IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v109y2014icp1-9.html
   My bibliography  Save this article

The use of citizens' juries in health policy decision-making: A systematic review

Author

Listed:
  • Street, Jackie
  • Duszynski, Katherine
  • Krawczyk, Stephanie
  • Braunack-Mayer, Annette

Abstract

Deliberative inclusive approaches, such as citizen juries, have been used to engage citizens on a range of issues in health care and public health. Researchers engaging with the public to inform policy and practice have adapted the citizen jury method in a variety of ways. The nature and impact of these adaptations has not been evaluated.

Suggested Citation

  • Street, Jackie & Duszynski, Katherine & Krawczyk, Stephanie & Braunack-Mayer, Annette, 2014. "The use of citizens' juries in health policy decision-making: A systematic review," Social Science & Medicine, Elsevier, vol. 109(C), pages 1-9.
    • Handle: RePEc:eee:socmed:v:109:y:2014:i:c:p:1-9
    DOI: 10.1016/j.socscimed.2014.03.005
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S027795361400166X
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2014.03.005?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Bennett, Paul & Smith, Susan J., 2007. "Genetics, insurance and participation: How a Citizens' Jury reached its verdict," Social Science & Medicine, Elsevier, vol. 64(12), pages 2487-2498, June.
    2. Abelson, Julia & Giacomini, Mita & Lehoux, Pascale & Gauvin, Francois-Pierre, 2007. "Bringing `the public' into health technology assessment and coverage policy decisions: From principles to practice," Health Policy, Elsevier, vol. 82(1), pages 37-50, June.
    3. Abelson, Julia & Forest, Pierre-Gerlier & Eyles, John & Smith, Patricia & Martin, Elisabeth & Gauvin, Francois-Pierre, 2003. "Deliberations about deliberative methods: issues in the design and evaluation of public participation processes," Social Science & Medicine, Elsevier, vol. 57(2), pages 239-251, July.
    4. Paul, Charlotte & Nicholls, Rachel & Priest, Patricia & McGee, Rob, 2008. "Making policy decisions about population screening for breast cancer: The role of citizens' deliberation," Health Policy, Elsevier, vol. 85(3), pages 314-320, March.
    5. Secko, David M. & Preto, Nina & Niemeyer, Simon & Burgess, Michael M., 2009. "Informed consent in biobank research: A deliberative approach to the debate," Social Science & Medicine, Elsevier, vol. 68(4), pages 781-789, February.
    6. Timotijevic, Lada & Raats, Monique Maria, 2007. "Evaluation of two methods of deliberative participation of older people in food-policy development," Health Policy, Elsevier, vol. 82(3), pages 302-319, August.
    7. Graham Smith & Corinne Wales, 2000. "Citizens' Juries and Deliberative Democracy," Political Studies, Political Studies Association, vol. 48(1), pages 51-65, March.
    8. Lenaghan, Jo, 1999. "Involving the public in rationing decisions. The experience of citizens juries," Health Policy, Elsevier, vol. 49(1-2), pages 45-61, September.
    9. Abelson, Julia & Forest, Pierre-Gerlier & Eyles, John & Casebeer, Ann & Martin, Elisabeth & Mackean, Gail, 2007. "Examining the role of context in the implementation of a deliberative public participation experiment: Results from a Canadian comparative study," Social Science & Medicine, Elsevier, vol. 64(10), pages 2115-2128, May.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Smith, K.E. & Macintyre, A.K. & Weakley, S. & Hill, S.E. & Escobar, O. & Fergie, G., 2021. "Public understandings of potential policy responses to health inequalities: Evidence from a UK national survey and citizens’ juries in three UK cities," Social Science & Medicine, Elsevier, vol. 291(C).
    2. John R. Moodie & Viktor Salenius & Michael Kull, 2022. "From impact assessments towards proactive citizen engagement in EU cohesion policy," Regional Science Policy & Practice, Wiley Blackwell, vol. 14(5), pages 1113-1132, October.
    3. Degeling, Chris & Rychetnik, Lucie & Street, Jackie & Thomas, Rae & Carter, Stacy M., 2017. "Influencing health policy through public deliberation: Lessons learned from two decades of Citizens'/community juries," Social Science & Medicine, Elsevier, vol. 179(C), pages 166-171.
    4. Tello, Juan E. & Barbazza, Erica & Waddell, Kerry, 2020. "Review of 128 quality of care mechanisms: A framework and mapping for health system stewards," Health Policy, Elsevier, vol. 124(1), pages 12-24.
