Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation
Download full text from publisher
As the access to this document is restricted, you may want to search for a different version of it.
References listed on IDEAS
- Secko, David M. & Preto, Nina & Niemeyer, Simon & Burgess, Michael M., 2009. "Informed consent in biobank research: A deliberative approach to the debate," Social Science & Medicine, Elsevier, vol. 68(4), pages 781-789, February.
- Walmsley, Heather L., 2011. "Stock options, tax credits or employment contracts please! The value of deliberative public disagreement about human tissue donation," Social Science & Medicine, Elsevier, vol. 73(2), pages 209-216, July.
- Sheila Jasanoff, 2004. "Science and citizenship: a new synergy," Science and Public Policy, Oxford University Press, vol. 31(2), pages 90-94, April.
CitationsCitations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
- Teare, Harriet & Morrison, M. & Whitley, Edgar A. & Kaye, Jane, 2015. "Towards 'engagement 2.0': insights from a study of dynamic consent with biobank participants," LSE Research Online Documents on Economics 63278, London School of Economics and Political Science, LSE Library.
- Nicol, Dianne & Critchley, Christine & McWhirter, Rebekah & Whitton, Tess, 2016. "Understanding public reactions to commercialization of biobanks and use of biobank resources," Social Science & Medicine, Elsevier, vol. 162(C), pages 79-87.
- Regier, Dean A. & Bentley, Colene & Mitton, Craig & Bryan, Stirling & Burgess, Michael M. & Chesney, Ellen & Coldman, Andy & Gibson, Jennifer & Hoch, Jeffrey & Rahman, Syed & Sabharwal, Mona & Sawka, , 2014. "Public engagement in priority-setting: Results from a pan-Canadian survey of decision-makers in cancer control," Social Science & Medicine, Elsevier, vol. 122(C), pages 130-139.
More about this item
KeywordsCanada; British Columbia; Biobanks; Public deliberation; Biospecimen; Consent; Privacy;
StatisticsAccess and download statistics
All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:75:y:2012:i:9:p:1604-1611. See general information about how to correct material in RePEc.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: (Dana Niculescu). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .
If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.
If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.
Please note that corrections may take a couple of weeks to filter through the various RePEc services.