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Spinning, hurting, still, afraid: Living life spaces with Type I Chiari Malformation

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  • Andrews, Gavin J.

Abstract

Human geography's varied engagement with the brain has involved considerations of the way people know and respond to their environments, and their place-based experiences with emotions, mental illnesses and disorders, intellectual disabilities and particular neurological conditions. This paper argues however that this scholarship could be augmented by, and existing expertise be directed towards, considering physical brain abnormalities and injuries. As a case in point it considers the spatial experience of living with Type 1 Chiari Malformation. Through interviews with four sufferers, the research articulates three domains that they have had to re-negotiate - home space, social space and medical space - emphasizing supportive and challenging aspects of each, as well as meaningful and affective qualities to encounters. The paper concludes with some pointers towards the future study of physical brain abnormalities and injuries and the kinds of knowledge it might create to increase awareness and inform care.

Suggested Citation

  • Andrews, Gavin J., 2019. "Spinning, hurting, still, afraid: Living life spaces with Type I Chiari Malformation," Social Science & Medicine, Elsevier, vol. 231(C), pages 13-21.
    • Handle: RePEc:eee:socmed:v:231:y:2019:i:c:p:13-21
    DOI: 10.1016/j.socscimed.2018.01.030
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    References listed on IDEAS

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    1. Williams, Allison, 2002. "Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space," Social Science & Medicine, Elsevier, vol. 55(1), pages 141-154, July.
    2. David Bissell, 2011. "Thinking Habits for Uncertain Subjects: Movement, Stillness, Susceptibility," Environment and Planning A, , vol. 43(11), pages 2649-2665, November.
    3. Crooks, Valorie A. & Chouinard, Vera & Wilton, Robert D., 2008. "Understanding, embracing, rejecting: Women's negotiations of disability constructions and categorizations after becoming chronically ill," Social Science & Medicine, Elsevier, vol. 67(11), pages 1837-1846, December.
    4. Herron, R.V. & Rosenberg, M.W., 2017. "“Not there yet”: Examining community support from the perspective of people with dementia and their partners in care," Social Science & Medicine, Elsevier, vol. 173(C), pages 81-87.
    5. Davis, Kat Kleman & Davis, Jeffrey Sasha & Dowler, Lorraine, 2004. "In motion, out of place: the public space(s) of Tourette Syndrome," Social Science & Medicine, Elsevier, vol. 59(1), pages 103-112, July.
    6. Andrews, Gavin J. & Chen, Sandra & Myers, Samantha, 2014. "The ‘taking place’ of health and wellbeing: Towards non-representational theory," Social Science & Medicine, Elsevier, vol. 108(C), pages 210-222.
    7. Dyck, Isabel, 1995. "Hidden geographies: The changing lifeworlds of women with multiple sclerosis," Social Science & Medicine, Elsevier, vol. 40(3), pages 307-320, February.
    8. Evans, Joshua D. & Crooks, Valorie A. & Kingsbury, Paul T., 2009. "Theoretical injections: On the therapeutic aesthetics of medical spaces," Social Science & Medicine, Elsevier, vol. 69(5), pages 716-721, September.
    9. Fujita, Masahisa, 2007. "Towards the new economic geography in the brain power society," Regional Science and Urban Economics, Elsevier, vol. 37(4), pages 482-490, July.
    10. Alan Latham, 2003. "Research, Performance, and Doing Human Geography: Some Reflections on the Diary-Photograph, Diary-Interview Method," Environment and Planning A, , vol. 35(11), pages 1993-2017, November.
    11. David Bissell, 2009. "Obdurate Pains, Transient Intensities: Affect and the Chronically Pained Body," Environment and Planning A, , vol. 41(4), pages 911-928, April.
    12. Bell, Sarah L. & Tyrrell, Jessica & Phoenix, Cassandra, 2016. "Ménière's disease and biographical disruption: Where family transitions collide," Social Science & Medicine, Elsevier, vol. 166(C), pages 177-185.
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    Cited by:

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    3. Lucherini, Mark, 2020. "Spontaneity and serendipity: Space and time in the lives of people with diabetes," Social Science & Medicine, Elsevier, vol. 245(C).

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