    5. Street, Jackie M. & Sisnowski, Jana & Tooher, Rebecca & Farrell, Lucy C. & Braunack-Mayer, Annette J., 2017. "Community perspectives on the use of regulation and law for obesity prevention in children: A citizens’ jury," Health Policy, Elsevier, vol. 121(5), pages 566-573.
    6. Babashahi, Saeideh & Hansen, Paul & Sullivan, Trudy, 2021. "Creating a priority list of non-communicable diseases to support health research funding decision-making," Health Policy, Elsevier, vol. 125(2), pages 221-228.
    7. Rachel Thompson & Zoe Paskins & Barry G. Main & Thaddeus Mason Pope & Evelyn C. Y. Chan & Ben W. Moulton & Michael J. Barry & Clarence H. Braddock III, 2021. "Addressing Conflicts of Interest in Health and Medicine: Current Evidence and Implications for Patient Decision Aid Development," Medical Decision Making, , vol. 41(7), pages 768-779, October.
    8. Carman, Kristin L. & Mallery, Coretta & Maurer, Maureen & Wang, Grace & Garfinkel, Steve & Yang, Manshu & Gilmore, Dierdre & Windham, Amy & Ginsburg, Marjorie & Sofaer, Shoshanna & Gold, Marthe & Path, 2015. "Effectiveness of public deliberation methods for gathering input on issues in healthcare: Results from a randomized trial," Social Science & Medicine, Elsevier, vol. 133(C), pages 11-20.
    9. Megan Ferguson & Emma Tonkin & Julie Brimblecombe & Amanda Lee & Bronwyn Fredericks & Katherine Cullerton & Catherine L. Mah & Clare Brown & Emma McMahon & Mark D. Chatfield & Eddie Miles & Yvonne Cad, 2023. "Communities Setting the Direction for Their Right to Nutritious, Affordable Food: Co-Design of the Remote Food Security Project in Australian Indigenous Communities," IJERPH, MDPI, vol. 20(4), pages 1-14, February.
    10. Dale, Elina & Peacocke, Elizabeth F. & Movik, Espen & Voorhoeve, Alex & Ottersen, Trygve & Kurowski, Christoph & Evans, David B. & Norheim, Ole Frithjof & Gopinathan, Unni, 2023. "Criteria for the procedural fairness of health financing decisions: a scoping review," LSE Research Online Documents on Economics 119799, London School of Economics and Political Science, LSE Library.
    11. Schoon, Rebecca & Chi, Chunhuei, 2022. "Integrating Citizens Juries and Discrete Choice Experiments: Methodological issues in the measurement of public values in healthcare priority setting," Social Science & Medicine, Elsevier, vol. 309(C).
    12. Dale, Elina & Evans, David B. & Gopinathan, Unni & Kurowski, Christoph & Norheim, Ole F. & Ottersen, Trygve & Voorhoeve, Alex, 2023. "Open and inclusive: fair processes for financing universal health coverage," LSE Research Online Documents on Economics 119795, London School of Economics and Political Science, LSE Library.
    13. Reckers-Droog, Vivian & Jansen, Maarten & Bijlmakers, Leon & Baltussen, Rob & Brouwer, Werner & van Exel, Job, 2020. "How does participating in a deliberative citizens panel on healthcare priority setting influence the views of participants?," Health Policy, Elsevier, vol. 124(2), pages 143-151.
    14. Degeling, Chris & Carter, Stacy M. & Rychetnik, Lucie, 2015. "Which public and why deliberate? – A scoping review of public deliberation in public health and health policy research," Social Science & Medicine, Elsevier, vol. 131(C), pages 114-121.
    15. Tania Stafinski & Jacqueline Street & Andrea Young & Devidas Menon, 2022. "Moving beyond the Court of Public Opinion: A Citizens’ Jury Exploring the Public’s Values around Funding Decisions for Ultra-Orphan Drugs," IJERPH, MDPI, vol. 20(1), pages 1-13, December.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Carman, Kristin L. & Mallery, Coretta & Maurer, Maureen & Wang, Grace & Garfinkel, Steve & Yang, Manshu & Gilmore, Dierdre & Windham, Amy & Ginsburg, Marjorie & Sofaer, Shoshanna & Gold, Marthe & Path, 2015. "Effectiveness of public deliberation methods for gathering input on issues in healthcare: Results from a randomized trial," Social Science & Medicine, Elsevier, vol. 133(C), pages 11-20.
    2. Damien French & Michael Laver, 2009. "Participation Bias, Durable Opinion Shifts and Sabotage through Withdrawal in Citizens' Juries," Political Studies, Political Studies Association, vol. 57(2), pages 422-450, June.
    3. Jonas Lander & Tobias Hainz & Irene Hirschberg & Daniel Strech, 2014. "Current Practice of Public Involvement Activities in Biomedical Research and Innovation: A Systematic Qualitative Review," PLOS ONE, Public Library of Science, vol. 9(12), pages 1-17, December.
