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Hear our voices: A Photovoice project with children who are orphaned and living with HIV in a Ugandan group home

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  • Fournier, Bonnie
  • Bridge, Andrea
  • Pritchard Kennedy, Andrea
  • Alibhai, Arif
  • Konde-Lule, Joseph

Abstract

In June 2010, we conducted a qualitative participatory research study to explore the experience of orphaned, HIV seropositive children who live in a group home in semi-urban western Uganda. Photovoice was used as a participatory method to enhance storytelling with children between 12 and 18years (n=5 girls; n=8 boys). In previous project work done by the research team in Uganda, children's affirming experiences in their group home suggested an extension to the dominant view that favors extended family placements, and raises the need for further inquiry regarding institutional care. Children in this study revealed how the group home supported key protective factors in their everyday lives that promote well-being, and resilience for coping with challenges such as stigma. Children expressed how their group home fostered a sense of belonging and appreciation for nature, home, resources and community. Children also described their hardships stemming from stigma, including associated psychological, emotional and social challenges. This forces us to re-think the role of institutional care for orphaned children who are HIV seropositive, guided by the unique perspective of children themselves. This research extends our understanding of key protective factors, while also challenging the dominant view to include institutional care as an effective placement option for those that require specialized care and support. Moreover, findings demonstrate that HIV seropositive orphaned children who live in a group home setting experience protective factors supporting their psychological, emotional and social well-being.

Suggested Citation

  • Fournier, Bonnie & Bridge, Andrea & Pritchard Kennedy, Andrea & Alibhai, Arif & Konde-Lule, Joseph, 2014. "Hear our voices: A Photovoice project with children who are orphaned and living with HIV in a Ugandan group home," Children and Youth Services Review, Elsevier, vol. 45(C), pages 55-63.
  • Handle: RePEc:eee:cysrev:v:45:y:2014:i:c:p:55-63
    DOI: 10.1016/j.childyouth.2014.03.038
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    References listed on IDEAS

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    1. Atwine, Benjamin & Cantor-Graae, Elizabeth & Bajunirwe, Francis, 2005. "Psychological distress among AIDS orphans in rural Uganda," Social Science & Medicine, Elsevier, vol. 61(3), pages 555-564, August.
    2. Pinkerton, John, 2011. "Constructing a global understanding of the social ecology of leaving out of home care," Children and Youth Services Review, Elsevier, vol. 33(12), pages 2412-2416.
    3. Desmond, Chris & Gow, Jeff & Loening-Voysey, Heidi & Wilson, Theresa & Stirling, Bridget, 2002. "Approaches to caring, essential elements for a quality service and cost-effectiveness in South Africa," Evaluation and Program Planning, Elsevier, vol. 25(4), pages 447-458, November.
    4. Nyamukapa, C.A. & Gregson, S. & Lopman, B. & Saito, S. & Watts, H.J. & Monasch, R. & Jukes, M.C.H., 2008. "HIV-associated orphanhood and children's psychosocial distress: Theoretical framework tested with data from Zimbabwe," American Journal of Public Health, American Public Health Association, vol. 98(1), pages 133-141.
    5. Bonnie Fournier & Andrea Bridge & Judy Mill & Arif Alibhai & Andrea Pritchard Kennedy & Joseph Konde-Lule, 2014. "Turning the Camera Back," SAGE Open, , vol. 4(2), pages 21582440145, May.
    6. Skovdal, Morten & Ogutu, Vincent O. & Aoro, Cellestine & Campbell, Catherine, 2009. "Young carers as social actors: Coping strategies of children caring for ailing or ageing guardians in Western Kenya," Social Science & Medicine, Elsevier, vol. 69(4), pages 587-595, August.
    7. Cluver, Lucie & Orkin, Mark, 2009. "Cumulative risk and AIDS-orphanhood: Interactions of stigma, bullying and poverty on child mental health in South Africa," Social Science & Medicine, Elsevier, vol. 69(8), pages 1186-1193, October.
    8. Madhavan, Sangeetha, 2004. "Fosterage patterns in the age of AIDS: continuity and change," Social Science & Medicine, Elsevier, vol. 58(7), pages 1443-1454, April.
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    2. Eunice Magalhães & Maria Manuela Calheiros & Carla Antunes, 2018. "‘I Always Say What I Think’: a Rights-Based Approach of Young People’s Psychosocial Functioning in Residential Care," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 11(6), pages 1801-1816, December.
    3. Coral Gallardo-Masa & Rosa Sitjes-Figueras & Edgar Iglesias & Carme Montserrat, 2024. "How Adolescents in Residential Care Perceive their Skills and Satisfaction with Life: Do Adolescents and Youth Workers Agree?," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 17(1), pages 261-287, February.
    4. Roche, Steven, 2019. "A scoping review of children's experiences of residential care settings in the global South," Children and Youth Services Review, Elsevier, vol. 105(C), pages 1-1.
    5. Costa, Mónica & Tagliabue, Semira & Matos, Paula Mena & Mota, Catarina Pinheiro, 2020. "Stability and change in adolescents’ well-being: The role of relationships with caregivers in residential care," Children and Youth Services Review, Elsevier, vol. 119(C).
    6. Yanjun Cai, 2017. "Bonding, bridging, and linking: photovoice for resilience through social capital," Natural Hazards: Journal of the International Society for the Prevention and Mitigation of Natural Hazards, Springer;International Society for the Prevention and Mitigation of Natural Hazards, vol. 88(2), pages 1169-1195, September.

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