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Research and Innovation for and with Adolescent Young Carers to Influence Policy and Practice—The European Union Funded “ME-WE” Project

Author

Listed:
  • Elizabeth Hanson

    (Department of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden
    The Swedish Family Care Competence Centre (NKA), Strömgatan 13, 39232 Kalmar, Sweden)

  • Francesco Barbabella

    (Department of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden
    The Swedish Family Care Competence Centre (NKA), Strömgatan 13, 39232 Kalmar, Sweden)

  • Lennart Magnusson

    (Department of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden
    The Swedish Family Care Competence Centre (NKA), Strömgatan 13, 39232 Kalmar, Sweden)

  • Rosita Brolin

    (Department of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden
    The Swedish Family Care Competence Centre (NKA), Strömgatan 13, 39232 Kalmar, Sweden)

  • Miriam Svensson

    (Department of Health and Caring Sciences, Linnaeus University, 39182 Kalmar, Sweden
    The Swedish Family Care Competence Centre (NKA), Strömgatan 13, 39232 Kalmar, Sweden)

  • Stecy Yghemonos

    (Eurocarers, 14 Rue Père de Deken, 1040 Brussels, Belgium)

  • Valentina Hlebec

    (Faculty of Social Sciences, University of Ljubljana, Kardeljeva pl. 5, 1000 Ljubljana, Slovenia)

  • Irena Bolko

    (Faculty of Social Sciences, University of Ljubljana, Kardeljeva pl. 5, 1000 Ljubljana, Slovenia)

  • Licia Boccaletti

    (Anziani e Non Solo Società Cooperativa Sociale, Via Lenin 55, 41012 Carpi, Italy)

  • Giulia Casu

    (Department of Psychology, University of Bologna, Viale Berti Pichat 5, 40127 Bologna, Italy)

  • Renske Hoefman

    (The Netherlands Institute for Social Research (SCP), Postbus 16164, 2500 The Hague, The Netherlands)

  • Alice H. de Boer

    (The Netherlands Institute for Social Research (SCP), Postbus 16164, 2500 The Hague, The Netherlands)

  • Simone de Roos

    (The Netherlands Institute for Social Research (SCP), Postbus 16164, 2500 The Hague, The Netherlands)

  • Sara Santini

    (Centre for Socio-Economic Research on Aging, IRCCS INRCA-National Institute of Health and Science on Aging, Via Santa Margherita 5, 60124 Ancona, Italy)

  • Marco Socci

    (Centre for Socio-Economic Research on Aging, IRCCS INRCA-National Institute of Health and Science on Aging, Via Santa Margherita 5, 60124 Ancona, Italy)

  • Barbara D’Amen

    (Centre for Socio-Economic Research on Aging, IRCCS INRCA-National Institute of Health and Science on Aging, Via Santa Margherita 5, 60124 Ancona, Italy)

  • Frans Van Zoest

    (Vilans–The National Centre of Expertise for Long-Term Care in The Netherlands, Churchilllaan 11, 3527 Utrecht, The Netherlands)

  • Nynke de Jong

    (Vilans–The National Centre of Expertise for Long-Term Care in The Netherlands, Churchilllaan 11, 3527 Utrecht, The Netherlands)

  • Henk Herman Nap

    (Vilans–The National Centre of Expertise for Long-Term Care in The Netherlands, Churchilllaan 11, 3527 Utrecht, The Netherlands)

  • Yvonne de Jong

    (Vilans–The National Centre of Expertise for Long-Term Care in The Netherlands, Churchilllaan 11, 3527 Utrecht, The Netherlands)

  • Tamara Bouwman

    (Vilans–The National Centre of Expertise for Long-Term Care in The Netherlands, Churchilllaan 11, 3527 Utrecht, The Netherlands)

  • Feylyn Lewis

    (Vanderbilt University School of Nursing, Godchaux Hall 226, 461 21st Ave S, Nashville, TN 37240, USA)

  • Tom Parkhouse

    (School of Education and Social Work, University of Sussex, Falmer, Brighton BN1 9RG, UK)

  • Agnes Leu

    (Department Health, Kalaidos University of Applied Sciences, Gloriastrasse 18a, 8006 Zürich, Switzerland
    Medical Faculty, Institute for Biomedical Ethics, University of Basel, Bernoullistrasse 28, 4056 Basel, Switzerland)

  • Daniel Phelps

    (Department Health, Kalaidos University of Applied Sciences, Gloriastrasse 18a, 8006 Zürich, Switzerland
    Faculty of Health and Well-Being, University of Winchester, Winchester SO22 4NR, UK)

