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Getting the crowd to care: Marketing illness through health-related crowdfunding in Aotearoa New Zealand

Author

Listed:
  • Caitlin Neuwelt-Kearns

    (School of Environment, University of Auckland, Aotearoa New Zealand)

  • Tom Baker

    (School of Environment, University of Auckland, Aotearoa New Zealand)

  • Octavia Calder-Dawe

    (School of Health, 8491Victoria University of Wellington, Aotearoa New Zealand)

  • Ann E Bartos

    (School of Environment, University of Auckland, Aotearoa New Zealand)

  • Susan Wardell

    (Social Anthropology Programme, 2495School of Social Sciences, University of Otago, Aotearoa New Zealand)

Abstract

Campaigns for personal health expenses make up the largest and fastest-growing segment of donation-based crowdfunding. Set against the backdrop of retrenchment and disinvestment in public healthcare systems across the global North, health-related crowdfunding is a way to navigate increasingly marketised systems of social reproduction. Despite high profile success stories, campaigns vary significantly in their ability to capture the hearts, and ultimately wallets, of donors. While existing analyses of online campaign pages offer some insight into the marketing of healthcare needs, far less is known about practices and experiences of crowdfunding platform users, including campaigners. Bringing literature on crowdfunding together with accounts of the marketisation of care, our paper asks: how do campaigners work to secure crowdfunded healthcare? Through the accounts of 15 people campaigning on behalf of family or friends in Aotearoa New Zealand, we show how attempts to appeal to donors depend on campaigners’ abilities to ‘market’ illness and need in ways that resonate with the crowd. We have two main foci. First, we examine the responsibility and responsibilisation of campaigners to engage and perform accountability to crowdfunders. Second, we show how campaigners mobilise recipients’ traits of deservingness and other culturally favoured personal qualities to appeal to the crowd's perceived predilections. In sum, the paper demonstrates how the use of crowdfunding is both necessitated by the marketisation of healthcare while simultaneously exerting its own form of market discipline.

Suggested Citation

  • Caitlin Neuwelt-Kearns & Tom Baker & Octavia Calder-Dawe & Ann E Bartos & Susan Wardell, 2024. "Getting the crowd to care: Marketing illness through health-related crowdfunding in Aotearoa New Zealand," Environment and Planning A, , vol. 56(1), pages 311-329, February.
  • Handle: RePEc:sae:envira:v:56:y:2024:i:1:p:311-329
    DOI: 10.1177/0308518X211009535
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    References listed on IDEAS

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    1. Gaia Bassani & Nicoletta Marinelli & Silvio Vismara, 2019. "Crowdfunding in healthcare," The Journal of Technology Transfer, Springer, vol. 44(4), pages 1290-1310, August.
    2. Paul Langley, 2016. "Crowdfunding in the United Kingdom: A Cultural Economy," Economic Geography, Taylor & Francis Journals, vol. 92(3), pages 301-321, July.
    3. Stolt, Ragnar & Winblad, Ulrika, 2009. "Mechanisms behind privatization: A case study of private growth in Swedish elderly care," Social Science & Medicine, Elsevier, vol. 68(5), pages 903-911, March.
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