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Mind the (inter-rater) gap. An investigation of self-reported versus proxy-reported assessments in the derivation of childhood utility values for economic evaluation: A systematic review

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  • Khadka, Jyoti
  • Kwon, Joseph
  • Petrou, Stavros
  • Lancsar, Emily
  • Ratcliffe, Julie

Abstract

Evidence surrounding utilities for health states, derived either directly from the application of preference-based valuation methods or indirectly from the application of preference-based quality of life instruments, is increasingly being utilised to inform the cost-effectiveness of child health interventions. Proxy (parent or health professional) assessments are common in this area. This study sought to investigate the degree of convergence in childhood utilities generated directly or indirectly within dyad child and proxy assessments.

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  • Khadka, Jyoti & Kwon, Joseph & Petrou, Stavros & Lancsar, Emily & Ratcliffe, Julie, 2019. "Mind the (inter-rater) gap. An investigation of self-reported versus proxy-reported assessments in the derivation of childhood utility values for economic evaluation: A systematic review," Social Science & Medicine, Elsevier, vol. 240(C).
    • Handle: RePEc:eee:socmed:v:240:y:2019:i:c:s0277953619305374
    DOI: 10.1016/j.socscimed.2019.112543
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    References listed on IDEAS

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    1. David Parkin & Nancy Devlin, 2006. "Is there a case for using visual analogue scale valuations in cost‐utility analysis?," Health Economics, John Wiley & Sons, Ltd., vol. 15(7), pages 653-664, July.
    2. Karine Chevreul & Coralie Gandré & Karen Berg Brigham & Julio López-Bastida & Renata Linertová & Juan Oliva-Moreno & Pedro Serrano-Aguilar & Manuel Posada-de-la-Paz & Domenica Taruscio & Arrigo Schiep, 2016. "Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(1), pages 43-52, April.
    3. Wendy Ungar & Katherine Boydell & Sharon Dell & Brian Feldman & Deborah Marshall & Andrew Willan & James Wright, 2012. "A Parent-Child Dyad Approach to the Assessment of Health Status and Health-Related Quality of Life in Children with Asthma," PharmacoEconomics, Springer, vol. 30(8), pages 697-712, August.
    4. Gang Chen & Julie Ratcliffe, 2015. "A Review of the Development and Application of Generic Multi-Attribute Utility Instruments for Paediatric Populations," PharmacoEconomics, Springer, vol. 33(10), pages 1013-1028, October.
    5. Stavros Petrou, 2003. "Methodological issues raised by preference‐based approaches to measuring the health status of children," Health Economics, John Wiley & Sons, Ltd., vol. 12(8), pages 697-702, August.
    6. Julie Ratcliffe & Gang Chen & Katherine Stevens & Sandra Bradley & Leah Couzner & John Brazier & Michael Sawyer & Rachel Roberts & Elisabeth Huynh & Terry Flynn, 2015. "Valuing Child Health Utility 9D Health States with Young Adults: Insights from a Time Trade Off Study," Applied Health Economics and Health Policy, Springer, vol. 13(5), pages 485-492, October.
    7. Peasgood, T & Ward, S & Brazier, J, 2010. "A review and meta-analysis of health state utility values in breast cancer," MPRA Paper 29950, University Library of Munich, Germany.
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    1. Haruo Fujino & Norika Sato, 2022. "Career path support for special needs students with social, emotional, and behavioural difficulties in middle school in Japan: a qualitative study," Palgrave Communications, Palgrave Macmillan, vol. 9(1), pages 1-8, December.
    2. Hutchinson, Claire & Worley, Anthea & Khadka, Jyoti & Milte, Rachel & Cleland, Jenny & Ratcliffe, Julie, 2022. "Do we agree or disagree? A systematic review of the application of preference-based instruments in self and proxy reporting of quality of life in older people," Social Science & Medicine, Elsevier, vol. 305(C).
    3. Paul Mark Mitchell & Samantha Husbands & Sarah Byford & Philip Kinghorn & Cara Bailey & Tim J. Peters & Joanna Coast, 2021. "Challenges in developing capability measures for children and young people for use in the economic evaluation of health and care interventions," Health Economics, John Wiley & Sons, Ltd., vol. 30(9), pages 1990-2003, September.

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