  • Elena Guggiari

    (Department Health, Kalaidos University of Applied Sciences, Gloriastrasse 18a, 8006 Zürich, Switzerland)

  • Vicky Morgan

    (Carers Trust, 32–36 Loman Street, London SE1 OEH, UK)

  • Francesca Centola

    (Eurocarers, 14 Rue Père de Deken, 1040 Brussels, Belgium
    Mental Health Europe, Rue de la Presse 4, 1000 Brussels, Belgium)

  • Stephen Joseph

    (School of Education, University of Nottingham, University Park, Nottingham NG7 2RD, UK)

  • Saul Becker

    (School of Education and Social Work, University of Sussex, Falmer, Brighton BN1 9RG, UK
    Faculty of Health and Education, Manchester Metropolitan University, Manchester M15 6BX, UK)

Abstract

Young carers are children and adolescents who provide care to other family members or friends, taking over responsibilities that are usually associated with adulthood. There is emerging but still scarce knowledge worldwide about the phenomenon of young carers and the impact of a caring role on their health, social and personal development spheres. This paper provides an overview of the main results from the ME-WE project, which is the first European research and innovation project dedicated to adolescent young carers (AYCs) (15–17 years). The project methods relied on three main activities: (1) a systematization of knowledge (by means of a survey to AYCs, country case studies, Delphi study, literature review); (2) the co-design, implementation and evaluation of a primary prevention intervention addressing AYCs’ mental health (by means of Blended Learning Networks and a clinical trial in six European countries); (3) the implementation of knowledge translation actions for dissemination, awareness, advocacy and lobbying (by means of national and international stakeholder networks, as well as traditional and new media). Project results substantially contributed to a better understanding of AYCs’ conditions, needs and preferences, defined tailored support intervention (resilient to COVID-19 related restrictions), and significant improvements in national and European policies for AYCs.

Suggested Citation

  • Elizabeth Hanson & Francesco Barbabella & Lennart Magnusson & Rosita Brolin & Miriam Svensson & Stecy Yghemonos & Valentina Hlebec & Irena Bolko & Licia Boccaletti & Giulia Casu & Renske Hoefman & Ali, 2022. "Research and Innovation for and with Adolescent Young Carers to Influence Policy and Practice—The European Union Funded “ME-WE” Project," IJERPH, MDPI, vol. 19(16), pages 1-33, August.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:16:p:9932-:d:886182
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    References listed on IDEAS

    as
    1. Giulia Casu & Valentina Hlebec & Licia Boccaletti & Irena Bolko & Alessandra Manattini & Elizabeth Hanson, 2021. "Promoting Mental Health and Well-Being among Adolescent Young Carers in Europe: A Randomized Controlled Trial Protocol," IJERPH, MDPI, vol. 18(4), pages 1-23, February.
    2. Sara Santini & Barbara D’Amen & Marco Socci & Mirko Di Rosa & Elizabeth Hanson & Valentina Hlebec, 2022. "Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study," IJERPH, MDPI, vol. 19(5), pages 1-20, February.
    3. Hinke M. van der Werf & Marie Louise A. Luttik & Alice de Boer & Petrie F. Roodbol & Wolter Paans, 2022. "Growing up with a Chronically Ill Family Member—The Impact on and Support Needs of Young Adult Carers: A Scoping Review," IJERPH, MDPI, vol. 19(2), pages 1-16, January.
    Full references (including those not matched with items on IDEAS)

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    Cited by:

    1. Elena Guggiari & Marianne Fatton & Saul Becker & Feylyn Lewis & Giulia Casu & Renske Hoefman & Elizabeth Hanson & Sara Santini & Licia Boccaletti & Henk Herman Nap & Valentina Hlebec & Alexandra Wirth, 2023. "Visibility as a Key Dimension to Better Health-Related Quality of Life and Mental Health: Results of the European Union Funded “ME-WE” Online Survey Study on Adolescent Young Carers in Switzerland," IJERPH, MDPI, vol. 20(5), pages 1-17, February.
    2. Elizabeth Olson & Leiha Edmonds, 2023. "“Caregiving Youth” and the Patchwork History of Recognition in the United States," IJERPH, MDPI, vol. 20(20), pages 1-15, October.
    3. Francesco Barbabella & Lennart Magnusson & Licia Boccaletti & Giulia Casu & Valentina Hlebec & Irena Bolko & Feylyn Lewis & Renske Hoefman & Rosita Brolin & Sara Santini & Marco Socci & Barbara D’Amen, 2023. "Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries: Lessons Learned from the ME-WE Project," IJERPH, MDPI, vol. 20(6), pages 1-20, March.

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