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Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?

Author

Listed:
  • Donna Rowen

    (University of Sheffield)

  • Oliver Rivero-Arias

    (University of Oxford)

  • Nancy Devlin

    (University of Melbourne)

  • Julie Ratcliffe

    (Flinders University)

Abstract

Methods for measuring and valuing health benefits for economic evaluation and health technology assessment in adult populations are well developed. In contrast, methods for assessing interventions for child and adolescent populations lack detailed guidelines, particularly regarding the valuation of health and quality of life in these age groups. This paper critically examines the methodological considerations involved in the valuation of child- and adolescent-specific health-related quality of life by existing preference-based measures. It also describes the methodological choices made in the valuation of existing generic preference-based measures developed with and/or applied in child and adolescent populations: AHUM, AQoL-6D, CHU9D, EQ-5D-Y, HUI2, HUI3, QWB, 16D and 17D. The approaches used to value existing child- and adolescent-specific generic preference-based measures vary considerably. While the choice of whose preferences and which perspective to use is a matter of normative debate and ultimately for decision by reimbursement agencies and policy makers, greater research around these issues would be informative and would enrich these discussions. Research can also inform the other methodological choices required in the valuation of child and adolescent health states. Gaps in research evidence are identified around the impact of the child described in health state valuation exercises undertaken by adults, including the possibility of informed preferences; the appropriateness and acceptability of valuation tasks for adolescents, in particular tasks involving the state ‘dead’; anchoring of adolescent preferences; and the generation and use of combined adult and adolescent preferences.

Suggested Citation

  • Donna Rowen & Oliver Rivero-Arias & Nancy Devlin & Julie Ratcliffe, 2020. "Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?," PharmacoEconomics, Springer, vol. 38(4), pages 325-340, April.
  • Handle: RePEc:spr:pharme:v:38:y:2020:i:4:d:10.1007_s40273-019-00873-7
    DOI: 10.1007/s40273-019-00873-7
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    References listed on IDEAS

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    1. Brazier, John & Ratcliffe, Julie & Salomon, Joshua & Tsuchiya, Aki, 2016. "Measuring and Valuing Health Benefits for Economic Evaluation," OUP Catalogue, Oxford University Press, edition 2, number 9780198725923.
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    7. Gang Chen & Julie Ratcliffe, 2015. "A Review of the Development and Application of Generic Multi-Attribute Utility Instruments for Paediatric Populations," PharmacoEconomics, Springer, vol. 33(10), pages 1013-1028, October.
    8. Stavros Petrou, 2003. "Methodological issues raised by preference‐based approaches to measuring the health status of children," Health Economics, John Wiley & Sons, Ltd., vol. 12(8), pages 697-702, August.
    9. Dominic Thorrington & Ken Eames, 2015. "Measuring Health Utilities in Children and Adolescents: A Systematic Review of the Literature," PLOS ONE, Public Library of Science, vol. 10(8), pages 1-21, August.
    10. David J. Mott & Koonal K. Shah & Juan Manuel Ramos-Goñi & Nancy J. Devlin & Oliver Rivero-Arias, 2021. "Valuing EQ-5D-Y-3L Health States Using a Discrete Choice Experiment: Do Adult and Adolescent Preferences Differ?," Medical Decision Making, , vol. 41(5), pages 584-596, July.
    11. Julie Ratcliffe & Gang Chen & Katherine Stevens & Sandra Bradley & Leah Couzner & John Brazier & Michael Sawyer & Rachel Roberts & Elisabeth Huynh & Terry Flynn, 2015. "Valuing Child Health Utility 9D Health States with Young Adults: Insights from a Time Trade Off Study," Applied Health Economics and Health Policy, Springer, vol. 13(5), pages 485-492, October.
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    Cited by:

    1. Paul Mark Mitchell & Samantha Husbands & Sarah Byford & Philip Kinghorn & Cara Bailey & Tim J. Peters & Joanna Coast, 2021. "Challenges in developing capability measures for children and young people for use in the economic evaluation of health and care interventions," Health Economics, John Wiley & Sons, Ltd., vol. 30(9), pages 1990-2003, September.
    2. S. A. Lipman & V. T. Reckers-Droog & M. Karimi & M. Jakubczyk & A. E. Attema, 2021. "Self vs. other, child vs. adult. An experimental comparison of valuation perspectives for valuation of EQ-5D-Y-3L health states," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 22(9), pages 1507-1518, December.
    3. Kim Dalziel & Max Catchpool & Borja García-Lorenzo & Inigo Gorostiza & Richard Norman & Oliver Rivero-Arias, 2020. "Feasibility, Validity and Differences in Adolescent and Adult EQ-5D-Y Health State Valuation in Australia and Spain: An Application of Best–Worst Scaling," PharmacoEconomics, Springer, vol. 38(5), pages 499-513, May.

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