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A Portfolio Analysis of Culturally Tailored Trials to Address Health and Healthcare Disparities

Author

Listed:
  • Marisa Torres-Ruiz

    (Patient-Centered Outcomes Research Institute (PCORI), Washington, DC 20036, USA)

  • Kaitlynn Robinson-Ector

    (Patient-Centered Outcomes Research Institute (PCORI), Washington, DC 20036, USA)

  • Dionna Attinson

    (Patient-Centered Outcomes Research Institute (PCORI), Washington, DC 20036, USA)

  • Jamie Trotter

    (Patient-Centered Outcomes Research Institute (PCORI), Washington, DC 20036, USA)

  • Ayodola Anise

    (Patient-Centered Outcomes Research Institute (PCORI), Washington, DC 20036, USA)

  • Steven Clauser

    (Patient-Centered Outcomes Research Institute (PCORI), Washington, DC 20036, USA)

Abstract

In 2010, Patient-Centered Outcomes Research Institute (PCORI) was authorized by Congress to improve the quality and relevance of evidence available to help patients, caregivers, employers, insurers, and policy makers make better-informed health decisions. We conducted a qualitative analysis of behavioral health trials in the PCORI Addressing Disparities portfolio to examine cultural tailoring strategies across the following priority populations: racial and ethnic minorities, rural populations, people with low-income or low socioeconomic status, individuals with disabilities, people with low health literacy, and lesbian, gay, bisexual, and transgender (LGBT) communities. The Common Strategies for Enhancing Cultural Appropriateness model was used to examine cultural tailoring strategies within trials. We hypothesized increased intersectionality within a patient population at risk for disparities would correlate with the dosage and type of cultural tailoring strategies applied. Thirty-three behavioral health trials applied cultural tailoring strategies and a majority of trials (n = 30) used three or more strategies. Trends in cultural tailoring were associated with certain racial and ethnic groups; however, increased use of tailoring was not associated with the number of priority populations included in a trial. The PCORI Addressing Disparities portfolio demonstrates how a range of cultural tailoring strategies are used, within comparative clinical effectiveness research trials, to address the needs and intersectionality of patients to reduce health and healthcare disparities.

Suggested Citation

  • Marisa Torres-Ruiz & Kaitlynn Robinson-Ector & Dionna Attinson & Jamie Trotter & Ayodola Anise & Steven Clauser, 2018. "A Portfolio Analysis of Culturally Tailored Trials to Address Health and Healthcare Disparities," IJERPH, MDPI, vol. 15(9), pages 1-14, August.
    • Handle: RePEc:gam:jijerp:v:15:y:2018:i:9:p:1859-:d:166196
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    References listed on IDEAS

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    1. Safran, M.A. & Mays Jr., R.A. & Huang, L.N. & McCuan, R. & Pham, P.K. & Fisher, S.K. & McDuffie, K.Y. & Trachtenberg, A., 2009. "Mental health disparities," American Journal of Public Health, American Public Health Association, vol. 99(11), pages 1962-1966.
    2. Alden, Dana L. & Friend, John & Schapira, Marilyn & Stiggelbout, Anne, 2014. "Cultural targeting and tailoring of shared decision making technology: A theoretical framework for improving the effectiveness of patient decision aids in culturally diverse groups," Social Science & Medicine, Elsevier, vol. 105(C), pages 1-8.
    3. Thomas, S.B. & Fine, M.J. & Ibrahim, S.A., 2004. "Health disparities: The importance of culture and health communication," American Journal of Public Health, American Public Health Association, vol. 94(12), pages 2050-2050.
    4. Christopher, S. & Watts, V. & McCormick, A.K.H.G. & Young, S., 2008. "Building and maintaining trust in a community-based participatory research partnership," American Journal of Public Health, American Public Health Association, vol. 98(8), pages 1398-1406.
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    2. Yatra N. Patel & Riya J. Patel & Lauren Bates & Susan Gertz & Susan Hershberger & Melinda Butsch Kovacic, 2024. "Cultural Insiders and Graphic Stories to Promote Research Readiness Among the South Asian Community: A Focus on Purpose, Protection, and Participation," IJERPH, MDPI, vol. 21(10), pages 1-14, October.
    3. Manka Nkimbeng & Christina E. Rosebush & Kwame O. Akosah & Hawking Yam & Wynfred N. Russell & Gabriela Bustamante & Elizabeth A. Albers & Tetyana P. Shippee & Arundhathi P. Sasikumar & Joseph E. Gaugl, 2022. "The Immigrant Memory Collaborative: A Community–University Partnership to Assess African Immigrant Families’ Experiences with Dementia," IJERPH, MDPI, vol. 19(7), pages 1-19, March.

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