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“Navigating the lived efficacies of Chagas treatment”

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  • Ventura Garcia, Laia

Abstract

Drawing on an ethnographic study of Chagas treatment among migrant domestic workers in Catalonia, conducted between January 2014 and May 2016, and utilizing the concepts of “lay care” and “living labyrinths,” this paper explores how the efficacy of parasiticide treatments is experienced within relational and contextually situated frameworks. While pharmaceutical efficacy is often characterized by temporary and uncertain outcomes, the results indicate that lived efficacy is shaped by a complex interplay of embodied sociocultural, political, and historical processes, being continually negotiated and redefined within a broader context of global health values, biomedical technologies, migratory experiences and ethnicity, patient-doctor relationships, personal identities, daily demands, and care practices. The findings emphasize the reflexive management of the condition by those affected and highlight the role of pharmaceuticals as active agents that shape social and cultural dynamics, with significant impacts on social life and healthcare. By examining lived efficacy, the study suggests that limited access to healthcare services is not the sole process preventing treatment for Chagas, providing deeper insights into the logics behind actions related to Chagas pharmaceutical treatments. Incorporating “lay care” practices and perspectives into the therapeutic negotiation process not only acknowledges the complex “living labyrinths” navigated by social groups but also offers a foundation for reflecting on and reimagining alternative forms of care, recognizing their role in social and cultural reproduction.

Suggested Citation

  • Ventura Garcia, Laia, 2025. "“Navigating the lived efficacies of Chagas treatment”," Social Science & Medicine, Elsevier, vol. 367(C).
    • Handle: RePEc:eee:socmed:v:367:y:2025:i:c:s0277953625000383
    DOI: 10.1016/j.socscimed.2025.117709
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    References listed on IDEAS

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    1. Miriam Castaldo & Andrea Cavani & Maria Concetta Segneri & Gianfranco Costanzo & Concetta Mirisola & Rosalia Marrone, 2020. "Anthropological study on Chagas Disease: Sociocultural construction of illness and embodiment of health barriers in Bolivian migrants in Rome, Italy," PLOS ONE, Public Library of Science, vol. 15(10), pages 1-14, October.
    2. Forsyth, Colin, 2015. "Controlled but not cured: Structural processes and explanatory models of Chagas disease in tropical Bolivia," Social Science & Medicine, Elsevier, vol. 145(C), pages 7-16.
    3. Colin Forsyth & Sheba Meymandi & Ilan Moss & Jason Cone & Rachel Cohen & Carolina Batista, 2019. "Proposed multidimensional framework for understanding Chagas disease healthcare barriers in the United States," PLOS Neglected Tropical Diseases, Public Library of Science, vol. 13(9), pages 1-23, September.
    4. Laia Ventura-Garcia & Maria Roura & Christopher Pell & Elisabeth Posada & Joaquim Gascón & Edelweis Aldasoro & Jose Muñoz & Robert Pool, 2013. "Socio-Cultural Aspects of Chagas Disease: A Systematic Review of Qualitative Research," PLOS Neglected Tropical Diseases, Public Library of Science, vol. 7(9), pages 1-8, September.
    5. Andrés F Miranda-Arboleda & Ezequiel José Zaidel & Rachel Marcus & María Jesús Pinazo & Luis Eduardo Echeverría & Clara Saldarriaga & Álvaro Sosa Liprandi & Adrián Baranchuk & on behalf of the Neglect, 2021. "Roadblocks in Chagas disease care in endemic and nonendemic countries: Argentina, Colombia, Spain, and the United States. The NET-Heart project," PLOS Neglected Tropical Diseases, Public Library of Science, vol. 15(12), pages 1-12, December.
    6. Martínez-Parra, Adriana Gisela & Pinilla-Alfonso, Maria Yaneth & Abadía-Barrero, César Ernesto, 2018. "Sociocultural dynamics that influence Chagas disease health care in Colombia," Social Science & Medicine, Elsevier, vol. 215(C), pages 142-150.
    7. Donovan, Jenny L. & Blake, David R., 1992. "Patient non-compliance: Deviance or reasoned decision-making?," Social Science & Medicine, Elsevier, vol. 34(5), pages 507-513, March.
    8. Pound, Pandora & Britten, Nicky & Morgan, Myfanwy & Yardley, Lucy & Pope, Catherine & Daker-White, Gavin & Campbell, Rona, 2005. "Resisting medicines: a synthesis of qualitative studies of medicine taking," Social Science & Medicine, Elsevier, vol. 61(1), pages 133-155, July.
    9. Colin J Forsyth, 2017. ""I Cannot Be Worried": Living with Chagas Disease in Tropical Bolivia," PLOS Neglected Tropical Diseases, Public Library of Science, vol. 11(1), pages 1-14, January.
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