IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v338y2023ics0277953623006937.html
   My bibliography  Save this article

Return-to-work with long COVID: An Episodic Disability and Total Worker Health® analysis

Author

Listed:
  • Stelson, Elisabeth A.
  • Dash, Devanshi
  • McCorkell, Lisa
  • Wilson, Cali
  • Assaf, Gina
  • Re'em, Yochai
  • Wei, Hannah

Abstract

A growing number of working individuals have developed long COVID (LC) after COVID-19 infection. Economic analyses indicate that workers' LC symptoms contribute to workforce shortages. However, factors that affect return-to-work from perspectives of people with LC remain largely underexplored. This qualitative study of people with LC conducted by researchers living with LC aimed to identify participants' return-to-work experiences using Total Worker Health® and Episodic Disability frameworks. 10% of participants who participated in a mixed-method global internet survey, had LC symptoms >3 months, and responded in English were randomly selected for thematic analysis using NVivo12. 15% of responses were independently double-coded to identify coding discrepancies. Participants (N = 510) were predominately white and had at least a baccalaureate degree. Four primary work-related themes emerged: 1) strong desire and need to return to work motivated by sense of purpose and financial precarity; 2) diverse and episodic LC symptoms intersect with organization of work and home life; 3) pervasiveness of LC disbelief and stigma at work and in medical settings; and 4) support of medical providers is key to successful return-to-work. Participants described how fluctuation of symptoms, exacerbated by work-related tasks, made returning to work challenging. Participants’ ability to work was often predicated on job accommodations and support. Non-work factors were also essential, especially being able to receive an LC medical diagnosis (key to accessing leave and accommodations) and help at home to manage non-work activities. Many participants described barriers accessing these supports, illuminating stigma and disbelief in LC as a medical condition. Qualitative findings indicate needs for workplace accommodations tailored to fluctuating symptoms, continuously re-evaluated by workers and supervisors together. Reductions in medical barriers to access work accommodations is also critical since many medical providers remain unaware of LC, and workers may lack a positive COVID test result.

