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Growing up with a Chronically Ill Family Member—The Impact on and Support Needs of Young Adult Carers: A Scoping Review

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Listed:
  • Hinke M. van der Werf

    (Research Group Nursing Diagnostics, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands)

  • Marie Louise A. Luttik

    (Research Group Nursing Diagnostics, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands)

  • Alice de Boer

    (Faculty of Social Sciences, Vrije Universiteit Amsterdam, 1081 HV Amsterdam, The Netherlands
    SCP, The Netherlands Institute of Social Sciences, 2500 BD The Hague, The Netherlands)

  • Petrie F. Roodbol

    (Faculty of Medical Sciences, University Medical Center Groningen, 9713 AV Groningen, The Netherlands)

  • Wolter Paans

    (Research Group Nursing Diagnostics, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands
    Department of Critical Care, University Medical Centre Groningen, 9713 GZ Groningen, The Netherlands)

Abstract

This scoping review provides an overview of the impact of growing up with a chronically ill family member on young adults (18–25 years old), and their specific needs. Young adults represent an important life stage involving a transition to adulthood, during which individuals’ family situations can affect their future. We searched relevant studies following the guideline of Arskey and O’Mailley’s methodological framework and the PRISMA statement guidelines for scoping reviews in PubMed, PsychInfo and reference lists to identify articles for inclusion. Studies from 2005 to 2020 were included in this review. Of the 12 studies, six qualitative studies, five quantitative studies and one mixed method study were included. Eight studies discussed the impact, including consequences at a physical and mental level, at their personal development and future perspectives, but also positive effects, such as being capable of organizing their lives. Four studies discussed the needs of young adult carers, including emotional needs, support needs with regard to stimulating autonomy (arising from internal conflicts) and developing their own identity, and the concerned attitude of involved professionals. An unambiguous definition of the target group and further well-designed research are needed to improve clarity about the role of support, so that future professionals can adequately address the needs and wishes of young adults who grow up with an ill family member.

Suggested Citation

  • Hinke M. van der Werf & Marie Louise A. Luttik & Alice de Boer & Petrie F. Roodbol & Wolter Paans, 2022. "Growing up with a Chronically Ill Family Member—The Impact on and Support Needs of Young Adult Carers: A Scoping Review," IJERPH, MDPI, vol. 19(2), pages 1-16, January.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:2:p:855-:d:723727
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    References listed on IDEAS

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    1. Hinke M. van der Werf & Wolter Paans & Geertjan Emmens & Anneke L. Francke & Petrie F. Roodbol & Marie Louise A. Luttik, 2020. "Expectations and Prospects of Young Adult Caregivers Regarding the Support of Professionals: A Qualitative Focus Group Study," IJERPH, MDPI, vol. 17(12), pages 1-11, June.
    2. Julie Y Moberg & Dorte Larsen & Anne Brødsgaard, 2017. "Striving for balance between caring and restraint: young adults' experiences with parental multiple sclerosis," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(9-10), pages 1363-1374, May.
    3. Levine, C. & Hunt, G.G. & Halper, D. & Hart, A.Y. & Lautz, J. & Gould, D.A., 2005. "Young adult caregivers: A first look at an unstudied population," American Journal of Public Health, American Public Health Association, vol. 95(11), pages 2071-2075.
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    2. Bente Storm Mowatt Haugland & Mari Hysing & Børge Sivertsen, 2023. "Does It Matter Who You Provide Care for? Mental Health and Life Satisfaction in Young Adult Carers Associated with Type of Relationship and Illness Category—A National Student Survey," IJERPH, MDPI, vol. 20(5), pages 1-16, February.
    3. Francesco Barbabella & Lennart Magnusson & Licia Boccaletti & Giulia Casu & Valentina Hlebec & Irena Bolko & Feylyn Lewis & Renske Hoefman & Rosita Brolin & Sara Santini & Marco Socci & Barbara D’Amen, 2023. "Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries: Lessons Learned from the ME-WE Project," IJERPH, MDPI, vol. 20(6), pages 1-20, March.
    4. Giulia Landi & Kenneth I. Pakenham & Silvana Grandi & Eliana Tossani, 2022. "Young Adult Carers during the Pandemic: The Effects of Parental Illness and Other Ill Family Members on COVID-19-Related and General Mental Health Outcomes," IJERPH, MDPI, vol. 19(6), pages 1-18, March.
    5. Araviinthansai Subramaniam & Kalyani Kirtikar Mehta, 2024. "Exploring the Lived Experiences of Caregiving for Older Family Members by Young Caregivers in Singapore: Transition, Trials, and Tribulations," IJERPH, MDPI, vol. 21(2), pages 1, February.
    6. Giulia Landi & Kenneth I. Pakenham & Roberto Cattivelli & Silvana Grandi & Eliana Tossani, 2022. "Caregiving Responsibilities and Mental Health Outcomes in Young Adult Carers during the COVID-19 Pandemic: A Longitudinal Study," IJERPH, MDPI, vol. 19(22), pages 1-17, November.

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