IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v262y2020ics0277953620304688.html
   My bibliography  Save this article

Unintended consequences of institutionalizing peer support work in mental healthcare

Author

Listed:
  • Adams, Wallis E.

Abstract

The widespread shift towards recovery-oriented mental healthcare has led to the extensive growth of peer-delivered services. Peer support workers draw on lived experience of mental health challenges and service use to provide non-clinical support services. As peer support services have grown, they have also formalized. This mixed-methods study of peer support work in Pennsylvania (USA) explores how peer support has been institutionalized, and identifies the intended impacts and unintended consequences associated with that process. In Pennsylvania, the inclusion of peer support services as a Medicaid reimbursable service, in addition to county level mandates regarding peer support service availability, have served to institutionalize the field. Data include 49 semi-structured interviews conducted with peer support workers (n = 35) and stakeholders (n = 14) in 2016. Qualitative analyses reveal changes to the scope and nature of peer support work, the peer workforce, peer client relationships, and to stigma in the workplace. Despite these changes, peer workers frequently remain underpaid and unable to advance professionally. The institutionalization of peer support serves as a barrier to worker entry and retention and highlights tensions between the consumer-driven origin of the recovery field and the current mental healthcare system. The institutionalization of roles defined by experiential expertise, such as peer support, has the potential to reduce the very centrality of experiential expertise, reproduce social inequalities, and paradoxically impact stigma.

Suggested Citation

  • Adams, Wallis E., 2020. "Unintended consequences of institutionalizing peer support work in mental healthcare," Social Science & Medicine, Elsevier, vol. 262(C).
  • Handle: RePEc:eee:socmed:v:262:y:2020:i:c:s0277953620304688
    DOI: 10.1016/j.socscimed.2020.113249
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953620304688
    Download Restriction: Full text for ScienceDirect subscribers only

    File URL: https://libkey.io/10.1016/j.socscimed.2020.113249?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. El Enany, Nellie & Currie, Graeme & Lockett, Andy, 2013. "A paradox in healthcare service development: Professionalization of service users," Social Science & Medicine, Elsevier, vol. 80(C), pages 24-30.
    2. Wallerstein, N. & Duran, B., 2010. "Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 40-46.
    3. McLean, Athena, 1995. "Empowerment and the psychiatric consumer/ex-patient movement in the United States: Contradictions, crisis and change," Social Science & Medicine, Elsevier, vol. 40(8), pages 1053-1071, April.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Annand, PJ & Platt, Lucy & Rathod, Sujit D. & Hosseini, Paniz & Guise, Andrew, 2022. "‘Progression capitals’: How homeless health peer advocacy impacts peer advocates," Social Science & Medicine, Elsevier, vol. 298(C).

