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Health related quality of life aspects not captured by EQ-5D-5L: Results from an international survey of patients

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  • Efthymiadou, Olina
  • Mossman, Jean
  • Kanavos, Panos

Abstract

In this paper we discuss and present evidence on whether a generic Health Related Quality of Life (HRQoL) measurement tool, the EQ-5D-5L, captures the dimensions of quality of life (QoL) which patients consider significant.

Suggested Citation

  • Efthymiadou, Olina & Mossman, Jean & Kanavos, Panos, 2019. "Health related quality of life aspects not captured by EQ-5D-5L: Results from an international survey of patients," Health Policy, Elsevier, vol. 123(2), pages 159-165.
    • Handle: RePEc:eee:hepoli:v:123:y:2019:i:2:p:159-165
    DOI: 10.1016/j.healthpol.2018.12.003
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    1. Marra, Carlo A. & Woolcott, John C. & Kopec, Jacek A. & Shojania, Kamran & Offer, Robert & Brazier, John E. & Esdaile, John M. & Anis, Aslam H., 2005. "A comparison of generic, indirect utility measures (the HUI2, HUI3, SF-6D, and the EQ-5D) and disease-specific instruments (the RAQoL and the HAQ) in rheumatoid arthritis," Social Science & Medicine, Elsevier, vol. 60(7), pages 1571-1582, April.
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    Cited by:

    1. Ben Carter & Chloe Hayes & Alexander Smith & Anna Pennington & Michelle Price & Owen Pearson & Silia Vitoratou & Jonathan Hewitt, 2021. "A single patient reported outcome measure for acquired brain injury, multiple sclerosis & Parkinson’s disease," PLOS ONE, Public Library of Science, vol. 16(6), pages 1-13, June.
    2. Elena Olariu & Wael Mohammed & Yemi Oluboyede & Raluca Caplescu & Ileana Gabriela Niculescu-Aron & Marian Sorin Paveliu & Luke Vale, 2023. "EQ-5D-5L: a value set for Romania," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 24(3), pages 399-412, April.
    3. Richard Huan Xu & Dong Dong & Nan Luo & Eliza Lai-Yi Wong & Yushan Wu & Siyue Yu & Renchi Yang & Junshuai Liu & Huiqin Yuan & Shuyang Zhang, 2021. "Evaluating the psychometric properties of the EQ-5D-5L and SF-6D among patients with haemophilia," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 22(4), pages 547-557, June.
    4. Angelis, A. & Linch, M. & Montibeller, G. & Molina-Lopez, T. & Zawada, A. & Orzel, K. & Arickx, F. & Espin, J. & Kanavos, P., 2020. "Multiple Criteria Decision Analysis for HTA across four EU Member States: Piloting the Advance Value Framework," Social Science & Medicine, Elsevier, vol. 246(C).
    5. Jasmin Barman-Aksözen & Anna-Elisabeth Minder & Francesca Granata & Mårten Pettersson & Cornelia Dechant & Mehmet Hakan Aksözen & Rocco Falchetto, 2023. "Quality-Adjusted Life Years in Erythropoietic Protoporphyria and Other Rare Diseases: A Patient-Initiated EQ-5D Feasibility Study," IJERPH, MDPI, vol. 20(7), pages 1-15, March.

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