Suggested Citation

  • Stelson, Elisabeth A. & Dash, Devanshi & McCorkell, Lisa & Wilson, Cali & Assaf, Gina & Re'em, Yochai & Wei, Hannah, 2023. "Return-to-work with long COVID: An Episodic Disability and Total Worker Health® analysis," Social Science & Medicine, Elsevier, vol. 338(C).
    • Handle: RePEc:eee:socmed:v:338:y:2023:i:c:s0277953623006937
    DOI: 10.1016/j.socscimed.2023.116336
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953623006937
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2023.116336?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Ziyad Al-Aly & Yan Xie & Benjamin Bowe, 2021. "High-dimensional characterization of post-acute sequelae of COVID-19," Nature, Nature, vol. 594(7862), pages 259-264, June.
    2. Sorensen, Glorian & Dennerlein, Jack T. & Peters, Susan E. & Sabbath, Erika L. & Kelly, Erin L. & Wagner, Gregory R., 2021. "The future of research on work, safety, health and wellbeing: A guiding conceptual framework," Social Science & Medicine, Elsevier, vol. 269(C).
    3. Berkman, Lisa F. & Glass, Thomas & Brissette, Ian & Seeman, Teresa E., 2000. "From social integration to health: Durkheim in the new millennium," Social Science & Medicine, Elsevier, vol. 51(6), pages 843-857, September.
    4. Dasom I. Ham, 2022. "Long-Haulers and Labor Market Outcomes," Opportunity and Inclusive Growth Institute Working Papers 060, Federal Reserve Bank of Minneapolis.
    5. Pilkington, Karen & Ridge, Damien T. & Igwesi-Chidobe, Chinonso N. & Chew-Graham, Carolyn A. & Little, Paul & Babatunde, Opeyemi & Corp, Nadia & McDermott, Clare & Cheshire, Anna, 2020. "A relational analysis of an invisible illness: A meta-ethnography of people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and their support needs," Social Science & Medicine, Elsevier, vol. 265(C).
    6. Stelson, Elisabeth A. & Sabbath-Clayton, Lauren L. & Sorensen, Glorian & Kubzansky, Laura D. & Berkman, Lisa F. & Sabbath, Erika L., 2022. "Residential addiction treatment providers: Identifying the role of social context in worker health and turnover," Social Science & Medicine, Elsevier, vol. 314(C).
    7. Shawn Fremstad, 2009. "Half in Ten: Why Taking Disability into Account is Essential to Reducing Income Poverty and Expanding Economic Inclusion," CEPR Reports and Issue Briefs 2009-30, Center for Economic and Policy Research (CEPR).
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Maria Pavlova & Rainer Silbereisen & Kamil Sijko, 2014. "Social Participation in Poland: Links to Emotional Well-Being and Risky Alcohol Consumption," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 117(1), pages 29-44, May.
    2. Liping Ye & Xinping Zhang, 2021. "The association mechanism between social network types and health‐related behaviours among the elderly in rural Hubei Province, China," International Journal of Health Planning and Management, Wiley Blackwell, vol. 36(3), pages 826-846, May.
    3. Miranda L. Ritterman & S. Leonard Syme, 2009. "The importance of community development for health and well-being," Community Development Innovation Review, Federal Reserve Bank of San Francisco, issue 3, pages 001-013.
    4. Monika Ardelt, 2016. "Disentangling the Relations Between Wisdom and Different Types of Well-Being in Old Age: Findings from a Short-Term Longitudinal Study," Journal of Happiness Studies, Springer, vol. 17(5), pages 1963-1984, October.
    5. Vivian Welch & Elizabeth Tanjong Ghogomu & Victoria I. Barbeau & Elisabeth Boulton & Sabrina Boutin & Niobe Haitas & Dylan Kneale & Douglas M. Salzwedel & Roger Simard & Paul Herbert & Christopher Mik, 2022. "PROTOCOL: Digital interventions to reduce social isolation and loneliness in older adults: An evidence and gap map," Campbell Systematic Reviews, John Wiley & Sons, vol. 18(3), September.
    6. Eibich, Peter & Goldzahl, Léontine, 2021. "Does retirement affect secondary preventive care use? Evidence from breast cancer screening," Economics & Human Biology, Elsevier, vol. 43(C).
    7. Sirven, Nicolas, 2006. "Endogenous social capital and self-rated health: Cross-sectional data from rural areas of Madagascar," Social Science & Medicine, Elsevier, vol. 63(6), pages 1489-1502, September.
    8. Vonneilich, Nico & Lüdecke, Daniel & von dem Knesebeck, Olaf, 2020. "Educational inequalities in self-rated health and social relationships – analyses based on the European Social Survey 2002-2016," Social Science & Medicine, Elsevier, vol. 267(C).
    9. Patricia A Thomas & Debra Umberson, 2018. "Do Older Parents’ Relationships With Their Adult Children Affect Cognitive Limitations, and Does This Differ for Mothers and Fathers?," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 73(6), pages 1133-1142.
    10. Edmonds, Joyce K. & Hruschka, Daniel & Bernard, H. Russell & Sibley, Lynn, 2012. "Women’s social networks and birth attendant decisions: Application of the Network-Episode Model," Social Science & Medicine, Elsevier, vol. 74(3), pages 452-459.
    11. Nakagawa, Takeshi & Noguchi, Taiji & Komatsu, Ayane & Saito, Tami, 2022. "The role of social resources and trajectories of functional health following stroke," Social Science & Medicine, Elsevier, vol. 311(C).
    12. Tajvidi, Mina & Richard, Marie-Odile & Wang, YiChuan & Hajli, Nick, 2020. "Brand co-creation through social commerce information sharing: The role of social media," Journal of Business Research, Elsevier, vol. 121(C), pages 476-486.
    13. Scoles, Brooke & Nicodemo, Catia, 2022. "Doctors’ attitudes toward specific medical conditions," Journal of Economic Behavior & Organization, Elsevier, vol. 204(C), pages 182-199.
    14. Lakon, Cynthia M. & Ennett, Susan T. & Norton, Edward C., 2006. "Mechanisms through which drug, sex partner, and friendship network characteristics relate to risky needle use among high risk youth and young adults," Social Science & Medicine, Elsevier, vol. 63(9), pages 2489-2499, November.
    15. Chunshan Zhou & Jing Chen & Shaojian Wang, 2018. "Does Migrant Status and Household Registration Matter? Examining the Effects of City Size on Self-Rated Health," Sustainability, MDPI, vol. 10(7), pages 1-15, June.
    16. Howard Litwin & Michal Levinsky, 2022. "Does personality shape the personal social networks of older Europeans?," European Journal of Ageing, Springer, vol. 19(3), pages 717-727, September.
    17. Shixian Luo & Jing Xie & Katsunori Furuya, 2021. "“We Need such a Space”: Residents’ Motives for Visiting Urban Green Spaces during the COVID-19 Pandemic," Sustainability, MDPI, vol. 13(12), pages 1-18, June.
    18. Haar, Jarrod & O'Kane, Conor, 2022. "A post-lockdown study of burnout risk amongst New Zealand essential workers," Social Science & Medicine, Elsevier, vol. 306(C).
    19. Heffner, Kathi L. & Waring, Molly E. & Roberts, Mary B. & Eaton, Charles B. & Gramling, Robert, 2011. "Social isolation, C-reactive protein, and coronary heart disease mortality among community-dwelling adults," Social Science & Medicine, Elsevier, vol. 72(9), pages 1482-1488, May.
    20. Sarah Gibney & Mark E. McGovern & Erika Sabbath, 2013. "Social Relationships in Later Life: The Role of Childhood Circumstances," Working Papers 201319, Geary Institute, University College Dublin.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:338:y:2023:i:c:s0277953623006937. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.