Evidence-based activism: Patients’ organisations, users’ and activist’s groups in knowledge society
This article proposes the notion of ‘evidence-based activism’ to capture patients’ and health activists’ groups’ focus on knowledge production and knowledge mobilisation in the governance of health issues. It shows how these groups engage with, and articulate a variety of credentialed knowledge and ‘experiential knowledge’ with a view to explore concerned people’s situations, to make themselves part and parcel of the networks of expertise on their conditions in their national contexts, and to elaborate evidence on the issues they deem important to address both at an individual and a collective level.
|Date of creation:||May 2013|
|Contact details of provider:|| Postal: 60 boulevard Saint Michel, 75272 Paris cedex 06|
Phone: + 188.8.131.52.92.88
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Web page: http://www.csi.mines-paristech.fr/
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- Landzelius, Kyra, 2006. "Introduction: Patient organization movements and new metamorphoses in patienthood," Social Science & Medicine, Elsevier, vol. 62(3), pages 529-537, February.
- Haas, Peter M., 1992. "Introduction: epistemic communities and international policy coordination," International Organization, Cambridge University Press, vol. 46(01), pages 1-35, December.
- Barker, Kristin K., 2011. "Listening to Lyrica: contested illnesses and pharmaceutical determinism," Social Science & Medicine, Elsevier, vol. 73(6), pages 833-842, September.
- Rabeharisoa, Vololona, 2006. "From representation to mediation: The shaping of collective mobilization on muscular dystrophy in France," Social Science & Medicine, Elsevier, vol. 62(3), pages 564-576, February.
- Cambrosio, Alberto & Keating, Peter & Schlich, Thomas & Weisz, George, 2006. "Regulatory objectivity and the generation and management of evidence in medicine," Social Science & Medicine, Elsevier, vol. 63(1), pages 189-199, July.
- Philippe Robert-Demontrond & R. Ringoot, 2004. "Introduction," Post-Print halshs-00081823, HAL.
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