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Exploring Child-Patient Autonomy: Findings from an Ethnographic Study of Clinic Visits by Children

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  • Kristi Paron

    (University of Tartu)

Abstract

In research into the involvement of children in decision-making about their health and treatment there is an over-reliance on interviews (with children, parents and doctors) as a research method. What actually happens during clinic visits in terms of child-adult communication and how children participate in decision-making has been largely overlooked. This study aims to fill this gap by exploring how child-patient autonomy functions in a child-parent-doctor triadic relationship. The study is based on ethnographic non-participatory observations of appointments with doctors involving 31 children and young adults ranging in age from 2 to 19 years. The study demonstrates that patient autonomy is not clearly attributed to either the child or the parent by the doctor, but is shared between them, and therefore child-patient autonomy is a relational process that is conceptualised as autonomy-making in this article.

Suggested Citation

  • Kristi Paron, 2024. "Exploring Child-Patient Autonomy: Findings from an Ethnographic Study of Clinic Visits by Children," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 17(1), pages 99-121, February.
    • Handle: RePEc:spr:chinre:v:17:y:2024:i:1:d:10.1007_s12187-023-10077-3
    DOI: 10.1007/s12187-023-10077-3
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    References listed on IDEAS

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    1. Imelda Coyne & Pamela Gallagher, 2011. "Participation in communication and decision‐making: children and young people’s experiences in a hospital setting," Journal of Clinical Nursing, John Wiley & Sons, vol. 20(15‐16), pages 2334-2343, August.
    2. Lucie Moore & Susan Kirk, 2010. "A literature review of children’s and young people’s participation in decisions relating to health care," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(15‐16), pages 2215-2225, August.
    3. Roger A. Hart, 1992. "Children's Participation: From tokenism to citizenship," Papers inness92/6, Innocenti Essay.
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