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Hemophilia tweets in Turkey: A rare disease and scarce policies

Author

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  • Sezgin, Serra
  • Gün, Canan Sümeyra
  • Uğur, Mehmet Can
  • Şenol, Selmin

Abstract

•Rare diseases reveal broader systemic inequalities in healthcare and society.•Accessible medications often remain out of reach for marginalized patients.•Patient struggles gain visibility only through urgent public appeals.•Twitter (X) can foster dialogue or remain a space for isolated monologues.•Public institutions must engage critically to improve health communication.

Suggested Citation

  • Sezgin, Serra & Gün, Canan Sümeyra & Uğur, Mehmet Can & Şenol, Selmin, 2025. "Hemophilia tweets in Turkey: A rare disease and scarce policies," Social Science & Medicine, Elsevier, vol. 373(C).
    • Handle: RePEc:eee:socmed:v:373:y:2025:i:c:s0277953625002667
    DOI: 10.1016/j.socscimed.2025.117937
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    References listed on IDEAS

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    1. Sinnenberg, L. & Buttenheim, A.M. & Padrez, K. & Mancheno, C. & Ungar, L. & Merchant, R.M., 2017. "Twitter as a tool for health research: A systematic review," American Journal of Public Health, American Public Health Association, vol. 107(1), pages 1-8.
    2. repec:aph:ajpbhl:10.2105/ajph.2016.303512_4 is not listed on IDEAS
    3. repec:plo:pmed00:0040297 is not listed on IDEAS
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