diseases in Taiwan: A longitudinal study using Taiwan’s National Health Insurance Research Database," PLOS ONE, Public Library of Science, vol. 13(9), pages 1-14, September.
    8. Ngoy Kabemba S. & Mwiya Balimu & Mwanaumo Erastus & Chisumbe Sampa & Petere Gaida, 2023. "Factors Influencing Professional Indemnity Insurance Use in Construction Risk Management," Baltic Journal of Real Estate Economics and Construction Management, Sciendo, vol. 11(1), pages 199-220, January.
    9. van Asselt, E.D. & Meuwissen, M.P.M. & van Asseldonk, M.A.P.M. & Sterrenburg, P. & Mengelers, M.J.B. & van der Fels-Klerx, H.J., 2011. "Approach for a pro-active emerging risk system on biofuel by-products in feed," Food Policy, Elsevier, vol. 36(3), pages 421-429, June.
    10. Daniel Reißmann & Daniela Thrän & Alberto Bezama, 2018. "Key Development Factors of Hydrothermal Processes in Germany by 2030: A Fuzzy Logic Analysis," Energies, MDPI, vol. 11(12), pages 1-20, December.
    11. Myeonggil Choi & Changhan Lee, 2015. "Information Security Management as a Bridge in Cloud Systems from Private to Public Organizations," Sustainability, MDPI, vol. 7(9), pages 1-20, August.
    12. Odysseus Manoliadis & Ioannis Tsolas & Alexandra Nakou, 2006. "Sustainable construction and drivers of change in Greece: a Delphi study," Construction Management and Economics, Taylor & Francis Journals, vol. 24(2), pages 113-120.
    13. Grote, Matt & Waterson, Ben & Rudolph, Felix, 2021. "The impact of strategic transport policies on future urban traffic management systems," Transport Policy, Elsevier, vol. 110(C), pages 402-414.
    14. Haarhaus, Tim & Liening, Andreas, 2020. "Building dynamic capabilities to cope with environmental uncertainty: The role of strategic foresight," Technological Forecasting and Social Change, Elsevier, vol. 155(C).
    15. Julia A. Minson & Jennifer S. Mueller & Richard P. Larrick, 2018. "The Contingent Wisdom of Dyads: When Discussion Enhances vs. Undermines the Accuracy of Collaborative Judgments," Management Science, INFORMS, vol. 64(9), pages 4177-4192, September.
    16. Ribeiro, Barbara E. & Quintanilla, Miguel A., 2015. "Transitions in biofuel technologies: An appraisal of the social impacts of cellulosic ethanol using the Delphi method," Technological Forecasting and Social Change, Elsevier, vol. 92(C), pages 53-68.
    17. Makkonen, Marika & Hujala, Teppo & Uusivuori, Jussi, 2016. "Policy experts' propensity to change their opinion along Delphi rounds," Technological Forecasting and Social Change, Elsevier, vol. 109(C), pages 61-68.
    18. Norah L. Crossnohere & Ryan Fischer & Andrew Lloyd & Lisa A. Prosser & John F. P. Bridges, 2021. "Assessing the Appropriateness of the EQ-5D for Duchenne Muscular Dystrophy: A Patient-Centered Study," Medical Decision Making, , vol. 41(2), pages 209-221, February.
    19. D F Andersen & J A M Vennix & G P Richardson & E A J A Rouwette, 2007. "Group model building: problem structuring, policy simulation and decision support," Journal of the Operational Research Society, Palgrave Macmillan;The OR Society, vol. 58(5), pages 691-694, May.
    20. Wilson, Kevin J., 2017. "An investigation of dependence in expert judgement studies with multiple experts," International Journal of Forecasting, Elsevier, vol. 33(1), pages 325-336.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:hepoli:v:122:y:2018:i:6:p:590-598. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu or the person in charge (email available below). General contact details of provider: http://www.elsevier.com/locate/healthpol .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.