    4. Elberse, Janneke Elisabeth & Pittens, Carina Anna Cornelia Maria & de Cock Buning, Tjard & Broerse, Jacqueline Elisabeth Willy, 2012. "Patient involvement in a scientific advisory process: Setting the research agenda for medical products," Health Policy, Elsevier, vol. 107(2), pages 231-242.
    5. Mauro Serapioni & Pedro Lopes Ferreira & Patrícia Antunes, 2014. "Participação em Saúde: Conceitos e Conteúdos," Notas Económicas, Faculty of Economics, University of Coimbra, issue 40, pages 26-42, December.
    6. Deng, Chung-Yeh & Wu, Chia-Ling, 2010. "An innovative participatory method for newly democratic societies: The "civic groups forum" on national health insurance reform in Taiwan," Social Science & Medicine, Elsevier, vol. 70(6), pages 896-903, March.
    7. Degeling, Chris & Carter, Stacy M. & Rychetnik, Lucie, 2015. "Which public and why deliberate? – A scoping review of public deliberation in public health and health policy research," Social Science & Medicine, Elsevier, vol. 131(C), pages 114-121.
    8. Lehoux, Pascale & Daudelin, Genevieve & Demers-Payette, Olivier & Boivin, Antoine, 2009. "Fostering deliberations about health innovation: What do we want to know from publics?," Social Science & Medicine, Elsevier, vol. 68(11), pages 2002-2009, June.
    9. Douglas, Conor M.W. & Wilcox, Elizabeth & Burgess, Michael & Lynd, Larry D., 2015. "Why orphan drug coverage reimbursement decision-making needs patient and public involvement," Health Policy, Elsevier, vol. 119(5), pages 588-596.
    10. Ruth Wouters & Bieke De Fraine & Maarten Simons, 2019. "What is at Stake in Deliberative Inquiry? A Review About a Deliberative Practice," Systemic Practice and Action Research, Springer, vol. 32(2), pages 193-217, April.
    11. Anita Gębska-Kuczerowska & Sudakshina Lahiri & Robert Gajda, 2020. "Bridging the Gap between Theory, Practice, and Policy: A Decision-Making Process Based on Public Health Evidence Feasible in Multi-Stage Research on Biological Risk Factors in Poland," IJERPH, MDPI, vol. 17(20), pages 1-11, October.
    12. De Vries, Raymond & Stanczyk, Aimee & Wall, Ian F. & Uhlmann, Rebecca & Damschroder, Laura J. & Kim, Scott Y., 2010. "Assessing the quality of democratic deliberation: A case study of public deliberation on the ethics of surrogate consent for research," Social Science & Medicine, Elsevier, vol. 70(12), pages 1896-1903, June.
    13. repec:cep:sticas:/159 is not listed on IDEAS
    14. Burchardt, Tania, 2012. "Deliberative research as a tool to make value judgements," LSE Research Online Documents on Economics 43904, London School of Economics and Political Science, LSE Library.
    15. Takeuchi Ayano, 2021. "A survey of methods for evaluating mini-publics," Asia-Pacific Journal of Regional Science, Springer, vol. 5(1), pages 1-19, February.
    16. Bombard, Yvonne & Abelson, Julia & Simeonov, Dorina & Gauvin, Francois-Pierre, 2011. "Eliciting ethical and social values in health technology assessment: A participatory approach," Social Science & Medicine, Elsevier, vol. 73(1), pages 135-144, July.
    17. Gold, Marthe Rachel & Franks, Peter & Siegelberg, Taryn & Sofaer, Shoshanna, 2007. "Does providing cost-effectiveness information change coverage priorities for citizens acting as social decision makers?," Health Policy, Elsevier, vol. 83(1), pages 65-72, September.
    18. Paul, Charlotte & Nicholls, Rachel & Priest, Patricia & McGee, Rob, 2008. "Making policy decisions about population screening for breast cancer: The role of citizens' deliberation," Health Policy, Elsevier, vol. 85(3), pages 314-320, March.
    19. Tania Burchardt, 2012. "Deliberative research as a tool to make value judgements," CASE Papers case159, Centre for Analysis of Social Exclusion, LSE.
    20. Costa -Font, Joan & Forns, Joan Rovira & Sato, Azusa, 2015. "Participatory health system priority setting: Evidence from a budget experiment," Social Science & Medicine, Elsevier, vol. 146(C), pages 182-190.
    21. Jabbar, Amina M. & Abelson, Julia, 2011. "Development of a framework for effective community engagement in Ontario, Canada," Health Policy, Elsevier, vol. 101(1), pages 59-69, June.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:109:y:2014:i:c:p:1-9. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.