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Reconciling ethical and economic conceptions of value in health policy using the capabilities approach: A qualitative investigation of Non-Invasive Prenatal Testing

Listed author(s):
  • Kibel, Mia
  • Vanstone, Meredith
Registered author(s):

    When evaluating new morally complex health technologies, policy decision-makers consider a broad range of different evaluations, which may include the technology's clinical effectiveness, cost effectiveness, and social or ethical implications. This type of holistic assessment is challenging, because each of these evaluations may be grounded in different and potentially contradictory assumptions about the technology's value.

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    File URL: http://www.sciencedirect.com/science/article/pii/S0277953617306895
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    Article provided by Elsevier in its journal Social Science & Medicine.

    Volume (Year): 195 (2017)
    Issue (Month): C ()
    Pages: 97-104

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    Handle: RePEc:eee:socmed:v:195:y:2017:i:c:p:97-104
    DOI: 10.1016/j.socscimed.2017.11.024
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    1. Al-Janabi, Hareth & Coast, Joanna & Flynn, Terry N., 2008. "What do people value when they provide unpaid care for an older person? A meta-ethnography with interview follow-up," Social Science & Medicine, Elsevier, vol. 67(1), pages 111-121, July.
    2. Sen, Amartya, 2001. "Development as Freedom," OUP Catalogue, Oxford University Press, number 9780192893307.
    3. Payne, Katherine & Nicholls, Stuart G. & McAllister, Marion & MacLeod, Rhona & Ellis, Ian & Donnai, Dian & Davies, Linda M., 2007. "Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients' views," Health Policy, Elsevier, vol. 84(1), pages 112-122, November.
    4. Simon, Judit & Anand, Paul & Gray, Alastair & Rugkåsa, Jorun & Yeeles, Ksenija & Burns, Tom, 2013. "Operationalising the capability approach for outcome measurement in mental health research," Social Science & Medicine, Elsevier, vol. 98(C), pages 187-196.
    5. Brouwer, Werner B.F. & Culyer, Anthony J. & van Exel, N. Job A. & Rutten, Frans F.H., 2008. "Welfarism vs. extra-welfarism," Journal of Health Economics, Elsevier, vol. 27(2), pages 325-338, March.
    6. Greco, Giulia & Skordis-Worrall, Jolene & Mkandawire, Bryan & Mills, Anne, 2015. "What is a good life? Selecting capabilities to assess women's quality of life in rural Malawi," Social Science & Medicine, Elsevier, vol. 130(C), pages 69-78.
    7. Carter, Ian, 2014. "Is The Capability Approach Paternalist?," Economics and Philosophy, Cambridge University Press, vol. 30(01), pages 75-98, March.
    8. Joanna Coast & Hareth Al‐Janabi & Eileen J. Sutton & Susan A. Horrocks & A. Jane Vosper & Dawn R. Swancutt & Terry N. Flynn, 2012. "Using qualitative methods for attribute development for discrete choice experiments: issues and recommendations," Health Economics, John Wiley & Sons, Ltd., vol. 21(6), pages 730-741, June.
    9. Ingrid Robeyns, 2003. "Sen'S Capability Approach And Gender Inequality: Selecting Relevant Capabilities," Feminist Economics, Taylor & Francis Journals, vol. 9(2-3), pages 61-92.
    10. Anand, Paul & Dolan, Paul, 2005. "Equity, capabilities and health," Social Science & Medicine, Elsevier, vol. 60(2), pages 219-222, January.
    11. Albrecht, Gary L. & Devlieger, Patrick J., 1999. "The disability paradox: high quality of life against all odds," Social Science & Medicine, Elsevier, vol. 48(8), pages 977-988, April.
    12. Lorgelly, Paula K. & Lorimer, Karen & Fenwick, Elisabeth A.L. & Briggs, Andrew H. & Anand, Paul, 2015. "Operationalising the capability approach as an outcome measure in public health: The development of the OCAP-18," Social Science & Medicine, Elsevier, vol. 142(C), pages 68-81.
    13. Grewal, Ini & Lewis, Jane & Flynn, Terry & Brown, Jackie & Bond, John & Coast, Joanna, 2006. "Developing attributes for a generic quality of life measure for older people: Preferences or capabilities?," Social Science & Medicine, Elsevier, vol. 62(8), pages 1891-1901, April.
    14. Martha Nussbaum, 2003. "Capabilities As Fundamental Entitlements: Sen And Social Justice," Feminist Economics, Taylor & Francis Journals, vol. 9(2-3), pages 33-59.
    15. repec:eee:socmed:v:189:y:2017:i:c:p:114-128 is not listed on IDEAS
    16. Hall, Jane & Fiebig, Denzil G. & King, Madeleine T. & Hossain, Ishrat & Louviere, Jordan J., 2006. "What influences participation in genetic carrier testing?: Results from a discrete choice experiment," Journal of Health Economics, Elsevier, vol. 25(3), pages 520-537, May.
    17. Paul Anand, 2005. "QALYs and capabilities: a comment on Cookson," Health Economics, John Wiley & Sons, Ltd., vol. 14(12), pages 1283-1286.
    18. Coast, Joanna & Smith, Richard D. & Lorgelly, Paula, 2008. "Welfarism, extra-welfarism and capability: The spread of ideas in health economics," Social Science & Medicine, Elsevier, vol. 67(7), pages 1190-1198, October.
    19. Philip Kinghorn & Angela Robinson & Richard Smith, 2015. "Developing a Capability-Based Questionnaire for Assessing Well-Being in Patients with Chronic Pain," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 120(3), pages 897-916, February.
    20. Coast, Joanna & Flynn, Terry N. & Natarajan, Lucy & Sproston, Kerry & Lewis, Jane & Louviere, Jordan J. & Peters, Tim J., 2008. "Valuing the ICECAP capability index for older people," Social Science & Medicine, Elsevier, vol. 67(5), pages 874-882, September.
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