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Interactions between affect, cognition, and information behavior in the context of fibromyalgia

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  • Annie T. Chen

Abstract

It is widely recognized that affect and cognition can have a profound influence on information behavior. However, how these factors affect information behavior in the context of chronic, stigmatized conditions is less clear. This study employed a qualitative approach to explore the interrelatedness of affect, cognition, and information behavior among persons with fibromyalgia. Persons with fibromyalgia were recruited using multiple recruitment strategies (e.g., listservs and social media) for an interview study. The interview guided participants to tell their story as they drew a timeline. Data were analyzed using qualitative data analysis methods based on the Grounded Theory Methodology. Participants' narratives illustrated that affect and cognition had diverse effects on participants' information and health behaviors: uncertainty and negative affect promoted information seeking; affect and information facilitated reconceptualization and self‐growth; and online venues facilitated venting, gave rise to validating experiences, and provided opportunities to help others. This study's findings contribute to extant knowledge by connecting affect, cognition, and action in long‐term health management. The study also provides recommendations for practice: a need to focus on practical management strategies in information provision, develop information resources to address the needs of diverse populations, and promote empathy and awareness concerning invisible conditions.

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  • Annie T. Chen, 2022. "Interactions between affect, cognition, and information behavior in the context of fibromyalgia," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 73(1), pages 31-44, January.
    • Handle: RePEc:bla:jinfst:v:73:y:2022:i:1:p:31-44
    DOI: 10.1002/asi.24538
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    1. Charmaz, Kathy, 1990. "'Discovering' chronic illness: Using grounded theory," Social Science & Medicine, Elsevier, vol. 30(11), pages 1161-1172, January.
    2. Madden, Sue & Sim, Julius, 2006. "Creating meaning in fibromyalgia syndrome," Social Science & Medicine, Elsevier, vol. 63(11), pages 2962-2973, December.
    3. Wonchan Choi & Besiki Stvilia, 2015. "Web credibility assessment: Conceptualization, operationalization, variability, and models," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 66(12), pages 2399-2414, December.
    4. Sim, Julius & Madden, Sue, 2008. "Illness experience in fibromyalgia syndrome: A metasynthesis of qualitative studies," Social Science & Medicine, Elsevier, vol. 67(1), pages 57-67, July.
    5. Wang, Yuxi & McKee, Martin & Torbica, Aleksandra & Stuckler, David, 2019. "Systematic Literature Review on the Spread of Health-related Misinformation on Social Media," Social Science & Medicine, Elsevier, vol. 240(C).
    6. Shelagh K. Genuis & Jenny Bronstein, 2017. "Looking for “normal”: Sense making in the context of health disruption," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 68(3), pages 750-761, March.
    7. Annie T. Chen, 2015. "Information use and illness representations: Understanding their connection in illness coping," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 66(2), pages 340-353, February.
    8. Carol C. Kuhlthau, 1991. "Inside the search process: Information seeking from the user's perspective," Journal of the American Society for Information Science, Association for Information Science & Technology, vol. 42(5), pages 361-371, June.
    9. Beth St. Jean, 2017. "Factors motivating, demotivating, or impeding information seeking and use by people with type 2 diabetes: A call to work toward preventing, identifying, and addressing incognizance," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 68(2), pages 309-320, February.
    10. Kaitlin L. Costello & Tiffany C. Veinot, 2020. "A spectrum of approaches to health information interaction: From avoidance to verification," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 71(8), pages 871-886, August.
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