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Quality of Life of Adolescents Facing a Parental Illness: A Person-Oriented Approach

Author

Listed:
  • Jade Pilato

    (Laboratoire de Psychopathologie et Processus de Santé, Université Paris Cité, 92100 Boulogne Billancourt, France)

  • Géraldine Dorard

    (Laboratoire de Psychopathologie et Processus de Santé, Université Paris Cité, 92100 Boulogne Billancourt, France)

  • Basilie Chevrier

    (PSYCLE, Aix-Marseille Université, 13628 Aix-en-Provence, France)

  • Agnes Leu

    (Institute for Biomedical Ethics, University of Basel, Bernoullistrasse 28, 4056 Basel, Switzerland)

  • Aurélie Untas

    (Laboratoire de Psychopathologie et Processus de Santé, Université Paris Cité, 92100 Boulogne Billancourt, France)

Abstract

Studies that have investigated the health-related quality of life (HRQoL) of adolescents facing a parental illness showed inconsistent results, and none used a person-oriented approach allowing for a deeper understanding of their experience. The aim of this study was to compare the HRQoL of adolescents facing a parental illness to that of their peers, and to explore their HRQoL through a person-oriented approach. The sample consisted of 1324 adolescents recruited in secondary schools (11–15 years old). Adolescents completed questionnaires assessing sociodemographic characteristics, parental illness, HRQoL (KIDSCREEN-52), and academic performance and caring activities (MACA-YC18). Adolescents facing a parental illness showed significantly lower HRQoL than their peers on all dimensions. The cluster analysis yielded five patterns of HRQoL among adolescents facing a parental illness: Low HRQoL ; High HRQoL ; Moderate HRQoL with High Social Acceptance ; High Well-Being, High Moods and Emotions, and High Social Support and Peers . These clusters differed according to demographics, the type of parental illness, illness perception, academic performance, and level of caring activities. The Low HRQoL cluster showed especially low academic performance and high level of caring activities. This multidimensional HRQoL evaluation thus helps to foreground the diversity of these adolescents’ experiences in order to better address their needs.

Suggested Citation

  • Jade Pilato & Géraldine Dorard & Basilie Chevrier & Agnes Leu & Aurélie Untas, 2022. "Quality of Life of Adolescents Facing a Parental Illness: A Person-Oriented Approach," IJERPH, MDPI, vol. 19(13), pages 1-17, June.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:13:p:7892-:d:849135
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    References listed on IDEAS

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    1. Alina Radicke & Claus Barkmann & Bonnie Adema & Anne Daubmann & Karl Wegscheider & Silke Wiegand-Grefe, 2021. "Children of Parents with a Mental Illness: Predictors of Health-Related Quality of Life and Determinants of Child–Parent Agreement," IJERPH, MDPI, vol. 18(2), pages 1-16, January.
    2. Silke Wiegand-Grefe & Marlit Sell & Bonnie Filter & Angela Plass-Christl, 2019. "Family Functioning and Psychological Health of Children with Mentally Ill Parents," IJERPH, MDPI, vol. 16(7), pages 1-12, April.
    3. Katrina Lloyd, 2013. "Happiness and Well-Being of Young Carers: Extent, Nature and Correlates of Caring Among 10 and 11 Year Old School Children," Journal of Happiness Studies, Springer, vol. 14(1), pages 67-80, March.
    4. Giulia Landi & Kenneth Ian Pakenham & Mariagrazia Benassi & Sara Giovagnoli & Eliana Tossani & Silvana Grandi, 2021. "A Model of the Effects of Parental Illness on Youth Adjustment and Family Functioning: The Moderating Effects of Psychological Flexibility on Youth Caregiving and Stress," IJERPH, MDPI, vol. 18(9), pages 1-16, May.
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