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Expectations and Prospects of Young Adult Caregivers Regarding the Support of Professionals: A Qualitative Focus Group Study

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  • Hinke M. van der Werf

    (Research Group Nursing Diagnostics, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands)

  • Wolter Paans

    (Research Group Nursing Diagnostics, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands)

  • Geertjan Emmens

    (Research Group Nursing Diagnostics, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands)

  • Anneke L. Francke

    (Nivel, Netherlands Institute for Health Services Research, 3500 BN Utrecht, The Netherlands
    APH Amsterdam Public Health Research Institute/Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The Netherlands)

  • Petrie F. Roodbol

    (Faculty of Medical Sciences, University Medical Center Groningen, 9700 RB Groningen, The Netherlands)

  • Marie Louise A. Luttik

    (Research Group Nursing Diagnostics, Hanze University of Applied Sciences, 9714 CA Groningen, The Netherlands)

Abstract

There is a lack of service provision for young adult caregivers (18–25 years of age). This study aims to describe the expectations and prospects of young adult caregivers regarding support from health and education professionals. A qualitative focus group design was used. Twenty-five young Dutch adults (aged 18–25 years) who were growing up with a chronically ill family member participated in one of seven focus groups. Qualitative inductive analysis was used to identify codes and main themes. Two overarching themes with five sub-themes emerged from the focus group discussions. The overarching themes are: the ‘process of approaching young adults’ and the ‘types of support these young adults require’. The process of approaching young adults contains the sub-themes: ‘recognition, attention, and listening’, ‘open-minded attitude’, ‘reliability’, and ‘respecting autonomy’. The types of support this group requires contains the sub-themes: ‘information and emotional support’. Health and education professionals should first and foremost be aware and listen to young adult caregivers, pay attention to them, have an open-minded attitude, respect their autonomy, and have the knowledge to provide them with information and emotional support. Further research could yield comprehensive insights into how professionals can meet these requirements and whether these results apply to male young adult caregivers and young adult caregivers not enrolled in a healthcare-related study program.

Suggested Citation

  • Hinke M. van der Werf & Wolter Paans & Geertjan Emmens & Anneke L. Francke & Petrie F. Roodbol & Marie Louise A. Luttik, 2020. "Expectations and Prospects of Young Adult Caregivers Regarding the Support of Professionals: A Qualitative Focus Group Study," IJERPH, MDPI, vol. 17(12), pages 1-11, June.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:12:p:4299-:d:372176
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    References listed on IDEAS

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    1. Katrina Lloyd, 2013. "Happiness and Well-Being of Young Carers: Extent, Nature and Correlates of Caring Among 10 and 11 Year Old School Children," Journal of Happiness Studies, Springer, vol. 14(1), pages 67-80, March.
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    Cited by:

    1. Hinke M. van der Werf & Wolter Paans & Anneke L. Francke & Petrie F. Roodbol & Marie Louise A. Luttik, 2023. "Identifying and Supporting Students with a Chronically Ill Family Member: A Mixed-Methods Study on the Perceived Competences and Role Views of Lecturers," IJERPH, MDPI, vol. 20(6), pages 1-12, March.
    2. Hinke M. van der Werf & Marie Louise A. Luttik & Alice de Boer & Petrie F. Roodbol & Wolter Paans, 2022. "Growing up with a Chronically Ill Family Member—The Impact on and Support Needs of Young Adult Carers: A Scoping Review," IJERPH, MDPI, vol. 19(2), pages 1-16, January.

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