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How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register

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Listed:
  • Kerina H Jones
  • David V Ford
  • Philip A Jones
  • Ann John
  • Rodden M Middleton
  • Hazel Lockhart-Jones
  • Jeffrey Peng
  • Lisa A Osborne
  • J Gareth Noble

Abstract

Introduction: The EQ-5D is a widely-used, standardised, quality of life measure producing health profiles, indices and states. The aims of this study were to assess the role of various factors in how people with Multiple Sclerosis rate their quality of life, based on responses to the EQ-5D received via the web portal of the UK MS Register. Methods: The 4516 responses to the EQ-5D (between May 2011 and April 2012) were collated with basic demographic and descriptive MS data and the resulting dataset was analysed in SPSS (v.20). Results: The mean health state for people with MS was 59.73 (SD 22.4, median 61), compared to the UK population mean of 82.48 (which is approximately 1SD above the cohort mean). The characteristics of respondents with high health states (at or above +1SD) were: better health profiles (most predictive dimension: Usual Activities), higher health indices, younger age, shorter durations of MS, female gender, relapsing-remitting MS, higher educational attainment and being in paid employment (all p-values

Suggested Citation

  • Kerina H Jones & David V Ford & Philip A Jones & Ann John & Rodden M Middleton & Hazel Lockhart-Jones & Jeffrey Peng & Lisa A Osborne & J Gareth Noble, 2013. "How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register," PLOS ONE, Public Library of Science, vol. 8(6), pages 1-8, June.
    • Handle: RePEc:plo:pone00:0065640
    DOI: 10.1371/journal.pone.0065640
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    References listed on IDEAS

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    1. Lisa A. Osborne & J. Gareth Noble & Hazel M. Lockhart-Jones & Rodden Middleton & Simon Thompson & Inocencio D.C. Maramba & Kerina H. Jones & David V. Ford, 2012. "Sources of Discovery, Reasons for Registration, and Expectations of an Internet-Based Register for Multiple Sclerosis: Visualisations and Explorations of Word Uses and Contexts," International Journal of Healthcare Information Systems and Informatics (IJHISI), IGI Global, vol. 7(3), pages 27-43, July.
    2. Kerina H Jones & David V Ford & Philip A Jones & Ann John & Rodden M Middleton & Hazel Lockhart-Jones & Jeffrey Peng & Lisa A Osborne & J Gareth Noble, 2013. "The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register," PLOS ONE, Public Library of Science, vol. 8(1), pages 1-9, January.
    3. Lisa A. Osborne & Hazel M. Lockhart-Jones & Rodden M. Middleton & Simon Thompson & Inocencio D. C. Maramba & Kerina H. Jones & David V. Ford & J. Gareth Noble, 2013. "Identifying and Addressing the Barriers to the Use of an Internet-Register for Multiple Sclerosis," International Journal of Healthcare Information Systems and Informatics (IJHISI), IGI Global, vol. 8(1), pages 1-16, January.
    4. Paul Kind & Geoffrey Hardman & Susan Macran, 1999. "UK population norms for EQ-5D," Working Papers 172chedp, Centre for Health Economics, University of York.
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    1. Efthymiadou, Olina & Mossman, Jean & Kanavos, Panos, 2019. "Health related quality of life aspects not captured by EQ-5D-5L: Results from an international survey of patients," Health Policy, Elsevier, vol. 123(2), pages 159-165.

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