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“I’m suffering for food”: Food insecurity and access to social protection for TB patients and their households in Cape Town, South Africa

Author

Listed:
  • Lieve Vanleeuw
  • Wanga Zembe-Mkabile
  • Salla Atkins

Abstract

Background: Tuberculosis (TB) is a major health concern and the number one cause of death in South Africa. Social protection programmes can strengthen the resilience of TB patients, their families and households. This study aimed to get a better understanding of the role of social protection and other forms of support in relation to the burden of TB on patients and their households in South Africa. Methods: This is a cross-sectional exploratory qualitative study using a phenomenological approach to focus on the lived experiences and perceptions of TB patients and healthcare workers. We interviewed 16 patients and six healthcare workers and analysed data thematically. Results: The challenges faced by participants were closely related to household challenges. Participants reported a heavy physical burden, aggravated by a lack of nutritious food and that households could not provide the food they needed. Some needed to resort to charity. At the same time, households were significantly affected by the burden of caring for the patient—and remained the main source of financial, emotional and physical support. Participants reported challenges and costs associated with the application process and high levels of discretion by the assessing doctor allowing doctors’ opinions and beliefs to influence their assessment. Conclusion: Access to adequate nutritious food was a key issue for many patients and this need strained already stretched households and budgets. Few participants reported obtaining state social protection support during their illness, but many reported challenges and high costs of trying to access it. Further research should be conducted on support mechanisms and interventions for TB patients, but also their households, including food support, social protection and contact tracing. In deciding eligibility for grants, the situation of the household should be considered in addition to the individual patient.

Suggested Citation

  • Lieve Vanleeuw & Wanga Zembe-Mkabile & Salla Atkins, 2022. "“I’m suffering for food”: Food insecurity and access to social protection for TB patients and their households in Cape Town, South Africa," PLOS ONE, Public Library of Science, vol. 17(4), pages 1-16, April.
    • Handle: RePEc:plo:pone00:0266356
    DOI: 10.1371/journal.pone.0266356
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    References listed on IDEAS

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    1. Salla A Munro, 2007. "Patient Adherence to Tuberculosis Treatment: A Systematic Review of Qualitative Research," Working Papers id:1107, eSocialSciences.
    2. Foster, Nicola & Vassall, Anna & Cleary, Susan & Cunnama, Lucy & Churchyard, Gavin & Sinanovic, Edina, 2015. "The economic burden of TB diagnosis and treatment in South Africa," Social Science & Medicine, Elsevier, vol. 130(C), pages 42-50.
    3. United Nations UN, 2015. "Transforming our World: the 2030 Agenda for Sustainable Development," Working Papers id:7559, eSocialSciences.
    4. Lönnroth, Knut & Jaramillo, Ernesto & Williams, Brian G. & Dye, Christopher & Raviglione, Mario, 2009. "Drivers of tuberculosis epidemics: The role of risk factors and social determinants," Social Science & Medicine, Elsevier, vol. 68(12), pages 2240-2246, June.
    5. Salla A Munro & Simon A Lewin & Helen J Smith & Mark E Engel & Atle Fretheim & Jimmy Volmink, 2007. "Patient Adherence to Tuberculosis Treatment: A Systematic Review of Qualitative Research," PLOS Medicine, Public Library of Science, vol. 4(7), pages 1-16, July.
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    1. Collins Timire & Katharina Kranzer & Debora Pedrazzoli & Fungai Kavenga & Samuel Kasozi & Fredrick Mbiba & Virginia Bond, 2023. "Coping with drug resistant tuberculosis alongside COVID-19 and other stressors in Zimbabwe: A qualitative study," PLOS Global Public Health, Public Library of Science, vol. 3(8), pages 1-18, August.
    2. Lieve Vanleeuw & Wanga Zembe-Mkabile & Salla Atkins, 2022. "Falling through the cracks: Increased vulnerability and limited social assistance for TB patients and their households during COVID-19 in Cape Town, South Africa," PLOS Global Public Health, Public Library of Science, vol. 2(7), pages 1-18, July.

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