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Held, Suzanne & Hallett, John & Schure, Mark & Knows His Gun McCormick, Alma & Allen, Sarah & Milne-Price, Shauna & Trottier, Coleen & Bull Shows, Brianna & Other Medicine, Lucille & Inouye, Jillian, 2019. "Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program," Social Science & Medicine, Elsevier, vol. 242(C).
    2. Katrina G. Claw & Casey R. Dorr & Erica L. Woodahl, 2024. "Implementing community-engaged pharmacogenomics in Indigenous communities," Nature Communications, Nature, vol. 15(1), pages 1-5, December.
    3. Heather Lochotzki & Karen Patricia Williams & Cynthia G. Colen & Olorunfemi Adetona & Charleta B. Tavares & Georgina M. Ginn & Rejeana Haynes & Wansoo Im & Tanya Bils & Darryl B. Hood, 2022. "A Framework for Interfacing and Partnering with Environmental Justice Communities as a Prelude to Human Health and Hazard Identification in the Vulnerable Census Tracts of Columbus, Ohio," IJERPH, MDPI, vol. 19(21), pages 1-18, October.
    4. Tabia Henry Akintobi & Payam Sheikhattari & Emma Shaffer & Christina L. Evans & Kathryn L. Braun & Angela U. Sy & Bibiana Mancera & Adriana Campa & Stephania T. Miller & Daniel Sarpong & Rhonda Hollid, 2021. "Community Engagement Practices at Research Centers in U.S. Minority Institutions: Priority Populations and Innovative Approaches to Advancing Health Disparities Research," IJERPH, MDPI, vol. 18(12), pages 1-14, June.
    5. Scholz, Roland W. & Czichos, Reiner & Parycek, Peter & Lampoltshammer, Thomas J., 2020. "Organizational vulnerability of digital threats: A first validation of an assessment method," European Journal of Operational Research, Elsevier, vol. 282(2), pages 627-643.
    6. Mayara Ramos & Fernando A. Forcellini & Marcelo G. G. Ferreira & Simon Bowen & Peter C. Wright, 2022. "Cyclical experience‐based design: A proposal for engaging stakeholders in a co‐creative model for primary health care service design," International Journal of Health Planning and Management, Wiley Blackwell, vol. 37(1), pages 486-503, January.
    7. Shelley Gower & Zakia Jeemi & David Forbes & Paul Kebble & Jaya A. R. Dantas, 2022. "Peer Mentoring Programs for Culturally and Linguistically Diverse Refugee and Migrant Women: An Integrative Review," IJERPH, MDPI, vol. 19(19), pages 1-18, October.
    8. Kristine Wray & Akarath Soukhaphon & Brenda Parlee & Amabel D’Souza & Carolina Freitas & Iria Heredia & Chelsea Martin & Carrie Oloriz & Tracey Proverbs & Neal Spicer, 2020. "Aligning Intentions with Community: Graduate Students Reflect on Collaborative Methodologies with Indigenous Research Partners," Sustainability, MDPI, vol. 12(18), pages 1-19, September.
    9. Yingling, Marissa E. & Hock, Robert M. & Feinberg, Mark E. & Holbert, Amy A., 2020. "Community-engaged process to adapt evidence-based programs for parents of children with autism spectrum disorder," Children and Youth Services Review, Elsevier, vol. 112(C).
    10. Lotte Prevo & Stef Kremers & Maria Jansen, 2020. "The Power of Trading: Exploring the Value of a Trading Shop as a Health-Promoting Community Engagement Approach," IJERPH, MDPI, vol. 17(13), pages 1-15, June.
    11. Brad Wright, 2015. "Voices of the Vulnerable: Community health centres and the promise and peril of consumer governance," Public Management Review, Taylor & Francis Journals, vol. 17(1), pages 57-71, January.
    12. Jessica A. Thomas & Emma R. Miller & Paul R. Ward, 2022. "Lifestyle Interventions through Participatory Research: A Mixed-Methods Systematic Review of Alcohol and Other Breast Cancer Behavioural Risk Factors," IJERPH, MDPI, vol. 19(2), pages 1-14, January.
    13. Leonor Mercedes Ward & Mary Janet Hill & Nikashant Antane & Samia Chreim & Anita Olsen Harper & Samantha Wells, 2021. "“The Land Nurtures Our Spirit”: Understanding the Role of the Land in Labrador Innu Wellbeing," IJERPH, MDPI, vol. 18(10), pages 1-13, May.
    14. Danielle Whicher & Julia Alamillo & Lexi Ouellette & Breyon Williams, "undated". "Engaging Community Members in Evaluations of Healthy Marriage and Responsible Fatherhood Programs," Mathematica Policy Research Reports 9ec8c65652bb470c897399292, Mathematica Policy Research.
    15. Kaplan, Deanna M. & deBlois, Madeleine & Dominguez, Violeta & Walsh, Michele E., 2016. "Studying the teaching of kindness: A conceptual model for evaluating kindness education programs in schools," Evaluation and Program Planning, Elsevier, vol. 58(C), pages 160-170.
    16. de Freitas, Cláudia & Martin, Graham, 2015. "Inclusive public participation in health: Policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare," Social Science & Medicine, Elsevier, vol. 135(C), pages 31-39.
    17. Anthony L. Burrow, 2023. "Beyond Finding Purpose: Motivating a Translational Science of Purpose Acquisition," IJERPH, MDPI, vol. 20(12), pages 1-11, June.
    18. Rebecca L. Vidra & Deborah R. Gallagher & Victoria Wilson, 2019. "Acknowledging the challenges of pedagogical innovation: the case of integrating research, teaching, and the practice of environmental leadership," Journal of Environmental Studies and Sciences, Springer;Association of Environmental Studies and Sciences, vol. 9(3), pages 270-275, September.
    19. Neha Hippalgaonkar & Ryan Huu-Tuan Nguyen & Eliza Brumer Cohn & Joseph Horowitz & Ana Williams Waite & Tigist Mersha & Christen Sandoval & Sarah Khan & Kauthar Salum & Paris Thomas & Anne Marie Murphy, 2024. "Are We the Problem? A Call to Action for Addressing Institutional Challenges to Engaging Community Partners in Research," IJERPH, MDPI, vol. 21(2), pages 1-6, February.
    20. Switzer, S. & Guta, A. & de Prinse, K. & Chan Carusone, S. & Strike, C., 2015. "Visualizing harm reduction: Methodological and ethical considerations," Social Science & Medicine, Elsevier, vol. 133(C), pages 77-84.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:262:y:2020:i:c:s0277953620304688. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.