Evidence-based activism: Patients’ organisations, users’ and activist’s groups in knowledge society
This article proposes the notion of ‘evidence-based activism’ to capture patients’ and health activists’ groups’ focus on knowledge production and knowledge mobilisation in the governance of health issues. It shows how these groups engage with, and articulate a variety of credentialed knowledge and ‘experiential knowledge’ with a view to explore concerned people’s situations, to make themselves part and parcel of the networks of expertise on their conditions in their national contexts, and to elaborate evidence on the issues they deem important to address both at an individual and a collective level.
|Date of creation:||May 2013|
|Contact details of provider:|| Postal: 60 boulevard Saint Michel, 75272 Paris cedex 06|
Phone: + 184.108.40.206.92.88
Fax: + 220.127.116.11.56.28
Web page: http://www.csi.mines-paristech.fr/
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- Barker, Kristin K., 2011. "Listening to Lyrica: contested illnesses and pharmaceutical determinism," Social Science & Medicine, Elsevier, vol. 73(6), pages 833-842, September.
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