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Qualitative Approaches to Understanding Patient Preferences

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  • Rachael Gooberman-Hill

Abstract

Achieving patient-centered care depends on a thorough understanding of patient preferences at all stages of their journeys through healthcare. Qualitative research methods provide the means to systematically collect and analyze these preferences. Qualitative approaches to research are diverse in character, but many such approaches have a long history and strong disciplinary roots. Despite variation, most qualitative approaches work inductively from the ‘ground up’, and seek to build knowledge and understanding rather than test hypotheses. Their use to explore patient pathways through care has offered insight into reasons why people become patients in the first instance, their preferences for treatment options and degree of involvement in decisions, and their preferences for healthcare delivery. Qualitative approaches are sometimes used alongside ‘quantitative’ in mixed methods designs, requiring solid expertise and resourcing. Expertise is also crucial in the assessment of quality in qualitative research, and efforts to develop checklists to assess quality are challenged by evidence about the importance of expertise-based judgments. Recent developments in health research include an upsurge in patient involvement activities in design of research and healthcare services; these may seem similar to qualitative research, but are in fact very different. While an important part of the research landscape, patient involvement activities are not intended to provide robust research-based evidence about patients’ preferences or experiences. There is pressing need to bridge the gap between qualitative research evidence and patient involvement in the design of research and services. Participatory research methods that harness qualitative approaches may be a way to achieve this. Copyright Springer International Publishing AG 2012

Suggested Citation

  • Rachael Gooberman-Hill, 2012. "Qualitative Approaches to Understanding Patient Preferences," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 5(4), pages 215-223, December.
  • Handle: RePEc:spr:patien:v:5:y:2012:i:4:p:215-223
    DOI: 10.1007/BF03262494
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    References listed on IDEAS

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    1. Linda Deal & Valerie Williams & Sheri Fehnel, 2011. "Development of an Electronic Daily Uterine Fibroid Symptom Diary," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 4(1), pages 31-44, January.
    2. Flynn, Kathryn E. & Smith, Maureen A. & Vanness, David, 2006. "A typology of preferences for participation in healthcare decision making," Social Science & Medicine, Elsevier, vol. 63(5), pages 1158-1169, September.
    3. Donovan, Jenny L. & Blake, David R., 1992. "Patient non-compliance: Deviance or reasoned decision-making?," Social Science & Medicine, Elsevier, vol. 34(5), pages 507-513, March.
    4. Nora Moumjid & Amiram Gafni & Alain Brémond & Marie-Odile Carrère, 2007. "Shared Decision Making in the Medical Encounter: Are We All Talking about the Same Thing?," Medical Decision Making, , vol. 27(5), pages 539-546, September.
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    1. Irit Chudner & Margalit Goldfracht & Hadass Goldblatt & Anat Drach-Zahavy & Khaled Karkabi, 2019. "Video or In-Clinic Consultation? Selection of Attributes as Preparation for a Discrete Choice Experiment Among Key Stakeholders," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 12(1), pages 69-82, February.

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